I was diagnosed with CSS - triggered by a surgery. I have burning sensations in my face, arms, legs, torso, back, wrists and ankles, as well as tinnitus. I have participated in Pain reprocessing therapy, tried scrambler therapy and am struggling. I am unable to tolerate TCAs, gabapentin, and can barely handle even 25 mg of pregabalin. Sleep is elusive even because despite taking lunesta to sleep, I am woken up with pain most every night. I have been trying to walk every day to stay active, though after walking up some hills (which I used to do withease) I found myself feeling achy for days after so I am reduced to stretching on a mat at home. I am only 58 and was so looking forward to some golden years with my husband, who has become my caretaker...thus I am lamenting the loss of our previous wonderful dynamic.

I have been scouring the internet to find success stories of others who overcame CSS to keep me motivated, but haven't found any. I would appreciate if someone could share stories of recovery from this!