Good MAC Doctor Recommendations

Posted by chinasmom @chinasmom, Apr 7, 2017

I have been searching for either an infectious disease doctor or a pulmonary doctor in the St .Louis Missouri area to treat MAC. It’s exhausting work. I currently have pulmonary doctor with a prescription pad and an infectious disease student.
Please help if you know of a good one.
Becky

Interested in more discussions like this? Go to the MAC & Bronchiectasis group.

@jengelage

Have diagnosis of MAC and bronchiectasis. Need local doctor in Tampa area to help getting through episodes. Any recommendations??

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@jengelage Hello. I have a notebook at home with drs names in Tampa. I am out of town at the moment until next week. Try http://www.ntminfo.org to see a list of bonafide mac specialists. They are listed by state, then by area. Please get back to me if you still need help finding a dr.

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@jengelage

Are there any doctor recommendations for Bronchiectasis/MAC in the Tampa, FL area? Thanks.

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@america, Hi I live in the Tampa area! I have tried some doctors in the area but I recommend going to Mayo Clinic in Jacksonville. The doctors are very helpful! I was there in September and I have an appointment in March. They do all the testing and try to work with you in the best way possible. I highly recommend it. Good luck.

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@windwalker

@bonniewhite56 Hello Bonnie and welcome to our forum! I
understand that you will be going to the Mayo Clinic in Jacksonville; and seeing
Dr. Leventhal? I am a patient of his and I just adore him. Since I have been
under his care, my quality of life has increased significantly. After many years
of misdiagnosis', I finally got proper care and treatment through him. Please
feel free to ask any questions (none are too small or stupid) or share your
illness experiences with us. This is a wonderful forum with a wealth of
information and support. I am glad you are being seen at Mayo. You will be in
very good hands. When is your appointment?  – Terri M.
 

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Hello and thank you for your help—-I need a pulmonologist in Grand Rapids Michigan.—I have Mac and Abscessus. Need ASAP—staying in Michigan for a while I am from Florida.

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@judyhodgern Vilma Drelichman, MD – Infectious Disease
22301 Foster Winter Drive, 2nd Floor, Suite 200
Southfield, MI 48075
Tel 248-552-0620

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@judyhodgern

Hello and thank you for your help—-I need a pulmonologist in Grand Rapids Michigan.—I have Mac and Abscessus. Need ASAP—staying in Michigan for a while I am from Florida.

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@judyhodgern Stephen Galens, MD – Pulmonary
Pulmonary & Critical Care Associates
44344 Dequindre Road, Suite 410
Sterling Heights, MI 48314
Tel 586-262-5100
50505 Schoenherr Road, Suite 340
Shelby Township, MI 48315
Tel 586-314-0080

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I am looking for a good MAC doctor in Milwaukee, WI. Thank you!

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@angiejohnson Hi there. This dr is registered on the NTMinfo site as a knowledgeable specialist in the field of Mac treatment. He is the only one listed for your state on that site, but that does not mean that he is the only one around. His office is an hour and 45 mins from you. You may want to look up drs near you online and read their bios. Sometimes, they will list what their area of expertise is. Try looking up local Infectious Disease drs and ask them if they can recommend a pulmonologist who is also good to work with, My experience in the past has been that not all pulmonologists are familiar with treating mac, so be sure to see an I.D. dr as well. Let me know what you out please. Anthony Zeimet, DO – Infectious Disease
Affinity Health System
1611 S. Madison Street
Appleton, WI 54915
Tel 920-730-549

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@windwalker Thank you! I did see this doctor on the NTM site. I am seeing a Pulmonologist familiar with MAC, but looking for a 2nd opinion on length of treatment. So I was thinking ID doc would be a good second opinion. I will check into this doctor. I’m just surprised there aren’t any listed in Milwaukee.

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@angiejohnson

@windwalker Thank you! I did see this doctor on the NTM site. I am seeing a Pulmonologist familiar with MAC, but looking for a 2nd opinion on length of treatment. So I was thinking ID doc would be a good second opinion. I will check into this doctor. I’m just surprised there aren’t any listed in Milwaukee.

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@angiejohnson, Like I said, just because they are not listed on that site; doesn't mean they aren't around. They probably are not aware that a site like that exists. If you find a good, mac knowledgeable doctor in Milwaukee, perhaps you can suggest that they register themselves on NTMinfo. Best of luck!

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@unicorn

Hi I wanted to add a few incredible doctors to the discussion. They are at Boston’s Massachusetts General and specialize in this disease. The Pulmonologist is Dr o Donnell. he is the one that turned me on to exercise and the nebulizer, because pills are not tolerated. Dr Hurtado is the infectious disease doctor. She gave me so much info, talked for an hour. I’m such a dingbat i should have recorded it. Anyway, both great docs, they do tons of testing and so far medicare covered almost all of it. xo

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Thank you for those recommendations. I live in RI and am close to Boston.

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@sounder27

Thank you for those recommendations. I live in RI and am close to Boston.

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@sounder27 Good morning, and Happy Memorial Day. Are you doing anything special today? Just wanted to let you know that @pamela37890 sees a good pulmonologist in Boston. Hopefully, she will jump in and share what she knows. Meanwhile, I will dig around and see what I can find for you.

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@bonniewhite56

Hi. I’m new to the site and just secured an appointment at the Jacksonville location. Someone in my readings on here mentioned Dr. Leventhal. I actually asked to have a consult with him. If anyone on here saw him or anyone else they recommend to talk to I would appreciate your feedback. I’ve been diagnosed about a year ago and am going to Mayo for a 2nd opinion because I’m not confident with my current doctor. Thanks so so much for your input.

Bonnie

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@bonniewhite56, Hi Bonnie! I am just checking in with you. How are you doing these days?

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