Ectopic heart episodes and GERD, acid indigestion issues

@danab

Thanks for your reply....and yes, I sleep with three pillows...my head gets propped, but sometimes it just seems to do whatever it does....I’ve been through a sleep study and they said I have a slight case of sleep apnea....sometimes I wake up sort of startled as though I’d been holding my breath...then I find myself getting a slight anxiety attack..all of this does not help with the Ectopics....but, I like many others and yourself, just keep on...BTW, I’ve saved many good comforting articles on the Ectopic/GI/Vagus nerve irritation connection...Thanks for your information.....and you’re right, the conditions seems to like to come on at the late hour and when I sit a certain way...or lie down to go to sleep.....

@robbie1956 Hi i was just thinking have you tried sleeping with your head raised up a bit? When i was having gi issues i noticed when I was at the Hospital and could raise the head of the bed my reflux was better. Just a thought and i can relate to that feeling of not wanting to sleep due to PVCs. It always seemed my heart would act up at night while lying down. But it always seemed better when at the hospital. Also i do know that sleep apnea can stress the Heart when sleeping and will not help with PVCs and heart rhythm. Something to maybe ask about.
Dana

Last night I drank my 20 ml of Mylanta before bed, laid down, was ok for about 10 minutes, then felt my stomach or diaphragm or hiatus hernia coming up in the top of
My upper abdomen...a very hollow knotty feeling...and then the skips, flips , PVCs etc.....right side, flat on back, left side no help...finally got up, belching, forcing a belch, some immediate relief of the knotty sensation, anxiety and anger mounting, it’s 4:15 in the morning.....finally took an extra half of Klonopin and managed to get some broken sleep.......maybe, I should try taking my Aciphex only once a day.......I know this is a common miserable condition, but brother, it’s a real drag.....it’s like I dread going to bed at night....

Hi everyone i though i would add that i do take Omeprazole 40 mg for many years now and ill admit i did have cdiff jun 0 2019 pretty bad but it was determined that it was due to anti biotics and im still on them for other viruses i have but i also take lacobacillus also which so far has kept any loosen stool issues away. I did look up what you mentioned but it seems mostly to be noted against Nexium which i just happen to be allergic to. I always was told cdiff was probally due to anti bionics. I dont think its the omeprazole since ive been on that for many years way before my Heart Transplant with no issues with cdiff .
Have a Blessed Day
Dana

@dvdhoover @robbie1956 - There have been discussions on Connect on trying to get off PPIs- there is awareness.
I’m not happy having to take PPIs twice a day, but for years I have had GERD and gastritis. My weight loss did not really change it.
I’m lucky to have avoided CDiff, tested many times.
I have followed a group here too trying to get rid of this most horrible disease.
With time I hope science will find a safer way to deal with the acid problem.

I just wanted to make sure that you knew that the constant use of PPI’s has shown to make you more susceptible to catching C-diff, and the reoccurrence of C-diff which is quite deadly. I found out the hard way and was surprised just how many Dr’s are not aware of it. The VA doubled my dose just before a reoccurrence that I still haven’t fully recovered from. Google PPI and C-diff and read about yourself. I think you’re going to be amazed at just how serious the connection is. People in our shape seldom survive it.

Thanks for your reply... I usually sit up or walk around after eating or drinking, but I could have a slow emptying of stomach content since I take a 20 mg PPI twice a day...but it seems random, sitting back can start up a troubling episode or walking, or lying down, it’s maddening until these ectopics decide to run their course until next time...they seem to come and go whatever I’m doing.....and my recent GI endoscopy and CT scan of the abdomen and lower area seemed fairly unremarkable....

My multiple GI issues, reoccurring C-Dif, Gerd, annual ERCP to clean out biliary duct after removal of my gallbladder. The EMI from one of the leads from my defibrillator effects the vagus nerve causing abdominal muscle spasms. It started after a 3 lead defibrillator replaced my two lead.

Are you lying down after eating...? I have gastro parenesis where my stomach empties very slow.. and I have to sit up to avoid all sorts of problems ... including what you describe... eating slowly, small amounts, chewing very well... helps avoid disaster.. Good luck..

@colleenyoung again thanks for your reply....and what I wanted to say, was that before bedtime, I take a 10ml dose of extra strength Mylanta and it seems to quite the PVCs when I lay down, thank God....