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Good MAC Doctor Recommendations

MAC & Bronchiectasis | Last Active: Nov 14, 2021 | Replies (77)

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@chattey2

I want to go to mayo Jax for an depth evaluation of my bronchiectasis
/ Mac. I live in Florida. Does anyone have a personal experience with this clinic and the doctors? Or a recommendation for a doctor?

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Replies to "I want to go to mayo Jax for an depth evaluation of my bronchiectasis / Mac...."

Hi @chattey2, I moved your message to this discussion about recommendations of good MAC doctors. @windwalker can tell you about getting treatment for bronchiectasis and MAC at Mayo Clinic, Jacksonville, Florida.

@chattey2 Hello. I would highly recommend going to the Mayo Clinic in JAX. I started going there in 2013. I have been mac free since 2014. I had been sick as a dog for the ten yrs prior to 2013. I had been misdiagnosed, and was never put on antibiotics long enough for them to make a difference. I was seeing Dr. Leventhal, but he is retiring next month. His replacement is Dr. Johnson. She has won several awards for being an outstanding physician. Her specialty is mac and bronchiectasis. Mayo only hires the best, and they run that place like a well oiled machine. All tests are run in the same day, you get the results at the end of the day when you meet with the treating physician. A treatment plan is then set forth. There is no waiting weeks for test results (except for growing mac at the lab), and the Mayo has pull for getting insurance to pay for meds they would not normally cover. Mayo got my tobramycin covered. That is the drug that ultimately cleared me of mac and pseudomonas. You do not need a referral, just call and make an appointment. Please keep me posted on what you decide. Where in Florida do you live?