Yes, I was diagnosed with FM 10 years ago by a rheumatologist. I went to him because of chronic pain and it seemed to change places in my body.
I’ve worked my way up to 1,800 iu a day of Gabapentine and I’m thinking of weaning off. I also take 90 iu of Cymbalta, Celebrex in mornings and Flexerill at night along with a host of supplements and pain relief.
Yoga helps a lot but I can only do stretches now so I walk a lot. Pain management is all day everyday. 🙏
Hello @tyyne21wigwam - Good for you for thinking outside of the box and looking at ways you can help yourself manage your condition. Learning about Central Sensitization Syndrome (CSS) can be helpful and validating when trying to understand the "why behind the what". After acute problems are fixed or attempted to be fixed and 3 - 6 months later there remains pain and symptoms, unfortunately chronic sets in - as you 10 years later have dealt with.
Here is an amazing CSS video by Mayo Clinic's Dr. Christopher Sletten who teaches at Mayo's pain rehab center in FL:
Central Sensitization Syndrome - Dr. Christopher Sletten -
I graduated the PRC and worked with Dr. Sletten a couple of years ago. Please ask away if you have any questions about CSS or the program. I'm happy to help.
Here are CSS discussions you may like to look over and learn from:
Central Sensitization - please share your stories -
Also, recently, members like @angieleigh, @westcom and @berniep have discussed Dr. John Sarno, his books and podcasts as being helpful for chronic issues. Take a look:
I hope you find motivation and inspiration to continue your quest of learning about CSS and using diversion to quell your pain. Kudos to you for self advocating! What types of tools have you currently been using?
Have you discovered benefits of diaphragmatic breathing or mindful mediation yet?
My husband had told me about Central Sensitization a few months back. I agree with him that it fits my situation. After watching this video, I've decided I would like to pursue this 3-week program, only in Arizona instead of Florida. Can anyone give me information on contacting who I would register with and a calendar as to when they are conducting these workshops? Thank you
My husband had told me about Central Sensitization a few months back. I agree with him that it fits my situation. After watching this video, I've decided I would like to pursue this 3-week program, only in Arizona instead of Florida. Can anyone give me information on contacting who I would register with and a calendar as to when they are conducting these workshops? Thank you
It's admirable that you are considering seeking rehabilitation for yourself. Central sensitization is challenging to live with but can get better with the proper tools in place. Good luck!
I am at the Rochester, Minnesota clinic for Long Covid Syndrome. After a week of testing, I was told I had Central Sensitization Syndrome. I will be visiting the Fibromyalgia Clinic tomorrow, and see what they can offer to help with my pain.
I am at the Rochester, Minnesota clinic for Long Covid Syndrome. After a week of testing, I was told I had Central Sensitization Syndrome. I will be visiting the Fibromyalgia Clinic tomorrow, and see what they can offer to help with my pain.
Please let us know how the Fibro Clinic worked for you, possibly in the Chronic Pain support group. I've been diagnosed with Fibro so am curious. Thanks.
Please let us know how the Fibro Clinic worked for you, possibly in the Chronic Pain support group. I've been diagnosed with Fibro so am curious. Thanks.
The clinic helped me understand that I am doing some of the right things, but need to add a few more exercises, modify my meds, and I will be taking virtual Post Covid Treatment Program 2 days next week. They listen to you and take you symptoms to heart when planning their care plan.
I went through Mayo's Pain Rehab Clinic and was a little better for a short time. It was there that I learned of Central Sensitization. I've had progressive symptoms over the past 5 years. It's reached a point where the fatigue is so profound that I have trouble getting up the energy to do much of anything. And the pain.....some days I can control the pain.....most days I cannot. I take pain medication but am developing a tolerance. How do you cope?
I first had a level of Fibromyalgia for 7 years where I could be functional if I took Lyrica and Tylenol at bedtime. Then the combo of cold winters, neck disc degeneration and bone spur pain pushed me into a much higher devilish pain level all over and my PC dr changed my diagnosis to CSS. It’s like an angry hornet that won’t stop stinging us isn’t it? I now have Adrenal exhaustion, POTS, body wasting, lots of food reactions/pain and pancreatic insufficiency.. afternoon heavy sleepiness from the meds I have to use in order to sleep the night before is keeping me from getting anything done. I found that Myofascial massage and even regular massage feel good at the moment but in two hours, there is a hellish pain increase that my nervous system adopts and it never subsides. We live with great frustration don’t we? I send all of you who have CSS my empathy and prayers. I had a blood test ordered by a Functional and Dr to check my brain chemicals and dopamine was way too high. due to pain, he said. And advised me to avoid supplements containing Tyrosine, Ginseng and turmeric bc they boost dopamine and make migraines worse. So I did and found he was right.
I am a retired RN and do medical research often. I’m glad to share my helpful supplements list with you all: Alpha Lipoic Acid, DHA, Bacopa (lowers Dopamine some and boosts brain neuron production), Saffron Extract, B12, Omega 3 fish oil and Ginkgo are Dr Dale Bredesen and Dr Daniel Amen’s favorite supplements for the brain (these two drs are our nation’s top brain drs). I take a great multi-vitamin for women over 50 by Thorne Laboratories. I take Milk Thistle/Dandelion supplement for my liver (important supp). I take extra Vit C by Health Source SuperFoods made from Camu Camu, Amla and Acerola. I rotate it with Vit B Complex. I have histamine intolerance so I have to take a histamine enzyme 15 min before I eat. (If our bodies don’t make their own Histamine Enzyme called Diamine Oxidase, we will have a severe stinging headache after eating foods with high and moderately high amount of histamine. This is a hereditary condition). I take digestive enzymes, HCL and a soil-based probiotic by Just Thrive or Megaspore by Microbiome Labs. All these supplements are sold on Amazon.
One thing is for sure - we must all avoid MSG or we will have terrible headaches and less brain health. Also run from pork, processed foods, seed oils, conventionally fed cows and chicken and food dyes. Eat organic if u can possibly afford it so u can avoid gut destructive glyphosate. Drink a lot of filtered water with lemon each day so u can flush out a lot of chemicals we get through foods, air, heavy metals, plastics and many other sources. I hope this info is a help. God bless all of you!
I first had a level of Fibromyalgia for 7 years where I could be functional if I took Lyrica and Tylenol at bedtime. Then the combo of cold winters, neck disc degeneration and bone spur pain pushed me into a much higher devilish pain level all over and my PC dr changed my diagnosis to CSS. It’s like an angry hornet that won’t stop stinging us isn’t it? I now have Adrenal exhaustion, POTS, body wasting, lots of food reactions/pain and pancreatic insufficiency.. afternoon heavy sleepiness from the meds I have to use in order to sleep the night before is keeping me from getting anything done. I found that Myofascial massage and even regular massage feel good at the moment but in two hours, there is a hellish pain increase that my nervous system adopts and it never subsides. We live with great frustration don’t we? I send all of you who have CSS my empathy and prayers. I had a blood test ordered by a Functional and Dr to check my brain chemicals and dopamine was way too high. due to pain, he said. And advised me to avoid supplements containing Tyrosine, Ginseng and turmeric bc they boost dopamine and make migraines worse. So I did and found he was right.
I am a retired RN and do medical research often. I’m glad to share my helpful supplements list with you all: Alpha Lipoic Acid, DHA, Bacopa (lowers Dopamine some and boosts brain neuron production), Saffron Extract, B12, Omega 3 fish oil and Ginkgo are Dr Dale Bredesen and Dr Daniel Amen’s favorite supplements for the brain (these two drs are our nation’s top brain drs). I take a great multi-vitamin for women over 50 by Thorne Laboratories. I take Milk Thistle/Dandelion supplement for my liver (important supp). I take extra Vit C by Health Source SuperFoods made from Camu Camu, Amla and Acerola. I rotate it with Vit B Complex. I have histamine intolerance so I have to take a histamine enzyme 15 min before I eat. (If our bodies don’t make their own Histamine Enzyme called Diamine Oxidase, we will have a severe stinging headache after eating foods with high and moderately high amount of histamine. This is a hereditary condition). I take digestive enzymes, HCL and a soil-based probiotic by Just Thrive or Megaspore by Microbiome Labs. All these supplements are sold on Amazon.
One thing is for sure - we must all avoid MSG or we will have terrible headaches and less brain health. Also run from pork, processed foods, seed oils, conventionally fed cows and chicken and food dyes. Eat organic if u can possibly afford it so u can avoid gut destructive glyphosate. Drink a lot of filtered water with lemon each day so u can flush out a lot of chemicals we get through foods, air, heavy metals, plastics and many other sources. I hope this info is a help. God bless all of you!
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Yes, I was diagnosed with FM 10 years ago by a rheumatologist. I went to him because of chronic pain and it seemed to change places in my body.
I’ve worked my way up to 1,800 iu a day of Gabapentine and I’m thinking of weaning off. I also take 90 iu of Cymbalta, Celebrex in mornings and Flexerill at night along with a host of supplements and pain relief.
Yoga helps a lot but I can only do stretches now so I walk a lot. Pain management is all day everyday. 🙏
My husband had told me about Central Sensitization a few months back. I agree with him that it fits my situation. After watching this video, I've decided I would like to pursue this 3-week program, only in Arizona instead of Florida. Can anyone give me information on contacting who I would register with and a calendar as to when they are conducting these workshops? Thank you
Hi there, Samson @gregv -
You may use the following link to navigate a Mayo location of your choice. There is a contact phone number for AZ.
- http://mayocl.in/1mtmR63
In addition, here is info about Mayo's Pain Rehab Center and the 3 week program:
- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
It's admirable that you are considering seeking rehabilitation for yourself. Central sensitization is challenging to live with but can get better with the proper tools in place. Good luck!
Will you please keep us posted on your progress?
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2 ReactionsHas anyone been diagnosed with Post-Surgical Inflamatory neuropathy?
I am at the Rochester, Minnesota clinic for Long Covid Syndrome. After a week of testing, I was told I had Central Sensitization Syndrome. I will be visiting the Fibromyalgia Clinic tomorrow, and see what they can offer to help with my pain.
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Like -
Helpful -
Hug
3 ReactionsPlease let us know how the Fibro Clinic worked for you, possibly in the Chronic Pain support group. I've been diagnosed with Fibro so am curious. Thanks.
The clinic helped me understand that I am doing some of the right things, but need to add a few more exercises, modify my meds, and I will be taking virtual Post Covid Treatment Program 2 days next week. They listen to you and take you symptoms to heart when planning their care plan.
I first had a level of Fibromyalgia for 7 years where I could be functional if I took Lyrica and Tylenol at bedtime. Then the combo of cold winters, neck disc degeneration and bone spur pain pushed me into a much higher devilish pain level all over and my PC dr changed my diagnosis to CSS. It’s like an angry hornet that won’t stop stinging us isn’t it? I now have Adrenal exhaustion, POTS, body wasting, lots of food reactions/pain and pancreatic insufficiency.. afternoon heavy sleepiness from the meds I have to use in order to sleep the night before is keeping me from getting anything done. I found that Myofascial massage and even regular massage feel good at the moment but in two hours, there is a hellish pain increase that my nervous system adopts and it never subsides. We live with great frustration don’t we? I send all of you who have CSS my empathy and prayers. I had a blood test ordered by a Functional and Dr to check my brain chemicals and dopamine was way too high. due to pain, he said. And advised me to avoid supplements containing Tyrosine, Ginseng and turmeric bc they boost dopamine and make migraines worse. So I did and found he was right.
I am a retired RN and do medical research often. I’m glad to share my helpful supplements list with you all: Alpha Lipoic Acid, DHA, Bacopa (lowers Dopamine some and boosts brain neuron production), Saffron Extract, B12, Omega 3 fish oil and Ginkgo are Dr Dale Bredesen and Dr Daniel Amen’s favorite supplements for the brain (these two drs are our nation’s top brain drs). I take a great multi-vitamin for women over 50 by Thorne Laboratories. I take Milk Thistle/Dandelion supplement for my liver (important supp). I take extra Vit C by Health Source SuperFoods made from Camu Camu, Amla and Acerola. I rotate it with Vit B Complex. I have histamine intolerance so I have to take a histamine enzyme 15 min before I eat. (If our bodies don’t make their own Histamine Enzyme called Diamine Oxidase, we will have a severe stinging headache after eating foods with high and moderately high amount of histamine. This is a hereditary condition). I take digestive enzymes, HCL and a soil-based probiotic by Just Thrive or Megaspore by Microbiome Labs. All these supplements are sold on Amazon.
One thing is for sure - we must all avoid MSG or we will have terrible headaches and less brain health. Also run from pork, processed foods, seed oils, conventionally fed cows and chicken and food dyes. Eat organic if u can possibly afford it so u can avoid gut destructive glyphosate. Drink a lot of filtered water with lemon each day so u can flush out a lot of chemicals we get through foods, air, heavy metals, plastics and many other sources. I hope this info is a help. God bless all of you!
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2 ReactionsSee u tube, Dr shubiNer on somatic thinking and primary pain. It is interesting and it has worked for many.
Read about somatic thinking on u tube,Dr shubiNer on primary pain it works..for me.