Grover's disease

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

@gardeningjunkie

There are dozens of types of eczema and as I mentioned I have 3, Grover's is just one type. You may also have multiple forms. This confuses doctors as they often keep treating symptoms as they should for your originally diagnosed form. My ACD was absolutely the most miserable form I had (I still have as it is for life but am symptom free) and it was the first type I developed. My first symptom was hand eczema. Mainly because I turned out to be allergic to my dish soap (preservatives), protective gloves which had an element of rubber in them, MBT also I garden and used hoses with rubber and held them without protection. Now I use vinyl hoses or wear vinyl gloves if touching a rubber hose. I was also allergic to all my topical moisturizers, except plain old Vaseline. Even my linens if not 100% cotton. I am even allergic to 3 of the 5 classes of steroids. With each allergic contact your reaction time is less and the symptoms more severe. This test saved my life!!! I was ready to end it all because the 24/7 pain and itching escalated and became unbearable. Sleep was impossible. It progressed to where I became allergic to more and more elements, yes some of the allergic elements are natural. Yes rashes can spring up everywhere or you may have no rash symptoms to show but it internalizes and for me it felt like my nerves inside my skin were inflamed. I would get taser like stinging and burning randomly anywhere. Itching and stinging always worse at night as our histamines are elevated in the evening. ACD is probably the second most common form, after Atopic.
Like you I never had a skin allergy till middle age. Not even acne. For me it was around my menopause time at age 50. It's most common to get ACD later in life as our body looses it's ability to tolerate what it believes to be a poison. Your body is raising your histamine warriors trying to kill off what it considers poison, a common ACD allergy for those in the medical profession is latex. Working with many latex products for decades the nurses and doctors have been absorbing the latex though their skin. It goes into the blood stream and finally the body says "no more", raising histamines to try to purge it. Thus rashes, inflammation and itching. Your rash doesn't even have to be at the contact site because the element that is off gassing and transferring through your skin and has entered your bloodstream can manifest a histamine reaction anywhere. Perhaps this is why you develop rashes in random places. A common area of sensitivity is the inner elbow. Most derms recommend trying a new topical in the inner elbow for 2 weeks before putting else where on your body. Often this site will react the soonest to allergies.
Even if you test negative to anything, the test will give you direction. You will know to keep searching for the correct type of eczema If you are allergic and have ACD you can eliminate contacts and be ACD free like me because now you will have names of your tormentors.
Have you gone to the New Zealand Dermatology site and searched all the forms of eczema? You can view photos of each type and perhaps you will see a rash that looks like yours and that can help identify your type.

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Thank you for the reply. I will be getting the test and researching until i find relief. I will continue to follow up. I appreciate the support and information immensely!

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@gardeningjunkie

There are dozens of types of eczema and as I mentioned I have 3, Grover's is just one type. You may also have multiple forms. This confuses doctors as they often keep treating symptoms as they should for your originally diagnosed form. My ACD was absolutely the most miserable form I had (I still have as it is for life but am symptom free) and it was the first type I developed. My first symptom was hand eczema. Mainly because I turned out to be allergic to my dish soap (preservatives), protective gloves which had an element of rubber in them, MBT also I garden and used hoses with rubber and held them without protection. Now I use vinyl hoses or wear vinyl gloves if touching a rubber hose. I was also allergic to all my topical moisturizers, except plain old Vaseline. Even my linens if not 100% cotton. I am even allergic to 3 of the 5 classes of steroids. With each allergic contact your reaction time is less and the symptoms more severe. This test saved my life!!! I was ready to end it all because the 24/7 pain and itching escalated and became unbearable. Sleep was impossible. It progressed to where I became allergic to more and more elements, yes some of the allergic elements are natural. Yes rashes can spring up everywhere or you may have no rash symptoms to show but it internalizes and for me it felt like my nerves inside my skin were inflamed. I would get taser like stinging and burning randomly anywhere. Itching and stinging always worse at night as our histamines are elevated in the evening. ACD is probably the second most common form, after Atopic.
Like you I never had a skin allergy till middle age. Not even acne. For me it was around my menopause time at age 50. It's most common to get ACD later in life as our body looses it's ability to tolerate what it believes to be a poison. Your body is raising your histamine warriors trying to kill off what it considers poison, a common ACD allergy for those in the medical profession is latex. Working with many latex products for decades the nurses and doctors have been absorbing the latex though their skin. It goes into the blood stream and finally the body says "no more", raising histamines to try to purge it. Thus rashes, inflammation and itching. Your rash doesn't even have to be at the contact site because the element that is off gassing and transferring through your skin and has entered your bloodstream can manifest a histamine reaction anywhere. Perhaps this is why you develop rashes in random places. A common area of sensitivity is the inner elbow. Most derms recommend trying a new topical in the inner elbow for 2 weeks before putting else where on your body. Often this site will react the soonest to allergies.
Even if you test negative to anything, the test will give you direction. You will know to keep searching for the correct type of eczema If you are allergic and have ACD you can eliminate contacts and be ACD free like me because now you will have names of your tormentors.
Have you gone to the New Zealand Dermatology site and searched all the forms of eczema? You can view photos of each type and perhaps you will see a rash that looks like yours and that can help identify your type.

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After looking further into the age thing, I found that it is quite common for women in menopause to have chronic hives! I am asking my doctor to look further in to this. If it is autoimmune in nature, then there are no triggers like food that I can avoid. It will be up to an immunologist to help me figure out treatment. I guess it's just my luck to have two skin conditions at once.

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Cilantro doesn't seem to be helping my hubs. But, I'm putting about 1/2 a bunch in and making 2 batches. Maybe he needs more cilantro. Frozen was SO much easier! I even dreamt about telling people to freeze the cilantro! 🙂 Anyone know if it's just as effective if it's frozen? Thanks!

Liked by kimass1

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@ptownmama

Cilantro doesn't seem to be helping my hubs. But, I'm putting about 1/2 a bunch in and making 2 batches. Maybe he needs more cilantro. Frozen was SO much easier! I even dreamt about telling people to freeze the cilantro! 🙂 Anyone know if it's just as effective if it's frozen? Thanks!

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I freeze mine it works so much easier in the blender. I think you’re not giving him enough. He needs at least a half bunch in the beginning and then maybe cut back. I personally am using a whole bunch every day. And it took me just about a month to see the effects, and continued to get better and better in the following months.

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wow! okay. I'll increase the dose… thanks so much!

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Around day 15 or so i think with the smoothies. Upped it to 3/4 bunch to see if the red spots would go away – only have a couple of raised ones, no new ones. Itching is reduced for sure but not gone. Seeing if more gives me any benefit. Going away for the weekend so no smoothies. Guess i will go with supplements – How many are people taking if they have to skip the smoothie? One pill seems way light given how much cilantro is in each smoothie

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@seth971

Around day 15 or so i think with the smoothies. Upped it to 3/4 bunch to see if the red spots would go away – only have a couple of raised ones, no new ones. Itching is reduced for sure but not gone. Seeing if more gives me any benefit. Going away for the weekend so no smoothies. Guess i will go with supplements – How many are people taking if they have to skip the smoothie? One pill seems way light given how much cilantro is in each smoothie

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I have overdone it this week doing my spring clean up. The bumps that had receded are larger and more numerous on lower back torso. I need to be realistic and understand just consuming the cilantro won't overcome ignoring GD triggers.

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@seth971

Around day 15 or so i think with the smoothies. Upped it to 3/4 bunch to see if the red spots would go away – only have a couple of raised ones, no new ones. Itching is reduced for sure but not gone. Seeing if more gives me any benefit. Going away for the weekend so no smoothies. Guess i will go with supplements – How many are people taking if they have to skip the smoothie? One pill seems way light given how much cilantro is in each smoothie

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Bunches vary in size, even at the same store. I make sure I have at least 3 loose cups of stems and leaves. It tastes just as strong with 2 cups as it does with 3 or more so why not up the amount until you get results?
I haven't skipped a dose of fresh in the morning for over 2 1/2 months. I also take 1 supplement pill of cilantro for lunch and dinner. I have read that Chlorella, Broken Cell Wall Algae, helps GD too and take about 4-6 pills a day of the NOW brand. I had a trip with access to refrigeration once I arrived so I packed my cilantro and NutriBullet. I also had access to grocery stores so could have bought it once at my destination if needed.
Even after drinking it all this time the skin still has the healed red spots, not scabs, which have never faded on the back lower torso, but have healed and faded elsewhere in front and back torso. As mentioned I have been pushing it in the heat and now am getting a few more bumps so I need to back off the garden chores once the day warms up. Cilantro is not a cure and we still need to manage our lifestyle.

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@seth971

Around day 15 or so i think with the smoothies. Upped it to 3/4 bunch to see if the red spots would go away – only have a couple of raised ones, no new ones. Itching is reduced for sure but not gone. Seeing if more gives me any benefit. Going away for the weekend so no smoothies. Guess i will go with supplements – How many are people taking if they have to skip the smoothie? One pill seems way light given how much cilantro is in each smoothie

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When not on fresh I was taking 3 pills a day. that was the dosage indicated on the bottle.

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I have had Grover's Disease for over 4 years praying it would go away. I treated it with steroids for years and tried to make sure I was wearing the correct fabrics and doing all the things my dermatologist suggested. I have Hashimoto's and have also had multiple autoimmune issues x 30 years. About 2 years ago I started looking at my diet. I cut out gluten 2 years ago, and my skin slightly improved. 1 year ago I cut out dairy and eggs. My skin stayed the same. My husband and I started hearing about and researching the carnivore diet. 30 days ago I started in on just meat, salt and water. I started it as an elimination diet to see what triggered my autoimmune symptoms. After 14 days I added back in minimal dairy including hard cheese, heavy whipping cream in my coffee and butter. My skin is 90% clear. If you're reading this, please research plant oxalates and plant anti-nutrients and what it does to your gut health. If anything, use the carnivore diet as an elimination diet short term, to see what foods are triggering your symptoms. I truly believe that diet is the answer to cure this.
If going this route, please research the diet thoroughly before you start. There are tricks to doing this safely and correctly, and taking this route requires knowledge to keeping your body safe, while you adjust to a sudden change. Again research: carnivore diet, oxalates, oxalate dumping, lectins, plant antinutrients and Sally K. Norton who is leading the research on this. I believe there are good plants to eat, I just don't believe all of them are safe for you.
I know if you are suffering from this disease, you're willing to try anything to live normal again. I spent multiple hours on chat boards trying to find answers. This is the first time I've felt hopeful that this will go away and I can go to sleep at night without my skin feeling like it's on fire. Good luck to everyone posting on here. I pray you find answers and your own path to a cure.

Liked by MariannJ

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@bg1910

I have had Grover's Disease for over 4 years praying it would go away. I treated it with steroids for years and tried to make sure I was wearing the correct fabrics and doing all the things my dermatologist suggested. I have Hashimoto's and have also had multiple autoimmune issues x 30 years. About 2 years ago I started looking at my diet. I cut out gluten 2 years ago, and my skin slightly improved. 1 year ago I cut out dairy and eggs. My skin stayed the same. My husband and I started hearing about and researching the carnivore diet. 30 days ago I started in on just meat, salt and water. I started it as an elimination diet to see what triggered my autoimmune symptoms. After 14 days I added back in minimal dairy including hard cheese, heavy whipping cream in my coffee and butter. My skin is 90% clear. If you're reading this, please research plant oxalates and plant anti-nutrients and what it does to your gut health. If anything, use the carnivore diet as an elimination diet short term, to see what foods are triggering your symptoms. I truly believe that diet is the answer to cure this.
If going this route, please research the diet thoroughly before you start. There are tricks to doing this safely and correctly, and taking this route requires knowledge to keeping your body safe, while you adjust to a sudden change. Again research: carnivore diet, oxalates, oxalate dumping, lectins, plant antinutrients and Sally K. Norton who is leading the research on this. I believe there are good plants to eat, I just don't believe all of them are safe for you.
I know if you are suffering from this disease, you're willing to try anything to live normal again. I spent multiple hours on chat boards trying to find answers. This is the first time I've felt hopeful that this will go away and I can go to sleep at night without my skin feeling like it's on fire. Good luck to everyone posting on here. I pray you find answers and your own path to a cure.

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I have 3 type of eczema and resisted dietary changes, but my yeast misery gave me the impetus to try diet change based on my gynecologist recommendation. Your diet plan is more restrictive, but both of us are having great results. Thank goodness I like meat!! The Dr. William Crook, MD anti-inflammation diet to kill the stubborn yeast which resides in the intestines and gives off waste byproducts raising our inflammation (this is because yeast byproducts going into our bloodstream raise our histamine levels) is also heavy on meat, but I get poultry, fish, probiotic yogurt and eggs, almonds and walnuts and this detox allows masses of vegetables, except night shades. It is also stated to help with eczema. After the 2 month detox my decades old chronic yeast inflammation issues were gone!!! No inflammation in my female privates. Now 6 months later and on modified diet control-no processed sugar, natural sugar limited and zero carbs for life, yeast symptoms still gone and no meds to help!!! I believe dietary changes help with many forms of eczema, especially the most common type, Atopic which I don't have. My types of eczema aren't simply related to diet, as I must control my external contacts and exposure. My GD has definitely been helped by joining the Cilantro Club; nothing else ever made much difference. Steroids did nothing. Everyone should try this cilantro plan unless they have some sort of vitamin allergy. With the Crook diet, going off the sugar and carbs made no noticeable difference with my GD, in fact after being on this plan for 4 months I began another residual breakout of GD. Yet may have helped with my ACD because I did not need my annual corticosteroid shot in Dec after starting this elimination diet in Oct. Even with all my contact avoidance's I still required on annually until this year. My Perioral Eczema, PE has been controlled since I learned what to avoid. The PE contacts are not allergies and different than the ACD 5 Day Patch Test Allergens so can't say if diet helped with that as I learned to control it before dietary changes.

Liked by kimass1

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Those of us with eczema are constantly studying .
Because of this site we have read that cilantro works as a heavy metal detox and for some reason it is helping at least 50% tremendously, me included. I didn't test positive to nickle or cobalt on my patch test 5 years ago and these were the only metals tested for. Yet recently had a blood test to determine allergies to metal and bone cement as I am considering a knee replacement. Of the 9 metals it tested for I reacted to 7, only iron and titanium not causing an allergic reaction. My worst reactions were to aluminum and nickle and cobalt. Why this didn't show up 5 years ago with the patch test I don't know. Perhaps the blood test is more accurate.
If cilantro is working as heavy metal detox and cleaned out the allergic metals in my blood perhaps that is why I am improved. My thinking is that if Grover's is caused or can be triggered by metals then those of us that are allergic to metals have more of a tendency to develop Grover's and once we have Grover's a chronic incurable autoimmune disease the metal may trigger symptoms. Metals build up in our bodies.
This revelation about metal allergy's puts a few more pieces of my eczema puzzle together. I have avoided all other allergen's identified on my 5 Day Extended Patch Test, yet even when I avoid make up with my know allergens I find the majority of products that should be "safe" cause an allergic reaction. After wasting money and suffering I have found a few products I can use without irritation, but a safe eye shadow has alluded me. After buying dozens of eye brown pencils I finally found one that causes no reaction and believe me this has made me very happy as my brow hair is so light. I never tossed or gave away many of these expensive offending products and re-read the ingredients, many contain metals.
Metals are hard to avoid, they are even in our water, so let's hope the continued daily use of cilantro will continue to alleviate symptoms for many of us.

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I have had great success using the "Cilantro Club" plan and still make my cilantro smoothy daily and plan to do so for life.

I want to tell my allergist and dermatologist about this because now after 2 1/2 months of remission I believe it is worth sharing what we "guinea pigs" have learned with our personal testing.

From what I have read previously at least 50% have benefited like me.

Could you check in and share if it did or didn't work with you so I can pass that along to my specialists.

Liked by MariannJ

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Yes! Been working for me for 3 months. Real test now this week as I am in Pacific Northwest and a little isolated. I am relying on Cilantro capsules and the very cool weather. Will let y’all know next week when I return to Texas.

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Thanks. So far using the fresh I am able to garden in the morning and sweat for a few hours outside and no new breakout. We're lucky.
If you have electricity have thought of packing the fresh and freezing it when you get to your destination? Others say frozen works for them. Also if you only have refrigeration, no freezer, I keep mine for a week by trimming an inch off the bottom and putting it is a glass with a few inches of water which I change every 3 days. I top with a plastic bag with cuts in it to allow some fresh air.

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