Family is orginally from Fort Madison, IA; recently moved to Florida a year ago. 21yr old son had his 4th open heart 2 yrs ago and just before we left they told him he would have to have open heart again to fix a booboo that was made. Their explanation was that after replacing the pulmonary valve and closing the heart it rocked to the side causing kink in the artery from the conduit making high pressure in and low out. In October UF Cardiologist did a Cath in the heart to review what was going on and how to fix because he claimed that Iowa City Hospital sent him poor information. Since the Cath he has been feeling horrible, extreme fatigue, weight loss, red patches all over his legs, coughing, nose bleeds, headaches, nausea. He has seen doctor after doctor and no real results given; cardiology, infectious diseases, nephrology…. The diagnosis he is being treated for is endocarditis and vasculitis. Infectious Diseases has not clue what the issue is. He has been in the Baptist Hospital twice now and no answers just expensive bills. Test after test, CT, MRI, TEE, all kinds of blood work. Looking for a team that can provide answers to get him better to get his valve corrected.