Good MAC Doctor Recommendations

Posted by chinasmom @chinasmom, Apr 7, 2017

I have been searching for either an infectious disease doctor or a pulmonary doctor in the St .Louis Missouri area to treat MAC. It’s exhausting work. I currently have pulmonary doctor with a prescription pad and an infectious disease student.
Please help if you know of a good one.
Becky

@rits

Since Dr McShane went to Tyler, I believe there is only one MAC specialist here and he is at Loyola in Maywood west of the city. I can't remember his name but you can probably find it on their website. If not let me know and I will try to find it. I'm sure other physicians are familiar with it but don't specialize in it.

Dr McShane continues to treat my bacteria from Texas and I see Dr Strek at the University of Chicago for my other lung diseases including bronchiectasis. She is familiar with MAC.

Welcome to Chicago!

Jump to this post

Many thanks for your information and the welcome to Chicago!

REPLY
@londonritt

I have just moved to Chicago and am searching for a pulmonary physician who is knowledgeable of mac lung disease. I appreciate any assistance in my search.

Jump to this post

Havah, I have a son and daughter-in-law in the Chicago area. They’ve been well-served by physicians connected with Northwestern University Medical Center. Don

REPLY
@thumperguy

Havah, I have a son and daughter-in-law in the Chicago area. They’ve been well-served by physicians connected with Northwestern University Medical Center. Don

Jump to this post

While most of my doctors for my various problems are at Northwestern and it is much more convenient for me to go there, I would not recommend the pulmonary dept there for MAC patients. I was treated for chronic bronchitis there for 7 or 8 years.

REPLY
@londonritt

I have just moved to Chicago and am searching for a pulmonary physician who is knowledgeable of mac lung disease. I appreciate any assistance in my search.

Jump to this post

Hi Havah,
You'll notice that I moved your question about search for a MAC specialist to this existing discussion called "Good MAC Doctor Recommendations." You may also be interested in this related discussion:
Top MAC doctor/treatment Rochester: Questions to ask at first appt? https://connect.mayoclinic.org/discussion/top-mac-doctortreatment-rochester/

REPLY

Greetings,
I live in the San Francisco Bay Area. I was diagnosed with bronchiectasis and MAC in February 2020. I have been diligently expectorating three times a day using a nebulizer and 10% saline solution followed by physiotherapy, i.e., percussion clapping, vibrations, and autogenic drainage while lying on a yoga mat. I’ve been doing this in the hopes of secreting enough mucus to deprive the MAC of a friendly environment for nesting in my stretched airways. I learned the physiotherapy by watching videos on the Cystic Fibrosis Foundation (CFF) website but I have no idea if I am doing it properly. The Kaiser respiratory therapist says Kaiser does not or no longer uses physiotherapy so she can’t show me if I am doing it properly. CFF can’t help someone who doesn’t have cystic fibrosis. In addition, it took me months to figure out how to cough or huff out mucus without straining my diaphragm leading to soreness and pain. And I am still figuring out how to cough and huff without straining my lower back. I therefore am in need of a respiratory therapist. Does anyone have or know of a respiratory therapist in the SF Bay Area I can consult with?
lora jo

REPLY
@ljfoo

Greetings,
I live in the San Francisco Bay Area. I was diagnosed with bronchiectasis and MAC in February 2020. I have been diligently expectorating three times a day using a nebulizer and 10% saline solution followed by physiotherapy, i.e., percussion clapping, vibrations, and autogenic drainage while lying on a yoga mat. I’ve been doing this in the hopes of secreting enough mucus to deprive the MAC of a friendly environment for nesting in my stretched airways. I learned the physiotherapy by watching videos on the Cystic Fibrosis Foundation (CFF) website but I have no idea if I am doing it properly. The Kaiser respiratory therapist says Kaiser does not or no longer uses physiotherapy so she can’t show me if I am doing it properly. CFF can’t help someone who doesn’t have cystic fibrosis. In addition, it took me months to figure out how to cough or huff out mucus without straining my diaphragm leading to soreness and pain. And I am still figuring out how to cough and huff without straining my lower back. I therefore am in need of a respiratory therapist. Does anyone have or know of a respiratory therapist in the SF Bay Area I can consult with?
lora jo

Jump to this post

Hi Lora Jo, welcome to the MAC group. I moved your message to this existing discussion called "Good MAC Doctor Recommendations." I did this so you can connect with others who may have recommendations for a respiratory therapist in the SF Bay Area.

You've also asked questions about using a nebulizer and getting sputum. I encourage you to review some of the existing discussions on these topics. Here are a few recent ones that will provide some information that you're looking for:
– 7% saline continues to deliver https://connect.mayoclinic.org/discussion/7-saline-continues-to-deliver/
– Sputum tests: Problems producing enough sputum https://connect.mayoclinic.org/discussion/sputum-tests/

REPLY
@colleenyoung

Hi Lora Jo, welcome to the MAC group. I moved your message to this existing discussion called "Good MAC Doctor Recommendations." I did this so you can connect with others who may have recommendations for a respiratory therapist in the SF Bay Area.

You've also asked questions about using a nebulizer and getting sputum. I encourage you to review some of the existing discussions on these topics. Here are a few recent ones that will provide some information that you're looking for:
– 7% saline continues to deliver https://connect.mayoclinic.org/discussion/7-saline-continues-to-deliver/
– Sputum tests: Problems producing enough sputum https://connect.mayoclinic.org/discussion/sputum-tests/

Jump to this post

Thanks, Colleen. But how do I find the "Good MAC Doctor Recommendation" discussion? I didn't find it in Groups by Name or Interest.
lora jo

REPLY
@ljfoo

Thanks, Colleen. But how do I find the "Good MAC Doctor Recommendation" discussion? I didn't find it in Groups by Name or Interest.
lora jo

Jump to this post

Colleen, I found the discussion group after all. No need to reply. Thanks.
lora jo

REPLY
Please sign in or register to post a reply.