I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?
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I also have had dry eye for about 40 years. Restasis works better for me than Xiidra. For a while my insurance refused to cover Retasis, which I had been on for so many years. I found a different opthamologist who was able to write a valid reason for my need for Restasis versus Xiidra based on a specific diagnosis.I have secondary Sjogrens related to Hashimoto's and RA. Over the counter preservative free is the wat to go for additional help. I can't afford the Thera tears with flax but used one box and felt it was better than the regular Thera I always use and buy at Sam's Club.
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@doloridicorpo65 I could not tolerate Restasis. Too much burning and stinging. Many years ago I stopped using all eye drops with preservatives as soon as preservative free became available. With moderate to severe dry eye, the preservatives do make things worse. Sounds like another thumbs up for tears with flax!
…hello, always interested in dry eye drops .. had condition i think 20yeas (how have glaucoma and some other issues) Am in Ontario and think over the years I have tried just about every over the counter drop, starting with those with preservatives and last five years or so, no preservatives, single dose but are a bit costly. I have never tried prescription dry eye drops but have prescription Glaucoma drops and even those have side effects. I am interested in a drop with oil…. but what I really neglected to do was really find out the cause…. as there are a few reasons like not producing enough tears, or tears evaporating etc. and the optometrist was just starting to check the little oil producing or tear producing of eyes when it was found i i had glaucoma then i got other illnesses and "REASON" for the dry eyes got left in the dust. Sometimes my eyes feel like they have been boiled in oil from all the chemicals in eyedrops … it must be a multi million dollar business these days; daughters have them now from computer work all day. Right now am using one bought in Canada but made in German and they have a whole line of products, just over the counter; Candor Vision HYLO . it is expensive and last 6 months but very hard to put in eyes with a plunger type applicator so have to be careful. I am not suggesting anyone buy it, but many countries are trying to find dry eye solutions. The idea of a drop having oil in appeals to me… so hope to read some good news…thanks for sharing your results etc. June
@lacy2 I have used vitamin drops from India I found that when I used them I didn't have to use as many times before I put drops in about 4-5 times a day but with using drops and Dr put me on AREDSfor my M.D. I use maybe I 1-2 times a day here it also depends on the weather
@lacy2 My very dry eyes seem to prefer the ingredient "hydroxypropyl methylcellulose. The first drop I ever used all those many years ago (1976!) was IsoptoTears 1% by Alcon. (No longer around). Today, I use Refresh Celluvisc (preservatives free) which is the same ingredient. I believe your Hylo is probably hyaluronic acid or similar which I have not had luck with.
@lioness hi oh I never thought about the weather… our homes in winter heated inside and windows closed the air is dry but i have tried various humidifiers then read they are supposed to be cleaned out with bleach every couple of weeks etc., as get mold in …same as Brita water jugs! some days just cant do it… i have been closing my bedroom door and opening window a crack and its about 16C in here … i think i saw something on internet about their implanting a little something or other under the lower lid to secrete moisture into eyes but I would hazard a guess its not too simple to have done. Wonder for how many centuries humans have suffered from dry eyes or is it a recent thing…. oh well, give me something to look up on internet today! Like you, having glaucoma , and am not sure but I also have floaters, would be nice to find something that works 100 per cent eh? Even my migraines are ocular and I have flashing lights about 20 minutes before, but for past 20 years not the pounding headache so have to be grateful for small mercies! Thing is last four migraines during recovery my memory is going regarding names of things and its a bit of a worry. On and on it goes….. and reading of what a lot of people here are living through I don't know how they get by…. am afraid I haven't coped well the last 3 years. Anniversary today – 59 years in Canada from uk when i was 18 !! Love Canada and my Canadian children but……. (fill in the gap) Take care everyone…. J. snow's almost gone… yeah!!
hi @sue225 When you say had no luck with hylo, was it because it didnt last very long giving relief? i find it doesnt coat my eyeballs like some others drops,but then again systane ultra makes my eyes feel sticky ;; i have learned one small thing after all these years, i was splashing the drops into eyes but not then carefully closing and wiping dropsoff eye lashes and i think the drops were sticking on my eyelashes/// not that i have many eyelashes left… but i am always nervous of introducint bacteria or germs when washing/wiping my eyes so i boiled and cooled some water and put 1/4 tsp salt in and dipped in one of those little round makeup pads and wiped my eyes… but didn't experiment long enough before tooth out and had a different cup water/salt to rinse my mouth; its like a mini hospital in my bedroom! I am going to give Refresh Celluvsic another try then……J. ps. it seems each new drop works for a bit then the eyes say; UH UH, nope, not doing it!!!
@lacy2 I use Ointment at night There are alot from diff co.but I like Gen teal eye ointment I keep a window cracked open at night Fresh air is important since houses are closed up during winter What does Dr say about your ocular migraines? Have you seen your opthalmologist and a neurologist? I googled and saw certain foods can add to these headaches I'm sure you have googled about ocular migraine the article I read said to see a neurologist also Your to young to have these problems Bless you do the best you can
I have had Sjogren's for most of my life but was diagnosed 30 years ago. My dentist said to only use Biotene toothpaste as it doesn't have the drying ingredient that other toothpastes have. It has saved my teeth. I get frequent canker sores and put the Biotene gel on the sores and they go away within a few days. Since it has given me a dry cough, I use the Biotene mouth spray. That really helps at night too when my mouth and throat get really dry. My favorite eye products are Genteal for severe dry eye- (I use that at night or in dry places like hospitals), and all of the Systane products. The above items are all over the counter and there are usually coupons available. I also use Restasis twice a day and have tear duct plugs. With Sjogren's you are prone to have blepheritis which can be really serious if not taken care of. It's bacteria that builds up on the eyelids. So I us OCuSoft Original lid scrubs twice a day. Be careful of the ones that last all day as they burned my eyes. I do warm compresses at least 4 times a day. The "cosmetic" rounds are perfect for compresses and are 100 for $1.49. If your parotid glands get blocked, you should use a heating pad for 20 minutes and massage from the ear down. I used to be a phone counselor for the Sjogren's Foundation and the above items seemed to work. Of course if you find something better, use it. I am taking CBD/THC for the joint pain. Since you are new to Sjogren's , it can be a scary diagnosis. But I am 76 and still going strong. The maintenance is a pain but it works. I will try to answer any questions you may have. Good luck and wear a mask all the time. Joan
@lacy2 It was some time ago that I tried that drop (around the year it first became available). It just didn't alleviate the dryness to the same degree as the Refresh Celluvisc (which has the 1% hydroxypropyl methylcellulose). It was just not as effective for me.
Genteal for severe dry eye is over the counter and really helps me.
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