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@carolm25 I'm with you. I am on Eliquis because of an extensive blood clot in my leg that needed surgery and have a genetic clotting gene. My hematologist is insisting I have to stay on it the rest of my life. I bumped my head hard about 4 months ago, and I went for a CT scan of my head, which didn't show anything, but it is still sore, and I can't put ice on it cause I have a rare disease Cold Agglutinin Anemia. I notified the hematologist office on Friday about the red spots on my body but it wasn't until yesterday evening when an NP called me back. She wants me to go get a CBC today to check my platelets. I'm very disappointed that the hematologist didn't contact me. He is usually very prompt. Maybe he is sick or out of the office. And like you, I am in fear of bleeding to death. I had even asked him a couple of month ago when we would decrease the dosage and he said no, I need the total amount. So I guess I will wait again to find out what my blood work shows. Just frustrating to wonder if the chances of another blood clot is higher than the chances of bleeding to death.

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Replies to "@carolm25 I'm with you. I am on Eliquis because of an extensive blood clot in my..."

@cad43 your story makes me grateful I only have CLL. My new doc asked Y I was started on Calquence ? My answer low hemoglobin WBC 60s, then asking did I have CLL symptoms. My answer no symptoms.
New docs answer Hemoglobin number did not necessarily require Calquence and Zanubrutinib ….. both causing side effects severe burning pain in arms hands & calves feet, couldn’t wear shoes or sleep for about 48 hours taking about 10 days to pass & still have mild side effects.
The worst part of my body rejecting the pill therapy? My bloods in the 70-80s and my body is struggling to recover.
I realize first doctor anxious to start a new 3rd therapy does want to help but I’m more comfortable with new eyes and the more in depth diagnosing of my condition.