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Good MAC Doctor Recommendations

Posted by chinasmom @chinasmom, Apr 7, 2017

I have been searching for either an infectious disease doctor or a pulmonary doctor in the St .Louis Missouri area to treat MAC. It's exhausting work. I currently have pulmonary doctor with a prescription pad and an infectious disease student.
Please help if you know of a good one.
Becky

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lilianna | @lilianna | Mar 14 7:51am
In reply to @almap "My 88 year old mother has been treated by a pulmonologist in the Milwaukee are for..." + (show)
@almap

My 88 year old mother has been treated by a pulmonologist in the Milwaukee are for MAI and Bronchiectasis for the last several years. She is currently on Ethambutol 400mg/2 tablet daily and Azithromycin 250 3x/ daily. Rifampin was attempted and lead to horrible consequences because she is on Coumadin. They tried Aricayse nebulizer for 4 months and she could not tolerate it. She is losing weight and increasingly short of breath. Before this she was an active , strong woman always looking much younger than her age. I’m reading about saline treatments etc and wondering what else can be done. Does anyone know of a specialist in the Milwaukee area. Or Chicago?

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I am from the suburbs of Chicago and see dr Zinn at northwestern medicine. She is part of the Northwestern Medicine bronchiectasis center but there are a few others. If you look at the northwestern Thoratic institute they list the doctors who specialize in BE. Good luck

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paww | @paww | Mar 15 6:02pm

Any recommendations for a doctor Melbourne and Palm Beach, Florida?

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