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I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?
Is anyone taking one of the medications available for IBS? The Low FODMAP diet is not working out for me and I am going to discuss options (including meds) with my doctor. Would like to know others’ experiences.
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Medicines used depend on the symptoms you have. As for the diet, I tried it on my own and it was a total disaster until I went under guidance of a nutritionist.
What medicines do you have in mind? I take some for g.i. issues, need to know what ones you are interested in.. Low FODMAP diet didn't work for me either; it was too inclusive of stuff I couldn't eat.
I'm glad you found a nutritionist that would work for you. I went to 4 different ones for fructose malabsorption, and they all told me I should be able to eat stuff I couldn't digest. One locally didn't charge me because she said she learned more from me than I did from her. Funny, but that's how much fructose malabsorption is such a new area and I believe overlooked. The symptoms can be terrible.
I was fortunate to find someone who works with digestive disorders at a major medical center. Nobody knows what your body can tolerate until you try it in very small amounts for at least three days. That’s how we do it. What works for one person may be a no no for someone else. I can have maple syrup but no honey. Go figure! Idea of Low FODMAP is that it is strict and restrictive at first but you gradually add foods to the diet. Not meant to stay restrictive forever. I am adding one to two new foods now per week.
As far as I know, Lotronex (alosetron) and Viberzi (eluxadoline) are the main ones for IBS-D. Yes, they can have side effects but at this point, I am about ready to risk them. Either that or back to daily doses of Imodium!
I understand the Low Fodmap diet regimen. Unfortunately, I have still not been able to start adding foods because I am not symptom free.
I am working with a nutritionist.
Hang in there. The medicine will hopefully tie you over the hump. I know it takes a while to figure out what you can and cannot eat. I noticed that I started to improve once I compiled my list of safe foods. I stayed on those for several weeks and once I started doing better, we added new things. It seemed to me that for a while there, I reacted to everything but eggs, bananas and chicken broth. I dropped 20 lbs in three months. I have now gained 10 of those back and can eat many more foods. But it was pretty bad there for about three months. I felt I was slowly disappearing.
I'm not familiar with those drugs. Sorry! Good luck…
The four nutritionists I met with also worked at major medical centers. If you can have maple syrup, it's high doubtful you have fm.
I just got a chance to look up these 2 drugs in Daily Med, which lists all the ingredients. Both have sugars in them, whether lactose, corn starch, mannitol, etc. , so it wouldn't be a good idea to take these manufactured versions if you have fructose malabsorption. You could get them compounded at a compounding pharmacy. Just specify sugar free, lactose free, etc. For a filler I have found microcrystalline cellulose to be pretty good, and definitely better than cellulose. Naturally insurance plans won't cover compounded drugs; at least, I don't know of any that do. Again, good luck!
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