Fructose Malabsorption

Posted by CL @lelia, Dec 5, 2018

I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?

@sarcomasurvivor

Thank you all for this valuable information. The Mayo gastroenterologist did do a hydrogen breath test twice and confirmed SIBO both times. There was no mention of a fructose or lactose intolerance hydrogen breath test. There was no referral to a nutritionist either, only a recommendation to try pelvic therapy, which has been nonproductive after months of therapy.

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Hi:
So you go to Mayo to see a GI Doctor and he says to Pelvic Therapy. What a stupid fool

@redhead63

Hi:
So you go to Mayo to see a GI Doctor and he says to Pelvic Therapy. What a stupid fool

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Agree

@atxer

Hi Mayo Clinic Connect community,

About 2 years ago, I started having excessive gas and to a lesser extent increased belching. I have no other gastrointestinal issues – no bloating, diaheraa, or constipation – but the gas is really bad to the point that I’ve spent the last year restricting my diet and avoiding dating out of embarrassment.

Right now, I’ve found that the gas is reduced if I restrict my diet to plain Greek yogurt, avocados, lean meats, white rice, soy sauce, plain bagel, and cream cheese. That’s not a long list and not a sustainable diet, I know. I’ve noticed increased gas when I eat eggs, oatmeal, sugary muffins and cookies with high fructose corn syrup.

I was diagnosed with some type of sucrose intolerance when I was 10 years old. My symptoms then were vomiting and stomach pain. It was so long ago there may have been symptoms I don’t remember. Either way restricting/eliminating sucrose from my diet eased my symptoms. My doctor thought I would grow out of it and 2 years later I was able to eat sucrose without those nasty symptoms. But with this new digestive issue, I wonder if sugar malabsorption is an issue.

I’m seeing a GI doctor about this next week Has anyone else had excessive gas as your only symptom? Did you get a diagnosis?

Thanks!

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Hi @atxer,
Mayo Clinic has some information on excessive gas and belching, which you can view by clicking on these links:
http://mayocl.in/2lxLuSH
http://mayocl.in/2kCNGJ2

I think you might like to take part in this very active discussion on Connect.
> Fructose Malabsorption https://connect.mayoclinic.org/discussion/fructose-malabsorption-1/

Can you affiliate the gas with any other foods, or does it happen certain times of the day or night more than others?

@grachelg

I have been having acid reflux for over a year and have recently been diagnosed with fructose malabsorption. Trying to stick to a food plan. Always feeling the reflux and heartburn. On omeprazole 20 mg. There are no fruits I can eat between the 2 conditions and this is upsetting. I do not eat or drink wine, coffee, carbonated drinks, garlic, onions, pepper, chocolate , vinegar, all citrus, all fruits, mint, tea, tomatoes… and yet I still feel sick almost after every meal. I also get migraines on occasion. Any advice on what I can still do to feel good!

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Hi:
I have Fructose Malabsorption too, it’s one of the hardest diets around. I am also Lactose and Celiac Intolerance too.
Why are you taking omeprazole? I also had heart burn for many years and my Doctor suggested me to start off drinking Aloe Vera Juice, the whole leaf. First rub some on your arm to see if you have a reaction, if not then start with 1/4 cup in the morning and 1/4 cup before going to bed. Do that for 5 days then go to 1/2 cup in the morning and 1/2 cup before going to bed, do that for 25 days. Hopefully you should be cure of that nasty heartburn. Make sure you buy the Lily of the Desert
Preservative Free, Whole Leaf it’s organic too. Maybe you should give up all dairy for 30 days including all cheeses including goat cheese and sheep cheeses. If you don’t feel any bettter than try one more thing give up wheat, barley, flour and rye, if you cannot then switch to organic wheat, rye flour etc. so many sprays on the crops nowadays. Have you been tested for Celiac? If everything fails then find the best, number one Clinic/hospital that specializes in your condition. Good luck

@grachelg

I have been having acid reflux for over a year and have recently been diagnosed with fructose malabsorption. Trying to stick to a food plan. Always feeling the reflux and heartburn. On omeprazole 20 mg. There are no fruits I can eat between the 2 conditions and this is upsetting. I do not eat or drink wine, coffee, carbonated drinks, garlic, onions, pepper, chocolate , vinegar, all citrus, all fruits, mint, tea, tomatoes… and yet I still feel sick almost after every meal. I also get migraines on occasion. Any advice on what I can still do to feel good!

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Hi Thanks for replying. I am on omeprazole for my acid reflux. I am taking 10mg a day was on 20 mg a day. I tried other antacids they didn't work. Some made me feel worse. I still have acid reflux and heartburn every day. I also have fructose malabsorption. I have just reconciled myself to no more fruits, fructan or fructose, honey…..
Where do you get the Aloe Vera? Do you juice it with any liquids? I will try anything cause right now I have heartburn and bloating all the time.
How do I go about finding a hospital in my area in NJ that specializes in acid reflux and malabsorption….?
I am off dairy. I have not been tested for celiac but I do not have any issues that I know of with gluten. @redhead63

@grachelg

Hi Thanks for replying. I am on omeprazole for my acid reflux. I am taking 10mg a day was on 20 mg a day. I tried other antacids they didn't work. Some made me feel worse. I still have acid reflux and heartburn every day. I also have fructose malabsorption. I have just reconciled myself to no more fruits, fructan or fructose, honey…..
Where do you get the Aloe Vera? Do you juice it with any liquids? I will try anything cause right now I have heartburn and bloating all the time.
How do I go about finding a hospital in my area in NJ that specializes in acid reflux and malabsorption….?
I am off dairy. I have not been tested for celiac but I do not have any issues that I know of with gluten. @redhead63

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Hi:
You can order the Aloe Vera Juice off of Amazon and just drink it straight. Whole Foods would have it too and so would any good health food store. Make sure you get that brand that I sent you. Do you have food in your stool? If so then you need to also get a good enzyme, take 1-2, 20 minutes before your meal, if you eat very little than take one. I was on a prescription enzyme called Viokase for about 15 years and it stop working. As far as a Doctor in your area I really don’t know, I am from Chicago. If your medication isn’t working then go back and tell your Doctor that he needs to try something else. I would try the Aloe Vera Juice first, meantime if you have undigested foods in your bowel movement then ask your Doctor if he can give you a prescription for Viokase. Most Doctors will. I think you will feel a lot better once you start taking the Aloe Vera Juice. It took me about 15 Doctors before I hit the jackpot for all of my stomach issues and finally I found the perfect Doctor. I was born with lactose and fructose Intolerances and at that time both conditions weren’t recognized, so I developed all kinds of heath problems. Please rub a littte on your arm to see if you have a reaction before drinking the juice, most people can drink the juice. Let me know how you are doing.
Debbie

@grachelg

I have been having acid reflux for over a year and have recently been diagnosed with fructose malabsorption. Trying to stick to a food plan. Always feeling the reflux and heartburn. On omeprazole 20 mg. There are no fruits I can eat between the 2 conditions and this is upsetting. I do not eat or drink wine, coffee, carbonated drinks, garlic, onions, pepper, chocolate , vinegar, all citrus, all fruits, mint, tea, tomatoes… and yet I still feel sick almost after every meal. I also get migraines on occasion. Any advice on what I can still do to feel good!

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After i had all my large intestines taking out was on the same med. Then was on randine.and nexuim. Slowed it down. Do not drink anti acided med if had yours removed of take tums or roilades only make it worse

Definetely!

Yes I find fructose & lactose really aggavate my IBS
Symptoms..is it a normal part of aging to develop intolerances such as gluten lactose ftuctose plus difficulty digesting fat because of a lack of digestive enzymes…Are all Seniors affected?

@oceanone

Yes I find fructose & lactose really aggavate my IBS
Symptoms..is it a normal part of aging to develop intolerances such as gluten lactose ftuctose plus difficulty digesting fat because of a lack of digestive enzymes…Are all Seniors affected?

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Maybe aging is part of it – our bodies slow down. The intolerances are caused by damage to the lining of the intestines; that is my understanding. Regarding digestive enzymes decreasing, that may be a part of aging. Have you asked your doctor for a prescription to Creon to help you digest the fats better? I take it and need it even though pancreas tests normal. Worth a try.

Hi:
Everyone looses stomach acid as they age. Most likely enzymes too, but most Doctors do not specialize in that type of field, all they seem to care about is giving more prescriptions and telling their patients that they have IBS or FND (Functional Neurological Disorder)
Unfortunately we need to be our own advocate, read as much as possible and do our own research. That is the way it is in this new generation. I like the old ways when the Doctors actually cared and went out of their way to find a solution, not anymore, we are a number and a money machine for the Doctors.

@redhead63

Hi:
Everyone looses stomach acid as they age. Most likely enzymes too, but most Doctors do not specialize in that type of field, all they seem to care about is giving more prescriptions and telling their patients that they have IBS or FND (Functional Neurological Disorder)
Unfortunately we need to be our own advocate, read as much as possible and do our own research. That is the way it is in this new generation. I like the old ways when the Doctors actually cared and went out of their way to find a solution, not anymore, we are a number and a money machine for the Doctors.

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Regarding doctors telling patients that they have IBS: I don’t disagree that this has probably become a catch all diagnosis when nothing else shows up during testing. But personally, I was relieved to get this diagnosis rather than continually not know month after month what was wrong with me. Has this completely solved my problems? No, but at least the Low Fodmap diet ( restrictive and unpleasant though it is) has helped somewhat.

@redhead63

Hi:
Everyone looses stomach acid as they age. Most likely enzymes too, but most Doctors do not specialize in that type of field, all they seem to care about is giving more prescriptions and telling their patients that they have IBS or FND (Functional Neurological Disorder)
Unfortunately we need to be our own advocate, read as much as possible and do our own research. That is the way it is in this new generation. I like the old ways when the Doctors actually cared and went out of their way to find a solution, not anymore, we are a number and a money machine for the Doctors.

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The g.i. tract is a very complicated system and I think a big part of the problem is there is just a lot the doctors don't know yet. For example right now one of the big areas of research is the gut microbiome. It is not like a broken bone or something definitive. On the other hand, I also had the experience of a doctor who just wanted to do upper endoscopies and colonoscopies over and over, etc., and didn't say IBS or anything or didn't do any breath tests or anything. I had to go up to Mayo to get the fm diagnosis.

@lelia

The g.i. tract is a very complicated system and I think a big part of the problem is there is just a lot the doctors don't know yet. For example right now one of the big areas of research is the gut microbiome. It is not like a broken bone or something definitive. On the other hand, I also had the experience of a doctor who just wanted to do upper endoscopies and colonoscopies over and over, etc., and didn't say IBS or anything or didn't do any breath tests or anything. I had to go up to Mayo to get the fm diagnosis.

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@jackiem95, @redhead63. Another thing. Since g.i. problems are so complex and not well understood, some doctors think the patient's problem is mainly mental. When you go up to Mayo for g.i. issues, they have you evaluated by a psychiatrist to check for mental issues. I passed the test, and my problems are physical, not mental. After I came back from Mayo and saw a physician's assistant, she said I just wanted attention and didn't really have much of a problem. I was quite annoyed. A big part of medical personnel thinking the problems are mental is that they haven't had the g.i. problems we do and don't know how horrible they can be. They don't realize how g.i. problems can hijack your life!

Yes. Was just going to ask the same. What can we do to control this crazy thing. I want to know how long you eat let’s say a half a banana which is not on the list but made me sick 6 hours later for 2 days make you sick? What symptoms do you have? What do you do for it? How can we not eat fruit for the rest of our lives? This is all new to me. I ate fruit all my life. Now the drs day I have fructose malabsorption and acid reflux. I feel sick almost every day. Can use advice on all fronts

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