Fibromyalgia: Anyone out there with the same diagnosis?

Posted by dknnkn @dknnkn, Apr 29, 2012

Hello! I was just diagnosed this Friday with Fibromyalgia. Is there anyone out there with the same condition. I am a 37 yr old female that was pretty active until I took a drastic decline with severe increases in pain in August. Initial blood tests were pointing towards lupus, but after a thorough exam---fibromyalgia it is. My rheumatologist started me on a 2 week trial of savella. Thanks so much for any insight you may have for me 🙂

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it's not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx's and went natural. The Rx's made me want to sleep all the time and didn't work as good.

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it's not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx's and went natural. The Rx's made me want to sleep all the time and didn't work as good.

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so you have found that the b12 and fish oil have helped a lot? I have trouble sleeping a lot lately, I have taken valerian root with my melatonin

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it's not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx's and went natural. The Rx's made me want to sleep all the time and didn't work as good.

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Yes, all of it. Valerian root works good too. I haven't taken it w/melatonin though, only by itself. I never eat fish, I hate the taste/smell, so maybe I was deficient.
4 yrs ago I was told I had polymyalgia rheumatica. I took prednisone for several yrs, but looking back now, it probably was the fibro. Terrible hip pain.

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Ive been getting pain under my arm pits and left shoulder and sometimes a burning sensation in my left ear .can anyone help bing to doc and did all types of test but nothing found.

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Savlla is good but you also need to exercise
I swear by mayo clinic eval and suggestions
Biofeedback helps:along with occupational therapy techniques. Write me anytime or I am happy to call you.

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Good afternoon all! I'm so glad to have found this site. I am so confused and I don't know where to stop or start. I have seen so many doctors and tried so many pills and I'm so frustrated. I'm afraid to quit taking medication becuase I don't know if it hurts or helps. If anybody can give me your two cents i will appreciate it. Currently I take tramadol, about 200 mg per day, for pain, cymbalta for pain, levothyroxine which is for thyroid. I want to stop some of this. I can't hardly stay awake anymore during the day and it's making work very very hard.

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Hi I have lupus and fibromyalgia. I was on savella but stopped it to try cymbalta which is working great!

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Hi Yeah this is a big problem with me how are u dealing with

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@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it's not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx's and went natural. The Rx's made me want to sleep all the time and didn't work as good.

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L Theanine (100mg) taken with Melatonin is also a good combo for a sleep aid.

REPLY
@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it's not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx's and went natural. The Rx's made me want to sleep all the time and didn't work as good.

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Hey I suffering big time with the fibromyalgia its so painful how do you all handle it. I stop working and it have made me fail in school. I am not able to plan events

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