Has anyone been diagnosed with Central Sensitization?

I was diagnosed I think in 2017 at Mayo Rochester Minn. I had been getting along ok but fell in September hard hit on head since then have had the same as you don’t leave home unless a Dr. appointment. No one but us know the pain and life we live. I will pray for you and please pray for me. I will try to keep in touch with you.

How much are walking sticks I will help you with that if you don’t mind. I have been struggling with CSS since I was 28 yrs old it now has just about taken me down. I know your pain I think some of my family think I am just a crier but this is real wasn’t diagnosed with this until 2017 I now am 69 years old had a bad fall in September concussion and whiplash I cannot get better. Please let me help you get your walking sticks I would like to help you.

I have the same questions as you have but have been looking for years started at age 28 I am now 69 most Dr. do not understand and don’t want to understand I have not been thru the CSS program. I have been wanting to try but never had the chance I am tired of looking and spending a lot of money to find they do not know what or where to look.

Hi there. I am having a unique situation with my nerves and I just had a doctor mention maybe I have "Central Sensitization Syndrome" so I'm trying to learn more about it. My situation is this....I started noticing nerve issues with my teeth several years ago. What was supposed to be a couple of small fillings, ended up becoming root canals and crowns. The nerve in the tooth would get so mad, they would have to remove it.
Later we found if I took high does of NSAIDs for like 2 weeks the nerve would settle back down but it was too late by then. I thought it was a Diabetes thing, since I was newly diagnosed at the time. Figured my nerves were just more sensitive at that point. Now....a year later, I had a tooth crack at the root somehow so eventually we found the only way for this pain to stop was to remove the tooth (even though still good) with roots and nerve. After the implant went in and has been a year, I am still having a nerve issue in my mouth. It is not a tooth and it is no longer painful, as I've had the dentist and the surgeon check. EVERY day my gums, cheeks, teeth are irritated after a certain point in the day, chewing on cheek or clenching my teeth. I go to sleep and when I wake up....it's gone until later in the day.
There are other things that have now happened as well. If I get an injury to a body part, things then randomly hurt. I started with an overuse injury of my left thumb. Doc gave me a steroid injection which helped for awhile. Then I got an "overuse" injury on the inside of my elbow on the same arm which seemed to tag team with my thumb but randomly. Once the "overuse" part was mostly resolved then it moved up my arm to my shoulder. They thought maybe Thoracic Outlet Syndrome but everything is again random and not consistent now.
What really freaked me out was about a month ago, I let the doc give me another injection in my thumb joint (he said it was now arthritis in the joint) and the joint was so swollen, he couldn't get all the steroid in it. Later that night after all numbing wore off, I woke up with the most excruciating pain in my life. Every nerve in my left arm was set off and no pain pills (I took 4 throughout the night) and NSAIDS helped. I had two babies without meds and this was definitely worse. By 4am I was so exhausted, I held my arm to my body and forced myself to lay down. Fell into a stooper and when I woke up..........all nerve pain had receded. I kept waiting for it to come back but it was just sore from being poked. I have been looking but everything I can find talks about Neuropathy with Diabetes and this is not that.

I have been diagnosed with CSS just recently and POTS and lifelong IBS as well as bulging discs in my back, arthritis in my back and stenosis. I have made some life style changes such as diet, more magnesium, Vitamin D and K2, Calcium, fish oil, and went on hormones with my gyn. I have started pacing myself and breathing exercises and doing physical therapy. I have had some really hopeful days over the last few weeks. No major episodes that I was having where I have so much pain and nausea that makes me feel like I need to be in the ER. I was going to sign up for the Pain 3 week class at Mayo but I have read about it and not sure about it. I have read that the things they teach you are somewhat elementary and it is expensive. Being diagnosed with CSS is helpful but also afraid that doctors will now excuse anything going on with me as CSS and ignore real issues.
I hope you are doing better.

I was diagnosed with CSS - triggered by a surgery. I have burning sensations in my face, arms, legs, torso, back, wrists and ankles, as well as tinnitus. I have participated in Pain reprocessing therapy, tried scrambler therapy and am struggling. I am unable to tolerate TCAs, gabapentin, and can barely handle even 25 mg of pregabalin. Sleep is elusive even because despite taking lunesta to sleep, I am woken up with pain most every night. I have been trying to walk every day to stay active, though after walking up some hills (which I used to do withease) I found myself feeling achy for days after so I am reduced to stretching on a mat at home. I am only 58 and was so looking forward to some golden years with my husband, who has become my caretaker...thus I am lamenting the loss of our previous wonderful dynamic.

I have been scouring the internet to find success stories of others who overcame CSS to keep me motivated, but haven't found any. I would appreciate if someone could share stories of recovery from this!

@canjpt

I take 50mg pregabalin in the morning and 100 mg at night. I also take low dose naltrexone at 4.5mg once a day. I have found acupuncture to be a real game-changer, and highly recommend it.

@lwmarcrum
I have the same I have not been formally diagnosed, but I could know the symptoms. Well enough you may want to look up The association for the treatment of neuroplastic symptoms, symptomatic.me.
There are many practitioners who might be able to help since this is an unclear /dia B/ Nyos the best way is to will get it through this lens I have found

Symptomatic.me
Read works by Howard Schubiner MD, David Clarke MD