Mayo Clinic Connect
I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?
Had Grover’s since January 1 but biopsy in February made it official. Itching was so horrible that I could not sleep. Got on Mayo Clinic discussion group, found out about cilantro, began taking and it cleared up within 10 days.
I take cilantro by 2 methods. First is a cilantro, yogurt and orange juice smoothie every morning. Secondly I take a cilantro capsule three times per day.
For one 5 day period (on trip) I took only capsules and did not break out. After 6 months I am back to running in Texas heat. Have had small outbreak of red bumps on back but no pain, no itching at all. One of these days I’m going to try weaning myself off cilantro just to see if I break out but that’s several months down the road.
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Thanks frogger for your update and will copy your information in my report to my derms. We are 2 of the lucky ones and even it stops working we can appreciate the break from GD symptoms.
Diagnosed mid January. No biopsy. Two weeks later I stated with cilantro supplements, three a day. March 31st I switched to smoothies with cilantro. Grovers is gone although my skin still looks mottled. I use 1/4 bunch with almond milk, strawberries, blueberries, banana and a little protein powder. I keep thinking I may discontinue to see what happens but the smoothie is great for my digestive process and it has become a ritual I look forward to. I hate the taste of cilantro but am almost afraid to stop, especially since now the temps are 111+ in Arizona.
I like what you are doing. When you compile all the results will you please share so we can all give to our respective dermatologists?
Both you and Frogger have replied with postive responses like I have. I see my MO derm in 2 weeks and hope I get more responses by then and plan to have them read the testimonials from both the earthclinic and Inspire.
I still have some tissue on my back with red spots which is healed skin from the Grover's rash. I don't know if it will fade in time and am grateful it no longer hurts or is active.
I also posted on the earthclinic stile, "Cilantro Cure for Grover's Disease" which has been inactive for a while and hope to get updates. On that site one man wrote his outbreak was going on for 6 years and this is the only treatment that ever worked and I hope it is still helping him.
Liked by kimass1
Hi All! Diagnosed in November 2018 through a biopsy. Found the earthclinic.com website around the end of January and stared the Cilantro in February and saw results in about 28-30 days and was rash and itch free for a couple months. Grover's rash is gone, but do now have a lingering hives type rash that comes and goes through out the day. Not as itchy as the Grover's but still a pain in the rear. NO red papules, and Derms all agree it does not present as Grover's and believe it is something else. I did stop the cilantro for a week and I started getting the red spots, so I started up on smoothies again. So in MY opinion the cilantro works. I drink a smoothie daily with about 1 bunch (1-2 cups of cilantro, a tsp of chloerlla blended with a container of flavored yogurt and orange juice.
Liked by gardeningjunkie
Kimass1- Thanks for update and a very good site explaining how cilantro is a heavy metal detox is timesofindia.indiatimes.com. and in the search mention cilantro heavy metals. They also mention how metals are also in our drinking water. I still have original fillings with mercury, 3, but I have also read that the removal process releases metal in our bodies and we are better off without removal.
hello i was just dx with grovers exactly how do you get it? is it heredity
https://rarediseases.info.nih.gov/diseases/6551/grovers-disease#diseaseGardAnswersSection Try this. There are many theories.
Go to this discussion from the beginning and read all the posts. I learned about cilantro working to detox our GD, it has worked for me and about 50% of the others. The earthclinic site is mentioned in this discussion, go there and read other testimonials about its effectiveness.
Liked by grandturk67
hello how do you start a new post on here i dont see an option
Liked by Rosemary, Volunteer Mentor
Look at the top left side for Groups. Click. Scroll down until you see the group you want to post on. For example if you want to start a discussion about your skin, go to Skin Health and click on that. Once you do you will see where to click to start a discussion. .
awesome thank you very much
Hi to all. Update. 2nd biopsy confirmed Grover’s. My plan of attack has been minocycline, vitamins C, D (was extremely low) and E also a probiotic. Cool shower with tincture if green soap. I’m no longer using the steroid creams. I am happy to say the rash and itch is subsiding. I’m using Sarna for the itch control and cetaphil for moisturizing. A fan above me and one on the side of me along with cotton sheets. Last weekend with the high humidity we went to a lake so I wore a bathing suit. Not for long though the nylon and mesh and being tight on my body caused so much discomfort. Ripped it off and put on a white cotton T-shirt. ( these days I really don’t care what I wear as long as it’s comfortable and not clingy.) I have a big weekend outside in the sun and heat and I’m a bit nervous. I Should but am afraid to use sunscreen for fear of it aggravating the rash. I’ll try to keep covered up.
That’s great. My hubs still has a ton of itchy spots. Thinking the cilantro is not working for him. But, we keep trying. It gets better and then worse. The vitamin A in high doses is the only thing that got rid of it. But, once the dose was decreased, it came back with a vengeance. 🙁
My biggest fear when I stop taking the minicycline that this will come back. It’s been about 6 months now. Definitely changed my life.
I am so sorry it is not helping your husband, seems it only helps about half of us. Calcipotreine, Vitamin D topical approved for psoriasis helped a bit but had to wait my full 6 months to be in remission. I knew within a week that my recent breakout was stalling. Before that my outbreaks had a pattern. 1st outbreak one year, then six months off and 6 months on for the last 4 years. Before that no matter what I tried my outbreak had a timer, it would last the full 6 months.
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