fructose intolerance/malabsorption

I see a nutritionist face to face every two to three weeks and can access her by email if I have a question. I don’t work with the Mayo Clinic. Another major medical center in another city. Even though my insurance does not cover the sessions, the $92.00 I pay for these sessions is the best money I have ever spent, and I am not exaggerating. I went from being an emaciated 105 pound person who experienced diarrea several times per day to a much healthier, functioning adult. Have not experienced diarrhea in nearly two months and gained ten of the 20 pounds I lost. I am a fairly intelligent person, but the whole reintroduction aspect of the diet and what to eat and not eat and the amounts were too hard for me to do on my own. These diets have to be individualized, as we are all different. My efforts to implement this low FODMAP diet on my own were a disaster. I had no clue until I met with a professional. Can’t emphasize this enough. Neither my general nor my GI doctor were of any help. Both encouraged me to eat “normal” and eat high calorie foods to gain weight. Therefore, I kept relapsing while eating wheat toast, rice, jello and baked potatoes. All the typical bland foods you are supposed to eat for colitis and diarrhea. Once I knew I needed nutritional help, I kept asking, insisting and making phone calls until I found someone. Every GI practice should have a nutritionist on staff. Sadly, not the case.

I see a nutritionist face to face every two to three weeks and can access her by email if I have a question. I don’t work with the Mayo Clinic. Another major medical center in another city. Even though my insurance does not cover the sessions, the $92.00 I pay for these sessions is the best money I have ever spent, and I am not exaggerating. I went from being an emaciated 105 pound person who experienced diarrea several times per day to a much healthier, functioning adult. Have not experienced diarrhea in nearly two months and gained ten of the 20 pounds I lost. I am a fairly intelligent person, but the whole reintroduction aspect of the diet and what to eat and not eat and the amounts were too hard for me to do on my own. These diets have to be individualized, as we are all different. My efforts to implement this low FODMAP diet on my own were a disaster. I had no clue until I met with a professional. Can’t emphasize this enough. Neither my general nor my GI doctor were of any help. Both encouraged me to eat “normal” and eat high calorie foods to gain weight. Therefore, I kept relapsing while eating wheat toast, rice, jello and baked potatoes. All the typical bland foods you are supposed to eat for colitis and diarrhea. Once I knew I needed nutritional help, I kept asking, insisting and making phone calls until I found someone. Every GI practice should have a nutritionist on staff. Sadly, not the case.

I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?

Hi:
I too have Malabsorption and I did go see a professional nutritionist and it cost me $200 for one session. After that I educated myself and I am doing great. I will not pay $200 bucks when I can do my own research and educate myself. I had a worse case of Malbsorption with diarrhea every single day for over 50 years and no Doctor could figure out what was wrong with me besides them telling me that I have IBS what bullshit that was. I did find a wonderful GI Doctor that had me do the Malabsorption Test and she recommended me to see a Nutritionist which I did. My diet is limited, I do missed the garlic, onions and potatoes and many other foods, but you must do what you need to do.

I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?

I agree with you about all GI practices needing to have nutritionists. Mine is a very large organization and doesn’t Have anyone. My impression is that the docs are now focused on procedures like colonoscopies and endoscopies where the $$ is best and they are not too interested in counseling their patients about ongoing problems. I’ve been going to the same GI for 20 years and have seen this change firsthand.

Hi:
I too have Malabsorption and I did go see a professional nutritionist and it cost me $200 for one session. After that I educated myself and I am doing great. I will not pay $200 bucks when I can do my own research and educate myself. I had a worse case of Malbsorption with diarrhea every single day for over 50 years and no Doctor could figure out what was wrong with me besides them telling me that I have IBS what bullshit that was. I did find a wonderful GI Doctor that had me do the Malabsorption Test and she recommended me to see a Nutritionist which I did. My diet is limited, I do missed the garlic, onions and potatoes and many other foods, but you must do what you need to do.

Are you sensitive to things other than fructose? I ask because potatoes, even though high in carbs, do not contain much fructose.

I think IBS is the catch-all term for not knowing just what the problem is. That's my impression.

I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?