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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 hours ago | Replies (764)Comment receiving replies
Welcome @avcowie! You will find a lot of information about HOCM here. I see that you are already off to a good start in the Camzyos discussions. That's great, because there are fellow HOCM folks and fellow Canadians there too! I see you asked a question too about mitral valve involvement. It sounds like you were caught off guard during that visit. Do you know what your next steps are? It is super important that you are being followed by an HCM expert, do you know if your cardiologist is skilled in HCM? Is your plan now to try Camzyos, no surgery?
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The plan is to try the Camzyos for the next three months and see if it truly helps with all my symptoms. If not I’ll be on the surgical route with a mitral valve surgeon and HOCM surgeon taking turns at fixing my heart.
It’s only my first day taking the medication and I’m not feeling well at all. Bloating stomach, headache, back pain, fatigue and ringing ears. I’m monitoring my ecg on my Apple Watch and it’s pretty wild. Trying to not get too anxious about it.