Has anyone been diagnosed with Central Sensitization?

Posted by leh09 @leh09, Apr 4, 2016

Has anyone been diagnosed with Central Sensitization? If so I'd like to discuss.

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Profile picture for goldleaf @goldleaf

I woke this morning and spent some time reviewing what I posted. Since someone has taken an interest in me, I would like to add a couple of present medical problems that my doctors can’t or won’t respond to. I am chemically sensitive to all pharmaceutical drugs. I now have allergic reactions to a lot of natural foods that I didn’t have before that surgery. I can’t even use natural medications. I still have medical problems to deal with. Incurable ones. I have thyroid disease and I have to use a pharmaceutical med for that. There have been some very bad problems that have occurred when having to say go to my primary doctor. I had to recently change to a new one because he doesn’t understand Central Sensitization Syndrome even though I spent time trying to explain it to him. After spending my appointment time doing this, he said the stupidest thing to. “ So now you are desensitized”. What a waste of that time. The bad result of this happened when I had my annual blood test for the thyroid disease. It showed that the level was to high. So he adjusted the dosage. That adjustment probably wouldn’t have affected before that operation but it did this time. For me it was way too low and I reacted like someone just set me on fire. I am still trying to adjust to this level and it has been over 8 months. I dropped that doctor and started seeing a new one. This primary doctor, after finding out that I have Central Sensitization Syndrome and the very bad reaction to the thyroid medication, doesn’t want to deal with it. The last time I saw him he told me that he wants to let my neurologist deal with it. Stupid reasoning. Yes my neurologist went out of his way and spent sometime looking into this and had me take a couple more blood tests. When the results came back, they showed that I was in some kind of normal range and I didn’t need to see a endocrinologist. He explained that stress from having Central Sensitization Syndrome will affect my thyroid gland.The reality is I am still having problems because of that change. Since this affects my entire nervous system, I think you see my point. As of now I really can’t trust any doctor who isn’t familiar with Central Sensitization Syndrome. So here is my dilemma, if I have any kind of old or new medical situation, who do I see and where can I go to for help? I can’t prescribe meds for myself I am not a doctor and as far as I am concerned, they aren’t either. I am 71 and I will eventually start having more medical problems, Mother Nature will see to that. I have the neurologist who has been very helpful in dealing with my pain through injections. But that only lasts for awhile and I can barely live with that. The prospect of more pain is there. I will never be able to have any surgery. My reality sucks.

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@goldleaf I understand your condition. I was diagnosed with this in 2014 after decades of hypersensitivities, migraines, chronic anxiety, chronic pain syndromes (fibromyalgia, pudendal neuralgia, occipital neuralgia and now "idiopathic" small fiber peripheral polyneuropathy). Im 72 now, have had these issues to some degree since an extremely stressful, abusive childhood.

I didn't understand that diagnosis given by a migraine specialist and no details were given. However, this vague explanation was to be the only educated info I received through the years. No other doctors seem to know what it is at all, greatly preferring to assume I'm just a hypochondriac and need intense mental therapy.
Note that I am also autistic which is a risk factor for this since I am naturally more sensitive.

Understanding that this condition is a documented syndrome has lessened the anxiety a tiny bit, which I appreciate because anxiety worsens the deep burning, itching pain and increases migraines. GI symptoms, heart pounding, urinary urgency, chest tightness.

I may not be able to completely cure the SFN but I can improve this overall hypersensitization by lessening the anxiety level which hypersensitized my brain. I'm learning that is possible. Dont give up.

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