Fructose Malabsorption

Posted by CL @lelia, Dec 5, 2018

I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?

Hi:
I too have Malabsorption and I did go see a professional nutritionist and it cost me $200 for one session. After that I educated myself and I am doing great. I will not pay $200 bucks when I can do my own research and educate myself. I had a worse case of Malbsorption with diarrhea every single day for over 50 years and no Doctor could figure out what was wrong with me besides them telling me that I have IBS what bullshit that was. I did find a wonderful GI Doctor that had me do the Malabsorption Test and she recommended me to see a Nutritionist which I did. My diet is limited, I do missed the garlic, onions and potatoes and many other foods, but you must do what you need to do.

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@redhead63

Hi:
I too have Malabsorption and I did go see a professional nutritionist and it cost me $200 for one session. After that I educated myself and I am doing great. I will not pay $200 bucks when I can do my own research and educate myself. I had a worse case of Malbsorption with diarrhea every single day for over 50 years and no Doctor could figure out what was wrong with me besides them telling me that I have IBS what bullshit that was. I did find a wonderful GI Doctor that had me do the Malabsorption Test and she recommended me to see a Nutritionist which I did. My diet is limited, I do missed the garlic, onions and potatoes and many other foods, but you must do what you need to do.

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Are you sensitive to things other than fructose? I ask because potatoes, even though high in carbs, do not contain much fructose.

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I was advised by my dietician to eat potato in very small quantities because they are harder or take longer to digest than other carbs and feed the bad bacteria when you have SIBO. Prior to my SIBO diagnosis, I ate potatoes all the time without problem. All carbs are eventually converted to sugar by the body. I don’t know if I am fructose intolerant or not, but a SIBO diet limits sugars too. I am not supposed to have sweets or even honey in my tea. Honey was another wonderful and highly nutritious food I used to consume daily prior to SIBO. Same with gluten. Don’t really know if I am gluten intolerant or not but we eliminated gluten and lactose from my diet because I was having so much diarrhea and losing so much weight. So we started by eliminating all the possible offenders and start to slowly build up from there. I am very new to this. My symptoms started in July following a course with clyndomycin to treat a UTI. We have found substitutes for wheat, like Uddi’s white bread and bagels, substitutes for milk, like pea protein milk, etc. I hope to eventually return to what once was my normal diet, but also know that maintaining my intestinal health is more important. I have not cheated or gone off the diet since we started two and a half months ago. I will now have a couple of bites from my husband’s baked potato and rice. That’s about all I am supposed or allowed to have.

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@jackiem95

I agree with you about all GI practices needing to have nutritionists. Mine is a very large organization and doesn’t Have anyone. My impression is that the docs are now focused on procedures like colonoscopies and endoscopies where the $$ is best and they are not too interested in counseling their patients about ongoing problems. I’ve been going to the same GI for 20 years and have seen this change firsthand.

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My first gastroenterologist was with a large organization and I had the same experience – all they wanted to do was repeat colonoscopies and upper endoscopies, also for the $ I believe. They didn't even do any other testing. I finally went up to Mayo where I
was diagnosed with fm. When I got home, I switched to a gastroenterologist at the local university medical center.

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@redhead63

Hi:
I too have Malabsorption and I did go see a professional nutritionist and it cost me $200 for one session. After that I educated myself and I am doing great. I will not pay $200 bucks when I can do my own research and educate myself. I had a worse case of Malbsorption with diarrhea every single day for over 50 years and no Doctor could figure out what was wrong with me besides them telling me that I have IBS what bullshit that was. I did find a wonderful GI Doctor that had me do the Malabsorption Test and she recommended me to see a Nutritionist which I did. My diet is limited, I do missed the garlic, onions and potatoes and many other foods, but you must do what you need to do.

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I think IBS is the catch-all term for not knowing just what the problem is. That's my impression.

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@jackiem95

Are you sensitive to things other than fructose? I ask because potatoes, even though high in carbs, do not contain much fructose.

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I eat potatoes too, but not the skins because they have fructans (chains of fructose) in them.

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@lelia

I think IBS is the catch-all term for not knowing just what the problem is. That's my impression.

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I totally agree.

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luky06.Dear Lelia hi.İ am writing my experience to you.Because,you need help.At tha and i hope all goes well.Okey.Firts,don’t be
Depresif,and angry.Your disease very hard and undiagnosed.You do not any worry,you should make 20 minutes exercises,no
Stres,do not forget enough sleep,get B12,strengthening your immunity system.foods,kephir,yoğurt with vitamin,fiber
supplemends,olive oil,spinach,csbbage,carrots.So,you are going to be betten.

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@luky2girls

luky06.Dear Lelia hi.İ am writing my experience to you.Because,you need help.At tha and i hope all goes well.Okey.Firts,don’t be
Depresif,and angry.Your disease very hard and undiagnosed.You do not any worry,you should make 20 minutes exercises,no
Stres,do not forget enough sleep,get B12,strengthening your immunity system.foods,kephir,yoğurt with vitamin,fiber
supplemends,olive oil,spinach,csbbage,carrots.So,you are going to be betten.

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Thanks for your concern. I'm diagnosed and fine with where I'm at now, and not angry. Take care.

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@redhead63

Hi:
I too have Malabsorption and I did go see a professional nutritionist and it cost me $200 for one session. After that I educated myself and I am doing great. I will not pay $200 bucks when I can do my own research and educate myself. I had a worse case of Malbsorption with diarrhea every single day for over 50 years and no Doctor could figure out what was wrong with me besides them telling me that I have IBS what bullshit that was. I did find a wonderful GI Doctor that had me do the Malabsorption Test and she recommended me to see a Nutritionist which I did. My diet is limited, I do missed the garlic, onions and potatoes and many other foods, but you must do what you need to do.

Jump to this post

Can I ask, what is a Malabsorption Test? I've suffered from weight loss, GI problems for 3 years. Exhaustive work up at Mayo and this was never raised. Could be radiation enteropathy as I had heavy duty chemo and radiation 9 years ago. Have SIBO but kept coming back after 2 rounds of antibiotics. No answers or treatment offered by Mayo in the end.

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@sarcomasurvivor

Can I ask, what is a Malabsorption Test? I've suffered from weight loss, GI problems for 3 years. Exhaustive work up at Mayo and this was never raised. Could be radiation enteropathy as I had heavy duty chemo and radiation 9 years ago. Have SIBO but kept coming back after 2 rounds of antibiotics. No answers or treatment offered by Mayo in the end.

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Not sure what a a malabsorption test consists of, but I have SIBO and it kept recurring after a week off antibiotics because I kept eating too many carbs and sugars or foods that fed the bad bacteria in my panic to gain weight. I lost 20 lbs in two months and had either diarrhea or loose stools daily. Therefore, though I ate, the bad bacteria kept highjacking nutrients before my body could absorb them. After my third round of antibiotics I went on a low FODMAP diet under the guidance of a nutritionist, and it has made all the difference. Not only have I not relapsed in two months, but I have gained 10 lbs back. I think knowing what to eat, how, and the right proportions has made all the difference for me. Please read up on SIBO diets, such as Low FODMAPS and SCD. I knew nothing about this prior to August of 2018. Wishing you good health.

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@sarcomasurvivor

Can I ask, what is a Malabsorption Test? I've suffered from weight loss, GI problems for 3 years. Exhaustive work up at Mayo and this was never raised. Could be radiation enteropathy as I had heavy duty chemo and radiation 9 years ago. Have SIBO but kept coming back after 2 rounds of antibiotics. No answers or treatment offered by Mayo in the end.

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Hi. The test is actually a "hydrogen breath test" (google it for more info). As far as I know there are 3 individual types of hydrogen breath tests: fructose malabsorption/sugars, lactose intolerance, small intestine bacterial overgrowth (SIBO).

Each test (mine done on separate days) takes a few hours. They take a breath measurement, have you drink some stuff, and then take measurements at intervals (ie, every 20 minutes). Basically if your body cannot digest the substance, it will ferment in the colon and produce hydrogen and other gases. That is what they are measuring. Larger than normal amounts of exhaled hydrogen measured during a breath test indicate that you aren't fully digesting and absorbing the substance.

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