DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

Posted by ardithann @ardithann, Feb 10, 2018

I would like to connect with someone with DISH disease. I saw one post about someone recently diagnosed with this, but can't find it again.

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@jenniferhunter

@badtothebone81 I just wanted to welcome you to Connect. I am a spine patient and I don’t have DISH, but I was curious about your maintenance routine to maintain your health. What are your pearls of wisdom?

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I have a Rolf Structural Integration practice and get a lot of work from colleagues that keeps my body in balance to gravity. I also use a gyrotonic machine to keep as much movement happening in my spine as possible. Walk 2 miles every day for core strength.

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@robrob

I have a Rolf Structural Integration practice and get a lot of work from colleagues that keeps my body in balance to gravity. I also use a gyrotonic machine to keep as much movement happening in my spine as possible. Walk 2 miles every day for core strength.

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That is great. Core strength is so important if one physically can accomplish it. So glad I developed that early on in life. Helps so much. But sometimes all the exercising I want to do in my mind, physically I can’t do. I know with DISH it is important to move but it can go against you if you overdo it. I pray for all of you that you can be as strong as your body allows. 🙏❤️‍🩹

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@dishpain

That is great. Core strength is so important if one physically can accomplish it. So glad I developed that early on in life. Helps so much. But sometimes all the exercising I want to do in my mind, physically I can’t do. I know with DISH it is important to move but it can go against you if you overdo it. I pray for all of you that you can be as strong as your body allows. 🙏❤️‍🩹

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I appreciate all the likes. It’s good to feel like you are contributing to possibly helping others.

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@robrob

I have a Rolf Structural Integration practice and get a lot of work from colleagues that keeps my body in balance to gravity. I also use a gyrotonic machine to keep as much movement happening in my spine as possible. Walk 2 miles every day for core strength.

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@robrob I was looking up gyrotonic machines and these look like some very specialized physical therapy equipment and there are a lot of different pieces of equipment. Can you describe what types of movements you do and how it helps your spine? It looks interesting. I see there are also studios that offer this type of physical activity.
Jennifer

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I’m presently using my older TENS machine for my lower back pain which had become extremely painful forcing me to bed. My wife fixed the electrodes on my lower spine making an X over the scar at L4 & 5. After an hour of 35 the pain was gone as well as this morning. Anyone not familiar with the TENS machine let me know!

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@jenniferhunter

@badtothebone81 I just wanted to welcome you to Connect. I am a spine patient and I don’t have DISH, but I was curious about your maintenance routine to maintain your health. What are your pearls of wisdom?

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@jenniferhunter
Hello Jennifer and Thank you for the welcome to Connect!
The best way to describe my “Health Maintenance Routine” is to list what I do or have done. I’m also constantly pivoting to adapt to challenges as they arise, so here goes!

***MEDICATIONS***
*NAPROXEN
(Discontinued 4/3/24 thinning my blood too much & causing uncontrollable bloody noses)
*CYCLOBENZAPRINE
*TURMERIC
*LIQUID FISH OIL
(Stopped for 1 month so nose can heal/ also thins the blood)
*CBD GUMMIES
*WOMEN’S PROBIOTIC

***PHYSICAL AIDS***
*SALONPAS PATCHES & LIDOCAINE ROLL ON
*ICE/ HEATING PAD
*COMPRESSION SHIRT *COMPRESSION BELT
*CUSTOM ORTHOTICS
*HAND-HELD MASSAGER/ FOAM ROLLER & TENNIS/ LACROSSE BALL
*HANDICAP PLACARD

***EXERCISES***
*YOGA
*WALKING
*SWIMMING
*BIKE RIDING
*HIKING
*ZUMBA (modified)

***PAIN MANAGEMENT***
*CHIROPRACTIC CARE
*SWEDISH MASSAGE
*TRIGGER POINT INJECTIONS: Done by my (Physiatrist)
*HEEL INJECTIONS: Done by my (Podiatrist)

I Hope anyone who reads this will find something helpful that works for them; learn something new; or feel inspired to try something new!

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@badtothebone81

@jenniferhunter
Hello Jennifer and Thank you for the welcome to Connect!
The best way to describe my “Health Maintenance Routine” is to list what I do or have done. I’m also constantly pivoting to adapt to challenges as they arise, so here goes!

***MEDICATIONS***
*NAPROXEN
(Discontinued 4/3/24 thinning my blood too much & causing uncontrollable bloody noses)
*CYCLOBENZAPRINE
*TURMERIC
*LIQUID FISH OIL
(Stopped for 1 month so nose can heal/ also thins the blood)
*CBD GUMMIES
*WOMEN’S PROBIOTIC

***PHYSICAL AIDS***
*SALONPAS PATCHES & LIDOCAINE ROLL ON
*ICE/ HEATING PAD
*COMPRESSION SHIRT *COMPRESSION BELT
*CUSTOM ORTHOTICS
*HAND-HELD MASSAGER/ FOAM ROLLER & TENNIS/ LACROSSE BALL
*HANDICAP PLACARD

***EXERCISES***
*YOGA
*WALKING
*SWIMMING
*BIKE RIDING
*HIKING
*ZUMBA (modified)

***PAIN MANAGEMENT***
*CHIROPRACTIC CARE
*SWEDISH MASSAGE
*TRIGGER POINT INJECTIONS: Done by my (Physiatrist)
*HEEL INJECTIONS: Done by my (Podiatrist)

I Hope anyone who reads this will find something helpful that works for them; learn something new; or feel inspired to try something new!

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Thank you for your reply and yes, we can always learn something from somebody in the same boat. Best of luck always!🙏

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