Fibromyalgia

Posted by dknnkn @dknnkn, Apr 29, 2012

Hello! I was just diagnosed this Friday with Fibromyalgia. Is there anyone out there with the same condition. I am a 37 yr old female that was pretty active until I took a drastic decline with severe increases in pain in August. Initial blood tests were pointing towards lupus, but after a thorough exam—fibromyalgia it is. My rheumatologist started me on a 2 week trial of savella. Thanks so much for any insight you may have for me 🙂

@bettyann

Hi there, dknnkn :)
I hope you are feeling good today. For me, Today is one of those rare days when I have a full blown fibro attack…(every muscle in my body hurts including facial muscles and in fingers and toes!) the good news is: I know it won’t last. The only thing that helps me is taking MSM caps together with Vit C…and several different homeopathics. Kerri Lynn gave you excellent suggestions as to how to take care of yourself.
Be careful what you believe and what you buy into… and do NOT think of it as something you are forever stuck with…a positive mind set is crucial. I can go for WEEKS without any trace of fibro. When mine started it they called it “arthralgia”…because they didn’t have a label for it…so thought it was like arthritis of the muscles (and it sorta is!) … I used to have continuous dull pain on my right side, from R jaw line to R ankle…Malic Acid helped me a LOT in the beginning. I believe what brought on my attack today was two things: been through shock and stress because of death of a dear friend…and I ate two 7-Eleven donuts yesterday evening. (I really am serious that certain sugars effect me!)
Sometimes you just have to experiement and see what works best for you. Wishing you all the good luck in the world!

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Now remember I am new at this 🙂 What is MSM… I also got my xray and blood work back today and they said I had early Osteoporosis… Can’t win 🙁

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Is anyone taking savella?

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@dknnkn

Is anyone taking savella?

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Hi DK
I’m on zoloft but am interested in how the savella works for you? I had a nearly immediate positive response to the zoloft, but I am in no way typical.

I think Savella is one of those new serotonin altering meds but I could be way wrong. Maybe Momentum could post one of his researches?

How are you sleeping? Is it restorative sleep? I am much better regarding pain level and mental acuity when I have good sleep. I take ambien and hydroxizine for sleep, oh and pramipexole for night-time restless legs.

I have found that after getting in a whopping flare I need to prioritize getting my sleep on track and then the other symptoms are easier to manage.
BTW I was diagnosed with Lupus for about 2 weeks and then settled on FM as well.

Keep us posted?
LizKat

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I was at mayo most of December. And I also have FM. I’ve been on savella and it worked well for me in terms of sleep and pain. However I’m having severe stomach/intestinal issues so they took me off to see if it mite be the cause. Does anyone else have gastroporisis w their FM? This truly has been a real struggle for me! If u want to talk u can private message me.

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@dknnkn

Is anyone taking savella?

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I can’t take it. It makes me sick

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I take cymbalta, tramadol and placquenil. I also have polyarthritis. I do take magnesium supplements, D3 which most people with Fibro are low in. also B6 at bedtime to sleep. I do take other vitaimins just to stay as healthy as possible.

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I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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so you have found that the b12 and fish oil have helped a lot? I have trouble sleeping a lot lately, I have taken valerian root with my melatonin

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it’s not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx’s and went natural. The Rx’s made me want to sleep all the time and didn’t work as good.

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Yes, all of it. Valerian root works good too. I haven’t taken it w/melatonin though, only by itself. I never eat fish, I hate the taste/smell, so maybe I was deficient.
4 yrs ago I was told I had polymyalgia rheumatica. I took prednisone for several yrs, but looking back now, it probably was the fibro. Terrible hip pain.

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Ive been getting pain under my arm pits and left shoulder and sometimes a burning sensation in my left ear .can anyone help bing to doc and did all types of test but nothing found.

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Savlla is good but you also need to exercise
I swear by mayo clinic eval and suggestions
Biofeedback helps:along with occupational therapy techniques. Write me anytime or I am happy to call you.

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Good afternoon all! I’m so glad to have found this site. I am so confused and I don’t know where to stop or start. I have seen so many doctors and tried so many pills and I’m so frustrated. I’m afraid to quit taking medication becuase I don’t know if it hurts or helps. If anybody can give me your two cents i will appreciate it. Currently I take tramadol, about 200 mg per day, for pain, cymbalta for pain, levothyroxine which is for thyroid. I want to stop some of this. I can’t hardly stay awake anymore during the day and it’s making work very very hard.

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