Ectopic heart episodes and GERD, acid indigestion issues

Posted by robbie1956 @robbie1956, Sep 26, 2020

This seems to help at nighttime , especially when the gut seems full, or the hiatus hernia or diaphragm seems to push up into the chest causing these awful Ectopic episodes....or am I just reaching? That’s the feeling I get from the responses from various Cardiologists I’ve seen over the years

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@dvdhoover @robbie1956 - There have been discussions on Connect on trying to get off PPIs- there is awareness.
I’m not happy having to take PPIs twice a day, but for years I have had GERD and gastritis. My weight loss did not really change it.
I’m lucky to have avoided CDiff, tested many times.
I have followed a group here too trying to get rid of this most horrible disease.
With time I hope science will find a safer way to deal with the acid problem.

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@astaingegerdm

@dvdhoover @robbie1956 - There have been discussions on Connect on trying to get off PPIs- there is awareness.
I’m not happy having to take PPIs twice a day, but for years I have had GERD and gastritis. My weight loss did not really change it.
I’m lucky to have avoided CDiff, tested many times.
I have followed a group here too trying to get rid of this most horrible disease.
With time I hope science will find a safer way to deal with the acid problem.

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Hi everyone i though i would add that i do take Omeprazole 40 mg for many years now and ill admit i did have cdiff jun 0 2019 pretty bad but it was determined that it was due to anti biotics and im still on them for other viruses i have but i also take lacobacillus also which so far has kept any loosen stool issues away. I did look up what you mentioned but it seems mostly to be noted against Nexium which i just happen to be allergic to. I always was told cdiff was probally due to anti bionics. I dont think its the omeprazole since ive been on that for many years way before my Heart Transplant with no issues with cdiff .
Have a Blessed Day
Dana

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Last night I drank my 20 ml of Mylanta before bed, laid down, was ok for about 10 minutes, then felt my stomach or diaphragm or hiatus hernia coming up in the top of
My upper abdomen...a very hollow knotty feeling...and then the skips, flips , PVCs etc.....right side, flat on back, left side no help...finally got up, belching, forcing a belch, some immediate relief of the knotty sensation, anxiety and anger mounting, it’s 4:15 in the morning.....finally took an extra half of Klonopin and managed to get some broken sleep.......maybe, I should try taking my Aciphex only once a day.......I know this is a common miserable condition, but brother, it’s a real drag.....it’s like I dread going to bed at night....

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@robbie1956

Last night I drank my 20 ml of Mylanta before bed, laid down, was ok for about 10 minutes, then felt my stomach or diaphragm or hiatus hernia coming up in the top of
My upper abdomen...a very hollow knotty feeling...and then the skips, flips , PVCs etc.....right side, flat on back, left side no help...finally got up, belching, forcing a belch, some immediate relief of the knotty sensation, anxiety and anger mounting, it’s 4:15 in the morning.....finally took an extra half of Klonopin and managed to get some broken sleep.......maybe, I should try taking my Aciphex only once a day.......I know this is a common miserable condition, but brother, it’s a real drag.....it’s like I dread going to bed at night....

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@robbie1956 Hi i was just thinking have you tried sleeping with your head raised up a bit? When i was having gi issues i noticed when I was at the Hospital and could raise the head of the bed my reflux was better. Just a thought and i can relate to that feeling of not wanting to sleep due to PVCs. It always seemed my heart would act up at night while lying down. But it always seemed better when at the hospital. Also i do know that sleep apnea can stress the Heart when sleeping and will not help with PVCs and heart rhythm. Something to maybe ask about.
Dana

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@robbie1956

Last night I drank my 20 ml of Mylanta before bed, laid down, was ok for about 10 minutes, then felt my stomach or diaphragm or hiatus hernia coming up in the top of
My upper abdomen...a very hollow knotty feeling...and then the skips, flips , PVCs etc.....right side, flat on back, left side no help...finally got up, belching, forcing a belch, some immediate relief of the knotty sensation, anxiety and anger mounting, it’s 4:15 in the morning.....finally took an extra half of Klonopin and managed to get some broken sleep.......maybe, I should try taking my Aciphex only once a day.......I know this is a common miserable condition, but brother, it’s a real drag.....it’s like I dread going to bed at night....

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@danab

Thanks for your reply....and yes, I sleep with three pillows...my head gets propped, but sometimes it just seems to do whatever it does....I’ve been through a sleep study and they said I have a slight case of sleep apnea....sometimes I wake up sort of startled as though I’d been holding my breath...then I find myself getting a slight anxiety attack..all of this does not help with the Ectopics....but, I like many others and yourself, just keep on...BTW, I’ve saved many good comforting articles on the Ectopic/GI/Vagus nerve irritation connection...Thanks for your information.....and you’re right, the conditions seems to like to come on at the late hour and when I sit a certain way...or lie down to go to sleep.....

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@robbie1956

@danab

Thanks for your reply....and yes, I sleep with three pillows...my head gets propped, but sometimes it just seems to do whatever it does....I’ve been through a sleep study and they said I have a slight case of sleep apnea....sometimes I wake up sort of startled as though I’d been holding my breath...then I find myself getting a slight anxiety attack..all of this does not help with the Ectopics....but, I like many others and yourself, just keep on...BTW, I’ve saved many good comforting articles on the Ectopic/GI/Vagus nerve irritation connection...Thanks for your information.....and you’re right, the conditions seems to like to come on at the late hour and when I sit a certain way...or lie down to go to sleep.....

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Hello @robbie1956,

Like @danab said, I have my bed elevated as well. I have used bed risers (rather than extra pillows) since pillows often slip during the night, or I slip off of them!. You can find bed risers at most stores or you can make your own with large wooden or brick blocks.

I use them for both Gi symptoms as well as heart symptoms. Just a thought.

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@hopeful33250

Hello @robbie1956,

Like @danab said, I have my bed elevated as well. I have used bed risers (rather than extra pillows) since pillows often slip during the night, or I slip off of them!. You can find bed risers at most stores or you can make your own with large wooden or brick blocks.

I use them for both Gi symptoms as well as heart symptoms. Just a thought.

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@hopeful33250
Thanks for your reply and your information..that sounds like a good idea..and so glad that these suggestions work for you and the other members that have given me some suggestions .... I might add that I’m on the edge of my bed most of the time by morning and find that my ‘pillow mountain’ has taken a tumble during the night....so bed risers I’ll look for, also an adjustable bed that might elevate my head and feet...wonderful suggestions from all of you...last night was much better than the previous night....

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@robbie1956

Last night I drank my 20 ml of Mylanta before bed, laid down, was ok for about 10 minutes, then felt my stomach or diaphragm or hiatus hernia coming up in the top of
My upper abdomen...a very hollow knotty feeling...and then the skips, flips , PVCs etc.....right side, flat on back, left side no help...finally got up, belching, forcing a belch, some immediate relief of the knotty sensation, anxiety and anger mounting, it’s 4:15 in the morning.....finally took an extra half of Klonopin and managed to get some broken sleep.......maybe, I should try taking my Aciphex only once a day.......I know this is a common miserable condition, but brother, it’s a real drag.....it’s like I dread going to bed at night....

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When I was first diagnosed with PVC's at the ER, they told me that if I ever have an attack where they don't quit, I 'must' go to the ER asap.(no driving myself)

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@robbie1956

Last night I drank my 20 ml of Mylanta before bed, laid down, was ok for about 10 minutes, then felt my stomach or diaphragm or hiatus hernia coming up in the top of
My upper abdomen...a very hollow knotty feeling...and then the skips, flips , PVCs etc.....right side, flat on back, left side no help...finally got up, belching, forcing a belch, some immediate relief of the knotty sensation, anxiety and anger mounting, it’s 4:15 in the morning.....finally took an extra half of Klonopin and managed to get some broken sleep.......maybe, I should try taking my Aciphex only once a day.......I know this is a common miserable condition, but brother, it’s a real drag.....it’s like I dread going to bed at night....

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@saleha59 hi, and thanks for the reply...sometimes the ER folks can be blunt....did they do anything for the PVCs or determine if there was an underlying condition that might be causing them? I feel for you...I would certainly get in touch with my Cardiologist and have him/her give you a checkup and let them perhaps give you a Med or whatever they feel will alleviate the symptoms....I get them all the time, well, they come and go....but check in with your PCP or a Cardiologist for some peace of mind...I had several episodes last night....these can be very scary...but by my EP, 3 Cardiologists, PCPs, mine seem to be of a benign nature......if you look on YouTube, you’ll find many comforting and interesting videos by York Cardiology concerning Ectopic beats ...good luck...

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@robbie1956

Last night I drank my 20 ml of Mylanta before bed, laid down, was ok for about 10 minutes, then felt my stomach or diaphragm or hiatus hernia coming up in the top of
My upper abdomen...a very hollow knotty feeling...and then the skips, flips , PVCs etc.....right side, flat on back, left side no help...finally got up, belching, forcing a belch, some immediate relief of the knotty sensation, anxiety and anger mounting, it’s 4:15 in the morning.....finally took an extra half of Klonopin and managed to get some broken sleep.......maybe, I should try taking my Aciphex only once a day.......I know this is a common miserable condition, but brother, it’s a real drag.....it’s like I dread going to bed at night....

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Robbie- when I was at the ER the first time, they could not get my PVCs to stop until they doubled my high blood pressure pill. I used to take 100MGs. of metoprolol. But they doubled the dose to 200mgs. and I rarely get the now. Maybe a couple here and there, but not like before at all. I do not have a cardiologist.

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