DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

Posted by ardithann @ardithann, Feb 10, 2018

I would like to connect with someone with DISH disease. I saw one post about someone recently diagnosed with this, but can't find it again.

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@mitchell007

I now have Còvid, as of Thursday.
I'm fully ip to date with vaccination shots, but have covid much worse than any one I have known.
Mostly very sore throat, was wondering if DISH is responsible perhaps for acute covid

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Mitchell I’m so sorry that you are feeling like this right now. I myself have never experienced Covid. I thank God for that.
I have never read anything about this being connected with DISH disease.
Are you feeling more pain with the Covid than normally? Because pain can occur with Covid, and may make things feel even worse for people like us.
My prayer for you is that you get over this quickly. Feel better.🙏

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Thank you for your reply, you are most likely correct, covid just see

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Thank you for your reply, you are most likely correct, covid just seems a lot worse with DISH on-board

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Hello All,

Just got diagnosed with DISH, which surprises me since I have had many spine xrays and Psoriatic Arthritis since my early 20's. Now , at 69, I had an electro cardioversion for my Afib and it threw my lumbar out...Now it appears I may have an answer for it but waiting on lumber series to rule out a compression fracture. Jeez!

I have been told many things over many years by many specialists and have learned to research and separate the bull from the real, lol.

I got put on disability at age 52, due to pain/joint issues , etc. so bad I couldn't work anymore. I was told at 28 I would need new knees due to progressive damage and given many of the drugs we all take for autoimmune arthritis diseases. They slow things down but biologics came along too late for me. I was in my 40's when they tried 3 different ones with little effect. I'm use to pain, limited mobilty, etc. and after both my knees and rt hip being replaced, failed rotator cuff repair, microdisc lumbar surgery and years of steroids/ cortisone/etc. here I am now being told I have DISH! Wonderful! Explains the reduced mobility in some of my toes, wrists, neck, etc.
What concerns me most is I have several upcoming procedures for my Afib and worried about my neck flexion and back during transfers and breathing tubes! Now, I have to share this will all my specialists to be sure I don't end up with fractured cervical vertebrae.... Add that to my list of woes, lol.

Anyway, I'm grateful that my back went out and hoping my xrays don't show a fracture for now and some PT and exercises will loosen my lower back and help the pain. Bur if I didn't know this, I might have had more complications down the road with procedures that requite me to be sedated!

I also have ran high calciums for years and have something called FHH, which is a rare genetic disorder that keeps my calcium blood levels high because my parathyroid doesn't register the calcium levels in my blood properly. I wonder it that is why I have calcium salt deposits causing the DISH? Who knows???

Signing off for now and will keep up with you all on this site now. Take care and good luck to us all!
Quickdraw MeGraw

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@quickdrawmcgraw

Hello All,

Just got diagnosed with DISH, which surprises me since I have had many spine xrays and Psoriatic Arthritis since my early 20's. Now , at 69, I had an electro cardioversion for my Afib and it threw my lumbar out...Now it appears I may have an answer for it but waiting on lumber series to rule out a compression fracture. Jeez!

I have been told many things over many years by many specialists and have learned to research and separate the bull from the real, lol.

I got put on disability at age 52, due to pain/joint issues , etc. so bad I couldn't work anymore. I was told at 28 I would need new knees due to progressive damage and given many of the drugs we all take for autoimmune arthritis diseases. They slow things down but biologics came along too late for me. I was in my 40's when they tried 3 different ones with little effect. I'm use to pain, limited mobilty, etc. and after both my knees and rt hip being replaced, failed rotator cuff repair, microdisc lumbar surgery and years of steroids/ cortisone/etc. here I am now being told I have DISH! Wonderful! Explains the reduced mobility in some of my toes, wrists, neck, etc.
What concerns me most is I have several upcoming procedures for my Afib and worried about my neck flexion and back during transfers and breathing tubes! Now, I have to share this will all my specialists to be sure I don't end up with fractured cervical vertebrae.... Add that to my list of woes, lol.

Anyway, I'm grateful that my back went out and hoping my xrays don't show a fracture for now and some PT and exercises will loosen my lower back and help the pain. Bur if I didn't know this, I might have had more complications down the road with procedures that requite me to be sedated!

I also have ran high calciums for years and have something called FHH, which is a rare genetic disorder that keeps my calcium blood levels high because my parathyroid doesn't register the calcium levels in my blood properly. I wonder it that is why I have calcium salt deposits causing the DISH? Who knows???

Signing off for now and will keep up with you all on this site now. Take care and good luck to us all!
Quickdraw MeGraw

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QuickDraw. Wow. You’re one of those cases in which you find out many many years into your disease that you have it. You’re right it’s hard to believe that you’ve gotten this far without having been diagnosed but now you can put a name to it. As I have told others, I have read from many different sites. I tried to pick very fact or study based sites. But sometimes I do read what others are going through because no matter what studies are there. Sometimes you just need to hear from other people who have it and are feeling the pain day and day out. Not but you want others to feel the pain, but you kind of feel vindicated when you’ve had some physicians who don’t believe that this is that painful.

Stay strong and keep reading from others on this site and what they have gone through and are going through.🙏

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@dishpain

QuickDraw. Wow. You’re one of those cases in which you find out many many years into your disease that you have it. You’re right it’s hard to believe that you’ve gotten this far without having been diagnosed but now you can put a name to it. As I have told others, I have read from many different sites. I tried to pick very fact or study based sites. But sometimes I do read what others are going through because no matter what studies are there. Sometimes you just need to hear from other people who have it and are feeling the pain day and day out. Not but you want others to feel the pain, but you kind of feel vindicated when you’ve had some physicians who don’t believe that this is that painful.

Stay strong and keep reading from others on this site and what they have gone through and are going through.🙏

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It does sure help to know your not alone with this pain and to be validated

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@barscr2

It does sure help to know your not alone with this pain and to be validated

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Yes, it certainly does.
Merry Christmas happy healthy new year to you all! ❤️‍🩹

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Hi. I am wondering how many of my fellow
DISH Friends are overweight. I know somebody who had it who was not and with all the other disease states that they claim that people with DISH having common, like diabetes, hypertension, high cholesterol, and reported, obesity, I wonder how many really are overweight. I can only assume that, my friend who had it, and was not overweight, shows that there is a component that this is not a disease because of obesity. I know I have been having my whole life but I don’t know that necessarily caused this disease. Any thoughts?

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@dishpain

Hi. I am wondering how many of my fellow
DISH Friends are overweight. I know somebody who had it who was not and with all the other disease states that they claim that people with DISH having common, like diabetes, hypertension, high cholesterol, and reported, obesity, I wonder how many really are overweight. I can only assume that, my friend who had it, and was not overweight, shows that there is a component that this is not a disease because of obesity. I know I have been having my whole life but I don’t know that necessarily caused this disease. Any thoughts?

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I meant to say heavy, my whole life.

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@dishpain

Hi. I am wondering how many of my fellow
DISH Friends are overweight. I know somebody who had it who was not and with all the other disease states that they claim that people with DISH having common, like diabetes, hypertension, high cholesterol, and reported, obesity, I wonder how many really are overweight. I can only assume that, my friend who had it, and was not overweight, shows that there is a component that this is not a disease because of obesity. I know I have been having my whole life but I don’t know that necessarily caused this disease. Any thoughts?

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I was diagnosed with DISH at Mayo Clinic in Rochester while undergoing some tests before back surgery. I was not overweight when diagnosed. A cause for Dish has not been found but they say it can be related to genetic factors, obesity, diabetes mellitus, and possibly too much heavy lifting and carrying. My cervical spine from C1 through C6 is fused and a large number of vertebrae in thoracic spine are also fused. I do have bone spurs but the only difficulty I have had is with occasional numbness in my arms/hands, my voice is a bit hoarse and, of course, back pain. More men have DISH than women. Diabetes runs in my mother's family but I am not diabetic. I always wondered if all the heavy labor I did while building a house and garage with my husband and remodeling 2 others contributed to this arthritis. I was 58 when diagnosed. I do have hypertension and high cholesterol.

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