ive been diaganosed a few years ago. my daily life has come to a screeching halt. dressing, cooking, sitting, standing it doesnt matter what i do i am in pain. i filed for disability a while back and was denied 4 times yet my condition seems to be getting worse. doctors for the most part dont understand what it is and lets be honest the ssa has zero clue. thank god i got a doctor finally who understands it and understands what im going through. riverview pain clinic in anoka, mn. i have taken over 30 perscriptions to try and ease the pain and nothing has worked. pt feels amazing mostly the soft tissue massage but my last visit my therapist said he was scared to do it as my back was having 1000 spasms a min. cant afford pt anymore, cant pay my mounting doctors bills but the ssa judge thinks im full of it and trying to work the system. i walk with a cane (should be using 2 hiking sticks but cant afford to get them) i have a handicap parking permit and i have left the house less than a half dozen times in past 5 years for an activity other than a doctors visit. HOW CAN SUCH A CRIPPLING DIAGANOSIS BE SUCH A MYSTORY TO SO MANY?
I was diagnosed I think in 2017 at Mayo Rochester Minn. I had been getting along ok but fell in September hard hit on head since then have had the same as you don’t leave home unless a Dr. appointment. No one but us know the pain and life we live. I will pray for you and please pray for me. I will try to keep in touch with you.
ive been diaganosed a few years ago. my daily life has come to a screeching halt. dressing, cooking, sitting, standing it doesnt matter what i do i am in pain. i filed for disability a while back and was denied 4 times yet my condition seems to be getting worse. doctors for the most part dont understand what it is and lets be honest the ssa has zero clue. thank god i got a doctor finally who understands it and understands what im going through. riverview pain clinic in anoka, mn. i have taken over 30 perscriptions to try and ease the pain and nothing has worked. pt feels amazing mostly the soft tissue massage but my last visit my therapist said he was scared to do it as my back was having 1000 spasms a min. cant afford pt anymore, cant pay my mounting doctors bills but the ssa judge thinks im full of it and trying to work the system. i walk with a cane (should be using 2 hiking sticks but cant afford to get them) i have a handicap parking permit and i have left the house less than a half dozen times in past 5 years for an activity other than a doctors visit. HOW CAN SUCH A CRIPPLING DIAGANOSIS BE SUCH A MYSTORY TO SO MANY?
How much are walking sticks I will help you with that if you don’t mind. I have been struggling with CSS since I was 28 yrs old it now has just about taken me down. I know your pain I think some of my family think I am just a crier but this is real wasn’t diagnosed with this until 2017 I now am 69 years old had a bad fall in September concussion and whiplash I cannot get better. Please let me help you get your walking sticks I would like to help you.
Welp just got diagnosed in Jax after 5 years of searching 1 ish at Mayo. CSS is the diagnosis, I have an understanding of what this is but I am skeptical this course will fix anything. How do I know this isn’t just something more serious and it just isn’t showing yet
I have the same questions as you have but have been looking for years started at age 28 I am now 69 most Dr. do not understand and don’t want to understand I have not been thru the CSS program. I have been wanting to try but never had the chance I am tired of looking and spending a lot of money to find they do not know what or where to look.
Hi there. I am having a unique situation with my nerves and I just had a doctor mention maybe I have "Central Sensitization Syndrome" so I'm trying to learn more about it. My situation is this....I started noticing nerve issues with my teeth several years ago. What was supposed to be a couple of small fillings, ended up becoming root canals and crowns. The nerve in the tooth would get so mad, they would have to remove it.
Later we found if I took high does of NSAIDs for like 2 weeks the nerve would settle back down but it was too late by then. I thought it was a Diabetes thing, since I was newly diagnosed at the time. Figured my nerves were just more sensitive at that point. Now....a year later, I had a tooth crack at the root somehow so eventually we found the only way for this pain to stop was to remove the tooth (even though still good) with roots and nerve. After the implant went in and has been a year, I am still having a nerve issue in my mouth. It is not a tooth and it is no longer painful, as I've had the dentist and the surgeon check. EVERY day my gums, cheeks, teeth are irritated after a certain point in the day, chewing on cheek or clenching my teeth. I go to sleep and when I wake up....it's gone until later in the day.
There are other things that have now happened as well. If I get an injury to a body part, things then randomly hurt. I started with an overuse injury of my left thumb. Doc gave me a steroid injection which helped for awhile. Then I got an "overuse" injury on the inside of my elbow on the same arm which seemed to tag team with my thumb but randomly. Once the "overuse" part was mostly resolved then it moved up my arm to my shoulder. They thought maybe Thoracic Outlet Syndrome but everything is again random and not consistent now.
What really freaked me out was about a month ago, I let the doc give me another injection in my thumb joint (he said it was now arthritis in the joint) and the joint was so swollen, he couldn't get all the steroid in it. Later that night after all numbing wore off, I woke up with the most excruciating pain in my life. Every nerve in my left arm was set off and no pain pills (I took 4 throughout the night) and NSAIDS helped. I had two babies without meds and this was definitely worse. By 4am I was so exhausted, I held my arm to my body and forced myself to lay down. Fell into a stooper and when I woke up..........all nerve pain had receded. I kept waiting for it to come back but it was just sore from being poked. I have been looking but everything I can find talks about Neuropathy with Diabetes and this is not that.
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I was diagnosed I think in 2017 at Mayo Rochester Minn. I had been getting along ok but fell in September hard hit on head since then have had the same as you don’t leave home unless a Dr. appointment. No one but us know the pain and life we live. I will pray for you and please pray for me. I will try to keep in touch with you.
How much are walking sticks I will help you with that if you don’t mind. I have been struggling with CSS since I was 28 yrs old it now has just about taken me down. I know your pain I think some of my family think I am just a crier but this is real wasn’t diagnosed with this until 2017 I now am 69 years old had a bad fall in September concussion and whiplash I cannot get better. Please let me help you get your walking sticks I would like to help you.
I have the same questions as you have but have been looking for years started at age 28 I am now 69 most Dr. do not understand and don’t want to understand I have not been thru the CSS program. I have been wanting to try but never had the chance I am tired of looking and spending a lot of money to find they do not know what or where to look.
Hi there. I am having a unique situation with my nerves and I just had a doctor mention maybe I have "Central Sensitization Syndrome" so I'm trying to learn more about it. My situation is this....I started noticing nerve issues with my teeth several years ago. What was supposed to be a couple of small fillings, ended up becoming root canals and crowns. The nerve in the tooth would get so mad, they would have to remove it.
Later we found if I took high does of NSAIDs for like 2 weeks the nerve would settle back down but it was too late by then. I thought it was a Diabetes thing, since I was newly diagnosed at the time. Figured my nerves were just more sensitive at that point. Now....a year later, I had a tooth crack at the root somehow so eventually we found the only way for this pain to stop was to remove the tooth (even though still good) with roots and nerve. After the implant went in and has been a year, I am still having a nerve issue in my mouth. It is not a tooth and it is no longer painful, as I've had the dentist and the surgeon check. EVERY day my gums, cheeks, teeth are irritated after a certain point in the day, chewing on cheek or clenching my teeth. I go to sleep and when I wake up....it's gone until later in the day.
There are other things that have now happened as well. If I get an injury to a body part, things then randomly hurt. I started with an overuse injury of my left thumb. Doc gave me a steroid injection which helped for awhile. Then I got an "overuse" injury on the inside of my elbow on the same arm which seemed to tag team with my thumb but randomly. Once the "overuse" part was mostly resolved then it moved up my arm to my shoulder. They thought maybe Thoracic Outlet Syndrome but everything is again random and not consistent now.
What really freaked me out was about a month ago, I let the doc give me another injection in my thumb joint (he said it was now arthritis in the joint) and the joint was so swollen, he couldn't get all the steroid in it. Later that night after all numbing wore off, I woke up with the most excruciating pain in my life. Every nerve in my left arm was set off and no pain pills (I took 4 throughout the night) and NSAIDS helped. I had two babies without meds and this was definitely worse. By 4am I was so exhausted, I held my arm to my body and forced myself to lay down. Fell into a stooper and when I woke up..........all nerve pain had receded. I kept waiting for it to come back but it was just sore from being poked. I have been looking but everything I can find talks about Neuropathy with Diabetes and this is not that.