Fibromyalgia

Posted by dknnkn @dknnkn, Apr 29, 2012

Hello! I was just diagnosed this Friday with Fibromyalgia. Is there anyone out there with the same condition. I am a 37 yr old female that was pretty active until I took a drastic decline with severe increases in pain in August. Initial blood tests were pointing towards lupus, but after a thorough exam—fibromyalgia it is. My rheumatologist started me on a 2 week trial of savella. Thanks so much for any insight you may have for me 🙂

What is your diet like?

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Hi, RondaC here. I had Fibro for years all over my body to the point I could no longer be touched by my husband or anyone. I stopped shopping so no one would bump me. Tried medicines that did not work and made me feel worse. Did some research and found out about our diets and especially what the food industry is putting in our foods. Cut out red meat intirely for two months, felt better, kept it up for a year, felt much much better, went on the second year and no more Fibro. Doctors here in St. Louis said that really works for somepeople. It’s the extra hormones they are putting in the beef. You can have chicken, fish and light on the pork, but no red meat. Now I can occassionaly eat a hamburger but there are slight pains in my body if I do. After it’s gone through my system, I’m completely OK again. Also, spicy food and set it off and that includes katchup. I seem to do OK here. For me it was just the extra hormones in the beef. Hope this helps you and you are willing to take the two month trial. You’ll feel a remarable difference in that time period if you are lucky one like me. Get Well Soon!

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Get regular massages from a therpist experienced in fibromyalgia. Also take 2 to 3 soaking baths (15minutes) with 1 to 11/2 cups of epsom salt.

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@rcisme

Good afternoon all! I’m so glad to have found this site. I am so confused and I don’t know where to stop or start. I have seen so many doctors and tried so many pills and I’m so frustrated. I’m afraid to quit taking medication becuase I don’t know if it hurts or helps. If anybody can give me your two cents i will appreciate it. Currently I take tramadol, about 200 mg per day, for pain, cymbalta for pain, levothyroxine which is for thyroid. I want to stop some of this. I can’t hardly stay awake anymore during the day and it’s making work very very hard.

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It is a very painful condition. I have had it for 15 yrs saw doc in Boston who specializes. I found helpful. Tramadol. And muscle relaxant take pain med if necessary. Most important is exercising. Whatever u can do.

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@kaydomac

What is your diet like?

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I am on a low carb high protein diet and have cut out all sugar, breads, pastas, potatoes , and starchy veggies etc. This is the only diet that helps with the fatigue, aches and pains, and brain fogginess.

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Hi, this is my first time on here. I am 33 and have had fibro since I was 21. I also have rheumatoid arthritis and have back surgery, and some other health problems. I have been disabled because of the pain for 12 yrs now. I was extremely active at 21 and all of a sudden I started getting horrible headaches, I couldn’t pick my head up off the pillow, my whole body started to hurt and just got worse and I couldn’t work anymore. It took a few months and many many doctors before i was diagnosed. I have been on just about every medication made i think! I did try savella but couldn’t take it because it made my heart race, I have tachycardia and it made it worse. The only thing that has helped me is Lyrica I have been on it for years now with no adverse affects. I am afraid it isn’t working as well anymore. It has helped to lessen some of my flare ups. Nothing has taken the pain away. I think we have to find ways to help lessen it and unfortunately live with it. You’ll figure out easier ways to do things around the house. Instead of carrying my laundry basket I drag it down the stairs lol. You never really get use to the pain because it is constantly changing and for me getting worse. I am now dealing with neck pain and pain in my face. Trying to control the RA.Constant back pain. My fibro is just kind of always there my legs always hurt the worst. Does anyone else get affected by the cold weather? I don’t know if it has anything to with the fibro or something else. Once it gets below 55 if I am outside for more than15-20 min my legs start hurting and will hurt for a while. Sometimes a day or two if it is really cold and I am out there longer. They think I have raynauds can it affect your legs? Sorry got sidetracked. Some things work for some people, you just have try, it may take awhile so patience is crucial for dealing with fibro. Hope everyone is having a “good” day!

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I have it also and i think pain calms down when i relax my mind and walk ,i want to try yoga i am sure it will help.

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@rania

I have it also and i think pain calms down when i relax my mind and walk ,i want to try yoga i am sure it will help.

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“A study published in the Journal of Pakistan Medical Association determined that vitamin D deficiency is frequently seen in patients diagnosed with fibromyalgia and nonspecific musculoskeletal pain.”

Source: Pakistan Medical Association via http://vitamind3blog.com/2011/01/vitamin-d-deficiency-linked-to-myriad-diseases/

Liked by PamEganNP, calebba

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Hi. I have Fibro and RA. The diagnosis has taken several months, and I actually think it started a few years ago- I just didn’t realize because I had a physically strenuous job and thought all my discomfort was linked to that- and age. I am now on Cymbalta for the Fibro, which has helped with a lot of the numbness, tingling and chills and somewhat with fatigue & aching. I also recently started Sulfasalazine (now @ 3000mg/day), for the joint pain, which has helped a good deal. I still have flares and am trying to learn what triggers them- so far seems like stress and activity. Trying to find the balance, and planning to start swimming as soon as I have funds to join the Y.

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