Glioblastoma (GBM) trials and therapeutic devices

Posted by marcyprof @marcyprof, Feb 11, 2019

Allo, I’m looking for a page on GBM trials. I’m particulary interest in the Optune-Novocure TTFields device which is really hard to benefit in Quebec Canada. I just find another similar physical device called Nativis Voyager. Do you have scientific information about this new Nativis Voyager technology?

Hi Marcy, I found this about the Nativis Voyager
– An early feasibility study of the Nativis Voyager® device in patients with recurrent glioblastoma: first cohort in US https://www.futuremedicine.com/doi/full/10.2217/cns-2018-0013

If you are in Quebec, Canada, then this publication from CADTH (Canadian Agency for Drugs and Technologies in Health)
– Alternating Electric Fields (“TumourTreating Fields”) for the Treatment of Glioblastoma (English) https://www.cadth.ca/dv/ieht/alternating-electric-fields-tumour-treating-fields-treatment-glioblastoma
– Les champs électriques alternatifs (« champs de traitement de la tumeur ») pour le traitement du glioblastome https://www.cadth.ca/fr/vd/ieht-fr/alternating-electric-fields-tumour-treating-fields-treatment-glioblastoma

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@colleenyoung

Hi Marcy, I found this about the Nativis Voyager
– An early feasibility study of the Nativis Voyager® device in patients with recurrent glioblastoma: first cohort in US https://www.futuremedicine.com/doi/full/10.2217/cns-2018-0013

If you are in Quebec, Canada, then this publication from CADTH (Canadian Agency for Drugs and Technologies in Health)
– Alternating Electric Fields (“TumourTreating Fields”) for the Treatment of Glioblastoma (English) https://www.cadth.ca/dv/ieht/alternating-electric-fields-tumour-treating-fields-treatment-glioblastoma
– Les champs électriques alternatifs (« champs de traitement de la tumeur ») pour le traitement du glioblastome https://www.cadth.ca/fr/vd/ieht-fr/alternating-electric-fields-tumour-treating-fields-treatment-glioblastoma

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Allo Colleen, thank you for your help. It's really appreciated.
The Optune option seems serious to stop the growth of the recurrent GBM. Good news! But at 21 000$ per month for canadien, ouch (!), it is really expensive. That's the reason why I search for another device, maybe Nativis, but the science of Nativis is really different. Optune stop the mitosis. Nativis seems to reactivate the immune system but there's no clinical proof of that Nativis concept.
If you find any other good science information regarding Nativis, please let me know.

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I chose quality vs quantity of life so I am not taking tramadol or using Optune. I have been doing great:)
On Chinese herbs and vitamins and get therapeutic dose of vitamin C IV every couple of weeks. Last MRI July 19th and tumor threatens to grow back but has not:)

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I wanted to catch up those of you in this discussion on glioblastoma trials and devices and see how things are going recently.

@bjh369 – how have things been going with the herbs and vitamins? When do you have to undergo another MRI?

@marcyprof – did you end up trying out the Nativis device you mentioned in this discussion?

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Lisa Lucier@lisalucier, no, I don't have the opportunity to try physical devices (like Nativis) against GBM. I have had 14 intra-arterial chemotherapy treatments and I am currently under observation. I have been on the ketogenic diet since the start (fall 2018) and I take a lot of supplements (advised by my naturopath, Ben Williams and Jane Mc Lelland). I'm pretty good. The Radical Remission book also helped me see my GBM differently. I am hopeful of being able to heal! (To say that a year ago, I was convinced that I would not go through the year – I have come a long way since).
Good luck to all. Remember, it's not over until it's over (as long as there is life, there is hope).

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