Had 2 wedge resections, 2 tumors & 1 lymph positive What now?

Posted by zora0121 @zora0121, May 24 8:28am

Hi 62 yr old female, 2 wedge resections for small 1.7cm and .7 cm tumors. But 1 lymph node showed adenocarcinoma.
So I'm scared. Never showed up on MRI CT, PET. classed stage 2. Live in Canada, overwhelmed healthcare system. Waiting for oncologist appt. Regular Joe, can't afford 200k for foreign healthcare.
What are my options next steps, maybe could swing 80k usd..
Feeling overwhelmed, had no idea I was sick, found incidently 3 months ago..
Appreciate any advice

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@zora0121, hi there, I just read your message and my heart goes out to you, I truly appreciate your concern with what you mentioned being a cancer survivor and I also live in Canada so we have a few things in common. I know it’s a struggle for us to get the help we need and waiting to see a doctor is very nerve wracking because we know that cancer doesn’t wait for anyone. I have been treated twice for lung cancer and I am 73. I marvel at the elderly people who have fought battles with their health and live to talk about it, the things people go through and share their experiences with us are inspiring and gives us hope and ultimately strength in numbers. I’m sorry you’re going through this but you’re going to get the help you need and you will find the strength inside of you…it’s also very encouraging to hear that the survival rate is rapidly going up thanks to doctors using scans more often, thus the cancer is found earlier and it makes all the difference for our lives. I see that you are in the early stages so they can do amazing things to help you get back your life, we do have some of the best hospitals and specialist in Canada and be rest assured you will get better, please stay connected here because there’s lots good people who will be there for you, good luck with your journey to back to good health.

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@frouke

@zora0121, hi there, I just read your message and my heart goes out to you, I truly appreciate your concern with what you mentioned being a cancer survivor and I also live in Canada so we have a few things in common. I know it’s a struggle for us to get the help we need and waiting to see a doctor is very nerve wracking because we know that cancer doesn’t wait for anyone. I have been treated twice for lung cancer and I am 73. I marvel at the elderly people who have fought battles with their health and live to talk about it, the things people go through and share their experiences with us are inspiring and gives us hope and ultimately strength in numbers. I’m sorry you’re going through this but you’re going to get the help you need and you will find the strength inside of you…it’s also very encouraging to hear that the survival rate is rapidly going up thanks to doctors using scans more often, thus the cancer is found earlier and it makes all the difference for our lives. I see that you are in the early stages so they can do amazing things to help you get back your life, we do have some of the best hospitals and specialist in Canada and be rest assured you will get better, please stay connected here because there’s lots good people who will be there for you, good luck with your journey to back to good health.

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Omg, your words of encouragement mean the world to me, thank you, so much.
I'm trying to stay positive I have a second grandchild on the way and a son who was devastated to hear the suspicious nodule. I don't want to tell him my pathology because he has the baby due, is starting a new job and has so much on his plate.
I want to be aroundvfor those babies, to help support them.
Thank you again, for reaching out.

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@zora0121

Omg, your words of encouragement mean the world to me, thank you, so much.
I'm trying to stay positive I have a second grandchild on the way and a son who was devastated to hear the suspicious nodule. I don't want to tell him my pathology because he has the baby due, is starting a new job and has so much on his plate.
I want to be aroundvfor those babies, to help support them.
Thank you again, for reaching out.

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My pleasure and to hear how much you are encouraged is wonderful because you deserve to be happy, you will be there for your new baby’s arrival and more good things to come, amen.

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Hello, I am also in Canada (SW Ontario). I started my lung cancer journey 4.5 years ago when I lived in North Carolina so I have experienced the health care system on both sides of the border. I had surgery in NC in 2020 (stage 2) and I had surgery in Ontario just 2 months ago. I have had excellent care in both places but in both places I had to advocate for myself and push a little. I connected with a wonderful respirologist here, Dr. Berkett, who opened doors for me at the Juravinski Cancer Center in Hamilton (even though I don't live in Hamilton). I knew I needed surgery and wanted to spare as much healthy lung tissue as possible. With that in mind I was referred to a surgeon who specializes in robotic thoracic. I can tell you that I have received excellent and responsive care in Ontario and have never received a bill for any of it. While in the US I also received excellent and responsive care and spent $30K out of pocket for my care even though I had health insurance. You will get the care you need - you can be sure of it - but push if you need to push. Stay positive and try to keep your stress in check (I know it's hard). Take a deep breath and trust that you'll get what you need. You're not alone!

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@trudyhs

Hello, I am also in Canada (SW Ontario). I started my lung cancer journey 4.5 years ago when I lived in North Carolina so I have experienced the health care system on both sides of the border. I had surgery in NC in 2020 (stage 2) and I had surgery in Ontario just 2 months ago. I have had excellent care in both places but in both places I had to advocate for myself and push a little. I connected with a wonderful respirologist here, Dr. Berkett, who opened doors for me at the Juravinski Cancer Center in Hamilton (even though I don't live in Hamilton). I knew I needed surgery and wanted to spare as much healthy lung tissue as possible. With that in mind I was referred to a surgeon who specializes in robotic thoracic. I can tell you that I have received excellent and responsive care in Ontario and have never received a bill for any of it. While in the US I also received excellent and responsive care and spent $30K out of pocket for my care even though I had health insurance. You will get the care you need - you can be sure of it - but push if you need to push. Stay positive and try to keep your stress in check (I know it's hard). Take a deep breath and trust that you'll get what you need. You're not alone!

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Wow, very encouraging news!
I had the VATS surgery and it's been 3 weeks and I'm walking 6km a day! So that is amazing, I think.
I have to wait to see an oncologist, and every day is a struggle, I'm so afraid things are spreading..
They took out 2 small tumors, 3 lymph nodes one showed cancer but margins were clear if that means anything. All the surgeon said was we don't know if cancer cells are somewhere else, so you need additional treatment.
But I'm definitely encouraged to hear you're experience. I just don't know much other than Dr. Google who can be terrifying. Here I see such success stories, lightens my ♥. Thank you so much for sharing, it means so much to me
And yes I will be an advocate for myself, I have ppl who need me around!!

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Be patient and wait for the biopsy that will determine mutations. Mutations and metastasis drive treatment these days. Sending hugs.

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That's right! You have so many reasons to get well and get on with life. I am your age and have kids and grandkids that give me so much joy and purpose. While I sure would have preferred to get through life not having to deal with this crappy disease, here we are. I've had to accept that cancer is my traveling partner in life but it needs to get in the back seat and shut the heck up! Lol. Good for you for doing that kind of walking! 6 km is amazing! Just envision your immune system strengthening and killing those cancer cells! There is some good reading out there that I've found very beneficial. Radical Remission by Kelly A. Turner and How To Starve Cancer by Jane McLelland are worth reading (much better than Dr. Google :). Also keep in mind that all those statistics you read online don't have you in them! You don't need to take that on. It helps me to feel a little more in control as well to incorporate some naturopathic care along with traditional medical care through supplementation, diet, vitamin C and mistletoe infusions etc. While waiting for your oncology appointment you can take things in your own hands and move the needle on your health. Remember to stay rooted in the facts and not let FEAR of the unknown take over.
False
Evidence
Appearing
Real
Take good care and have a great day. It's a rainy one here today but that's ok.

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@whahoo

Be patient and wait for the biopsy that will determine mutations. Mutations and metastasis drive treatment these days. Sending hugs.

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The biopsy came back. No one said anything about mutations or metastasis. I had to look up what the staging numbers meant, and there was no M, which I read meant metastatic if it was there. A large part of my anxiety is no one has sat down talked to me about anything..
My surgeon called said nothing about stage, just said that 1 of the 3 lymph nodes was cancerous. And he was going to send me to an oncologist.
????

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@trudyhs

That's right! You have so many reasons to get well and get on with life. I am your age and have kids and grandkids that give me so much joy and purpose. While I sure would have preferred to get through life not having to deal with this crappy disease, here we are. I've had to accept that cancer is my traveling partner in life but it needs to get in the back seat and shut the heck up! Lol. Good for you for doing that kind of walking! 6 km is amazing! Just envision your immune system strengthening and killing those cancer cells! There is some good reading out there that I've found very beneficial. Radical Remission by Kelly A. Turner and How To Starve Cancer by Jane McLelland are worth reading (much better than Dr. Google :). Also keep in mind that all those statistics you read online don't have you in them! You don't need to take that on. It helps me to feel a little more in control as well to incorporate some naturopathic care along with traditional medical care through supplementation, diet, vitamin C and mistletoe infusions etc. While waiting for your oncology appointment you can take things in your own hands and move the needle on your health. Remember to stay rooted in the facts and not let FEAR of the unknown take over.
False
Evidence
Appearing
Real
Take good care and have a great day. It's a rainy one here today but that's ok.

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Thank you!! Great advice and support! Much appreciated !!

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Hi Zora 0121,
I had a segmentectomy of a nodule about the same size as yours about two weeks ago. I am 68. my surgeon called the pathologist during surgery to find out how much to take out (i.e. whether he thought it was cancer or not). (It was originally planned to be a wedge resection). I have gone through many tests for the last two years and when I mentioned this to my surgeon, he was not at all surprised that nothing showed up. He said that anything the size of our tumours do not show up on CT's and PET scans and biopsies. My Pulmonologist obviously didn't know this. I am also in Canada, in Vancouver and my surgeon was Dr. Yee, said to be the best in North America. Please look him up on YouTube and you will see his inventions and techniques that he has invented. He does many lung transplants. Maybe you will be able to afford to fly out here. You are welcome to stay with me.

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