Is anyone on Eliquis and getting small red dots on their body?

Posted by cad43 @cad43, Sep 12 10:47am

Is anyone on Eliquis and getting small red dots on their body?

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I am on Eliquis. Have been for 5 years. Yes, I have red marks all over my arms especially. Some are as big as a quarter. Any kind of small bump creates them on my body. They do go away after about a week or two. I was diagnosed with MCL Mantle Cell Leukemia three months ago. My platelet count is very low. Platelets are what causes normal clotting in the body so you don't bleed to death. I am waiting to hear from my doctors on weather I need to get off Eliquis or not. Make sure you check your platelet count to see if its low. Also would recommend anyone on Eliquis carry a pack of "Bleedstop" in case of an accident with bleeding. Its over-the-counter in most drugstores. Cost $2 to $3. I had two accidents with heavy cuts and Bleedstop did the trick till I got to the emergency ward.

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yes, but very small. some come and go. one has been around since the first week with eliquis.

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@cad43, as you can see from @tim41 and @william66, others taking Eliquis have noticed red spots too, but what they’re describing isn’t necessarily the same. Some are very small, some larger, some disappear, and some hang around.

I don’t take Eliquis, but I’ve had different kinds of red spots myself—some that disappear and others that hang around—which is partly why I’m wondering what yours look like.

Could you describe yours a little more—are they tiny pinpoints or larger, flat or raised, and do they come and go or hang around? If you’re comfortable attaching a photo, that might also help members understand what you’re seeing.

Do you notice any other symptoms or changes that seem to happen at the same time the spots appear? And have you had a chance to show them to the clinician who prescribes your Eliquis?

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Profile picture for Janell, Volunteer Mentor @jlharsh

@cad43, as you can see from @tim41 and @william66, others taking Eliquis have noticed red spots too, but what they’re describing isn’t necessarily the same. Some are very small, some larger, some disappear, and some hang around.

I don’t take Eliquis, but I’ve had different kinds of red spots myself—some that disappear and others that hang around—which is partly why I’m wondering what yours look like.

Could you describe yours a little more—are they tiny pinpoints or larger, flat or raised, and do they come and go or hang around? If you’re comfortable attaching a photo, that might also help members understand what you’re seeing.

Do you notice any other symptoms or changes that seem to happen at the same time the spots appear? And have you had a chance to show them to the clinician who prescribes your Eliquis?

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Mine are flat underneath the skin, no blood. If I bump something hard the
next day I will have a large red mark under my skin. Some are small about a
quarter inch and some are large as a quarter. It usually takes a few weeks
for them to fade away, Hope this helps!

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No, mine are different, from very small pinpoint to about maybe 1/16 in. They are red on top of skin and flat, and will turn daker to brown after a while. But yes, if I hit something, I will usually just get a bruise, not a red spot. Thanks for you input. I wish I could get off of Eliquis, but have a clotting gene and had an extensive blood clot.

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Profile picture for Janell, Volunteer Mentor @jlharsh

@cad43, as you can see from @tim41 and @william66, others taking Eliquis have noticed red spots too, but what they’re describing isn’t necessarily the same. Some are very small, some larger, some disappear, and some hang around.

I don’t take Eliquis, but I’ve had different kinds of red spots myself—some that disappear and others that hang around—which is partly why I’m wondering what yours look like.

Could you describe yours a little more—are they tiny pinpoints or larger, flat or raised, and do they come and go or hang around? If you’re comfortable attaching a photo, that might also help members understand what you’re seeing.

Do you notice any other symptoms or changes that seem to happen at the same time the spots appear? And have you had a chance to show them to the clinician who prescribes your Eliquis?

Jump to this post

@jlharsh They are very small on top of skin. Flat, pinpoint with a few a little bigger, maybe like a strawberry seed. I'm trying to send a picture to my hematologist so I can get advice. Some websites say it means bleeding under the skin. I really hate Eliquis, but have to take it because of a clotting gene and blood clot. Thanks.

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I've been on Eliquis for 3 weeks (due to A-fib) and began noticing the spots you're describing a couple of days ago. This surprised me as I've been on Eliquis before, after being stented (due to CAD), and don't remember having these spots. I go for my monthly blood tests tomorrow and will ask the Hematologist/Oncologist about this. I'm not concerned; just looking at the spots as another aspect of having multiple conditions that are keeping my local medical community busy and making money :-).

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After I got a cardiac stent, I was put on Plavix for about 6 months I think. But this is the first time for Eliquis. I've been on it since January because of extensive blood clot in my leg and pelvis. I'm getting all kind of spots, the small red ones and some brown patches that are shiny and have a film over them that I can peel. It is crazy. I'm assuming you are referring to Coronary Artery Disease (CAD) as opposed to Cold Agglutinin Disease, which also stupidly used CAD as the abbreviation. I have both kind. How lucky am I! I sent a picture to my doctor to see what he says about the spots. And will update everyone. Thanks

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Profile picture for cad43 @cad43

After I got a cardiac stent, I was put on Plavix for about 6 months I think. But this is the first time for Eliquis. I've been on it since January because of extensive blood clot in my leg and pelvis. I'm getting all kind of spots, the small red ones and some brown patches that are shiny and have a film over them that I can peel. It is crazy. I'm assuming you are referring to Coronary Artery Disease (CAD) as opposed to Cold Agglutinin Disease, which also stupidly used CAD as the abbreviation. I have both kind. How lucky am I! I sent a picture to my doctor to see what he says about the spots. And will update everyone. Thanks

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@cad43
Blood thinners like Eliquis, Xarelto, others, cause very easy bruising from very small to quarter size and double that. My larger ones can take weeks to months to completely disappear. They are mostly from back of hands to my elbows. Very bothersome and unsightly side effect.
Cardiology insisted I take them since my Afib diagnosis five years ago. Afib patients are required to take blood thinners to prevent strokes from possible clots formed in the heart.
I also am somewhat anemic since having Car-T therapy over two years ago and the “bruising” from either blood thinners has become much worse. The other day I got a large hematoma on the back of my hand not even noticing that I bumped anything! I had to visit the ER which tightly bound the increasing hematoma to stop its growth and flatten it.
That has became a large bruise covering the complete back of my hand up to my wrist bone and lower parts of my fingers. It’s a worrisome increase. I tried to reach my diagnosing cardiology about it without success. Therefore my primary care doctor reduced the dose to Eliquis vs full dose because of my anemic situation. I have yet to relay that reduced dose to either my cardiology mgr or hematologist. I am now more concerned about having a serious bleeding episode.

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Profile picture for carolm25 @carolm25

@cad43
Blood thinners like Eliquis, Xarelto, others, cause very easy bruising from very small to quarter size and double that. My larger ones can take weeks to months to completely disappear. They are mostly from back of hands to my elbows. Very bothersome and unsightly side effect.
Cardiology insisted I take them since my Afib diagnosis five years ago. Afib patients are required to take blood thinners to prevent strokes from possible clots formed in the heart.
I also am somewhat anemic since having Car-T therapy over two years ago and the “bruising” from either blood thinners has become much worse. The other day I got a large hematoma on the back of my hand not even noticing that I bumped anything! I had to visit the ER which tightly bound the increasing hematoma to stop its growth and flatten it.
That has became a large bruise covering the complete back of my hand up to my wrist bone and lower parts of my fingers. It’s a worrisome increase. I tried to reach my diagnosing cardiology about it without success. Therefore my primary care doctor reduced the dose to Eliquis vs full dose because of my anemic situation. I have yet to relay that reduced dose to either my cardiology mgr or hematologist. I am now more concerned about having a serious bleeding episode.

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@carolm25 I'm with you. I am on Eliquis because of an extensive blood clot in my leg that needed surgery and have a genetic clotting gene. My hematologist is insisting I have to stay on it the rest of my life. I bumped my head hard about 4 months ago, and I went for a CT scan of my head, which didn't show anything, but it is still sore, and I can't put ice on it cause I have a rare disease Cold Agglutinin Anemia. I notified the hematologist office on Friday about the red spots on my body but it wasn't until yesterday evening when an NP called me back. She wants me to go get a CBC today to check my platelets. I'm very disappointed that the hematologist didn't contact me. He is usually very prompt. Maybe he is sick or out of the office. And like you, I am in fear of bleeding to death. I had even asked him a couple of month ago when we would decrease the dosage and he said no, I need the total amount. So I guess I will wait again to find out what my blood work shows. Just frustrating to wonder if the chances of another blood clot is higher than the chances of bleeding to death.

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