Dry eyes

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren’s syndrome. Does anyone else deal with dry eyes?

@sue225

One recommendation from my ophthalmologist that definitely works, is to wear swim goggles at night! I was amazed at how much moisture builds up inside the goggles. I may go back to doing that.

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a humidifier near my bed seems to help, swim goggles sounds like a good idea but seems like they would be too uncomfortable. Helen

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@sue225

One recommendation from my ophthalmologist that definitely works, is to wear swim goggles at night! I was amazed at how much moisture builds up inside the goggles. I may go back to doing that.

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oh years ago it was suggested by someone somewhere to wear goggles, glad it works for you sue. i just remembered couple years ago optometrist sold me sort of eye mask with little pads that warmed up as opened and you slipped into the mask. but specialist in Toronto said no because at the time had narrow angle glaucoma and was concrned about the elastic band around eyes; so year ago i had IRIDOTOMY to release pressure in eyes but now dont know if i can wear that heated mask or not…hoenstly i have so many irons in the fire right now i dont know if i am coming or going and all drs ssooo busy re covid restrictions and i am in City of just of 50,000 with line up at door of all medical…also the optometrist got fed up with me and passed me back to his partner and i didnt have the guts to ask why! nice guys finish last , or so they say!

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@lacy2

.. i think different things work differently because could be different 'reason' for dry eyes and some conditions like my daughters on computers, a quick few drops through the day… but long term and tears not being produced or evaporating too quickly… i had an appointment with dept. head dealing with dry eyes at on of Toronto's teaching hospitals the year i was diagnozed down there with glaucoma, but got cdiff and had to cancel and not been able to travel since, well can manage the 4 hour drive its the fecal incontinence etc. etc. etc. etc. and finding a room during covid …but honestly i would suggest to anyone starting the dry eye route to see someone who deals with it , reputable and not just selling a fix, and find out 'WHY' and take it from there, i have used and spent hundred and hundreds on eye drops that may not have even been suitable but i must admit have never tried prescription dry eye drops… maybe thats been my mistake. if i sound grumpy its been a couple of 'more than usual' weeks and just having a pity party for myself. take care everyne…

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@lacy2 I don't blame you for having a "pity-party". Hope you recover from the c-difficile soon. My friend's daughter was quite seriously ill with that. On top of that, we are still in the midst of this pandemic.
I had no luck with Restasis. It caused lots of burning and stinging for me and it takes several months until you know whether its effective or not. I did fill a script for Xiidra, (expensive), and it sits in a cabinet. Reluctant to use it. It takes a couple of weeks using it to know whether it will work.
Feel better.

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@lacy2

oh years ago it was suggested by someone somewhere to wear goggles, glad it works for you sue. i just remembered couple years ago optometrist sold me sort of eye mask with little pads that warmed up as opened and you slipped into the mask. but specialist in Toronto said no because at the time had narrow angle glaucoma and was concrned about the elastic band around eyes; so year ago i had IRIDOTOMY to release pressure in eyes but now dont know if i can wear that heated mask or not…hoenstly i have so many irons in the fire right now i dont know if i am coming or going and all drs ssooo busy re covid restrictions and i am in City of just of 50,000 with line up at door of all medical…also the optometrist got fed up with me and passed me back to his partner and i didnt have the guts to ask why! nice guys finish last , or so they say!

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Thankful that, so far, I only have the dry eye.

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@helennicola

a humidifier near my bed seems to help, swim goggles sounds like a good idea but seems like they would be too uncomfortable. Helen

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Well, I wasn't going to say anything but sometimes I did throw them on the carpet in the middle of the night🙂

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@sue225

Well, I wasn't going to say anything but sometimes I did throw them on the carpet in the middle of the night🙂

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ha ha! 😏😁 Helen

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@lacy2

hi all, h @lioness; Thanks. It was odd, had teleconference with neurologist, out of town, as office closed, and only seen him a couple of times since getting p.n. 2016 from meds…. I had some flareups during last few months, thats why clinic dr referred me back to him. That was march 16 he thinks Essential Tremour (internal) and it was coincidence that then had another ocular migraine march 23rd 6am… but forgot to tell neurologist about getting forgetful after the migraines…. not all the time – anyway, daughter phoned him that day and receptionist said as its a different reason from original referral (p.n.) I will have to get a new referral. I dont have family dr so will have to contact clinic again and wait.

I think I already mentioned I had 2 x occular migraines that morning and when after waiting months, the ENT phoned (my daugher had phoned from her house to cancel as i was ill) …he yelled at me for almost the whole 10 minutes … said he has so many urgent cases to deal with, and that i wasn't listening to him…. could i breath, could i smell….and said well 35 years ago you had tmj etc. etc. I put phone on speaker so husband could hear, it was awful.
I was at dentist yesterday to get a small piece of bone taken out left when they took out tooth last week and told him about being yelled at…. oh yes he said Dr.Prinja has a bad temper! I am not stupid i know ent is very busy with more urgent cases but just wanted some professional help with the ear pain, echo, fullness etc. I was referred there by a doctor, get mad at the doctor for referring me then!!!
And, the sharp piece of bone sticking out of the hole in my gum is attached to the bone so dentist nipped off a tiny piece but said the gum will grow over the rest, but to go back if bother me…… help !!!! just kidding, could be worse! If i could get some energy and my nerves back in shape and out of this bedroom a bit more …… but no where to go anyway! Thanks for caring especially when you have so many issues to deal with lioness, and everyone

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@lacy2 Still hard to think s Dr would have such a temper tantrum like a little baby I'm glad you are feeling better today I am waiting vto get a call now from Dentist office about my partials since impressions are done now We all here are pain warriors June you included You have to be strong to deal with these problems day by day.I use alot of Tapping and meditation .Like yesterday I needed a day to myself so put relaxing music on and took a bath this always soothes the soul and hurting muscles When I can't get out I open the windows and do deep breathing funny how important deep breathing makes you fill getting in all the oxygen helpsDo you do this?

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@sue225

@helennicola hi Helen, why this particular Refresh eye drop? I have a pretty bad dry eye problem (forty years now) and have been using Refresh Celluvisc for ages but have reached a stage where it is no longer as effective. I for some reason have been reluctant to use the prescription drop, Xiidra. Did your ophthalmologist recommend it and have you found your dry eyes feel a lot better when you use them? I can order a box on Amazon as the drop is not available in Canada yet.

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@helencicola and @sue225, Have you tried Thera Tears? My husband just had cataract surgery and is using them. I bought a bottle for myself and find it soothing. Good luck! @joybringer1

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@joybringer1

@helencicola and @sue225, Have you tried Thera Tears? My husband just had cataract surgery and is using them. I bought a bottle for myself and find it soothing. Good luck! @joybringer1

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Yes, I use them and also the Refresh. Helen

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@lioness

@lacy2 Still hard to think s Dr would have such a temper tantrum like a little baby I'm glad you are feeling better today I am waiting vto get a call now from Dentist office about my partials since impressions are done now We all here are pain warriors June you included You have to be strong to deal with these problems day by day.I use alot of Tapping and meditation .Like yesterday I needed a day to myself so put relaxing music on and took a bath this always soothes the soul and hurting muscles When I can't get out I open the windows and do deep breathing funny how important deep breathing makes you fill getting in all the oxygen helpsDo you do this?

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thanks all, thanks lioness… just had a mini melt down..i think its when i go downstairs and realize i dont hve the will or strength to make meals, lunch and husband been shopping and blinking tooth area hurts and sore throat and all then childish silly crying, i just need to get a grip …. hope i don't turn into a miserable sob like that doctor! its odd its not really mood swings but physical pain affecting mood maybe… and you cope alone bless you. i always try and have a shower every day and almost do but its been a long road lioness and just not bouncing back like i used to; i can still be funny or silly typing, or emailing someone…sometimes een on th ephone . its a skill/trick albeit small. yes listen to tapes, dont do much tapping…. its odd but the odd hours and usually its in evening, not sure why, but i start to feel peace and it is lovely, more than money… but then dont know what next day will be like. my husband is a quiet plain man and doesnt "get into it" and lets face it, keeps quiet about his ailments, has a cigarette and glass of wine but i cant do that. well, chalk this day up to another ding-dong=bell. june is in the well, and maybe as the day goes by this sadness will go take a hike. thanks for the deep breathing tips etc., but you know sometimes its more like crawl up in a ball for me… am sureits not easy for you …. and cant wait to hear about the new smile! j.

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@weezy1930 I have dry eyes and finally have the perfect produce for me after trying many products from the drug store. I use De 3 which I purchase at my eye doctors office. You can also buy it on line. It's expensive but it works.

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@joybringer1

@helencicola and @sue225, Have you tried Thera Tears? My husband just had cataract surgery and is using them. I bought a bottle for myself and find it soothing. Good luck! @joybringer1

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Will make a note of Thera tears. First I want to try Optiva mega with flaxseed and castor oil.

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