Fibromyalgia

Posted by dknnkn @dknnkn, Apr 29, 2012

Hello! I was just diagnosed this Friday with Fibromyalgia. Is there anyone out there with the same condition. I am a 37 yr old female that was pretty active until I took a drastic decline with severe increases in pain in August. Initial blood tests were pointing towards lupus, but after a thorough exam—fibromyalgia it is. My rheumatologist started me on a 2 week trial of savella. Thanks so much for any insight you may have for me 🙂

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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so you have found that the b12 and fish oil have helped a lot? I have trouble sleeping a lot lately, I have taken valerian root with my melatonin

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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Yes, all of it. Valerian root works good too. I haven’t taken it w/melatonin though, only by itself. I never eat fish, I hate the taste/smell, so maybe I was deficient.
4 yrs ago I was told I had polymyalgia rheumatica. I took prednisone for several yrs, but looking back now, it probably was the fibro. Terrible hip pain.

Liked by edria ragosin

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Ive been getting pain under my arm pits and left shoulder and sometimes a burning sensation in my left ear .can anyone help bing to doc and did all types of test but nothing found.

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Savlla is good but you also need to exercise
I swear by mayo clinic eval and suggestions
Biofeedback helps:along with occupational therapy techniques. Write me anytime or I am happy to call you.

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Good afternoon all! I’m so glad to have found this site. I am so confused and I don’t know where to stop or start. I have seen so many doctors and tried so many pills and I’m so frustrated. I’m afraid to quit taking medication becuase I don’t know if it hurts or helps. If anybody can give me your two cents i will appreciate it. Currently I take tramadol, about 200 mg per day, for pain, cymbalta for pain, levothyroxine which is for thyroid. I want to stop some of this. I can’t hardly stay awake anymore during the day and it’s making work very very hard.

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Hi I have lupus and fibromyalgia. I was on savella but stopped it to try cymbalta which is working great!

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Hi Yeah this is a big problem with me how are u dealing with

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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L Theanine (100mg) taken with Melatonin is also a good combo for a sleep aid.

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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Hey I suffering big time with the fibromyalgia its so painful how do you all handle it. I stop working and it have made me fail in school. I am not able to plan events

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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I am so sorry, Eliz… Today is one of those day’s I call: “A day when my whole right side is shot down” …pain from R jaw line down through toes. I end up worrying about the jaw line pain, afraid there will be something major wrong with a tooth and will require a dental proceedure. 🙁 My R neck hurts so bad…and all the trigger points all the way down…The one thing I know I have done that is different…eating WAY too much beginning Sunday (the 13th), far more meat than usual, and far more sweets than usual…and an elevated stress/level starting when I wake up and that usually wears itself away in several hrs… I know I have to keep AWAY from the computer in the mornings…I honestly believe there could be a connection between the severe fibro on the R side and hours of computer use…and I also am facing it is having a ‘mental affect’ on me, too. So beginning tomorrow AM, no computer until after lunch, and then limiting the amt of time on it. It is embarrassing to admit how addicted I am to the internet…. and I am the only one who can ‘break’ this addiction and I intend to. (I am not saying it caused the fibro…had that long before I owned a computer) but I believe that lately it HAS made it worse. We are each different in what trips our trigger points, eh? Eliz, I don’t take Rx meds, but maybe you might consider it…its whatever works that makes it “Right” for any one of us.

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Hi dk,
How are you doing? I hope things are going well for you and that you are finding your way to the things that will help you the most. I hope you didn’t get more confused and discouraged by all the posts!! 🙂 Sometimes our wanting to ‘help’ can get a little overwhelming!!… just know you WILL be ok and find your own way to what works best for you!! I hope you have a really good weekend. Have fun and relax!

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Hello I have Fibro as well as diabetics, kidney stones, frequent UTI’s, IBS, depression and several other problems. I stay in pain and when I’m in pain my diabetics numbers go up! I have just started applying for my disability. I am 51 yrs old. Any suggestions?

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Go to the mayo clinic!!! And try Savella and an exercise program. Glad to talk to you if you want.
Grammy

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@anon98087003

Hello I have Fibro as well as diabetics, kidney stones, frequent UTI’s, IBS, depression and several other problems. I stay in pain and when I’m in pain my diabetics numbers go up! I have just started applying for my disability. I am 51 yrs old. Any suggestions?

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Cut out all processed food, including bread, cake, biscuits, pastries, sweets or savory junk food. Increase your protein inc. beans, lentils, chickpeas, eggs, meat and some dairy (ideally fermented ie. yoghurt, not milk) and include in every meal and snacks. Protein is essential for the production of neurotransmitters needed to support depression and IBS, immune system for UTIs and to regulate blood sugar levels in diabetes. Drink minimum 2 liters water daily. Have Epsom salt baths (300gms salt) daily. Drink green vegetable drinks. All your conditions can be significantly reduced or possibly gone.

Liked by Nursenell92

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