DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

Hi, interesting you mentioned your heels, was the same for me, had bone spurs in both heels, years ago whilst working in USA, I live in New Zealand now, only a few Months ago I accidentally found the DISH diagnosis whilst in Hospital with another injury.
My neck gives the most trouble headaches associated with muscles trying to support my neck.
My back is the most painful, a back support brace helps a lot, I use vert sparingly ordinary panadol when absolutely necessary for a while of relief.
Walking I find good relief and keep busy with anything.

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I had to look up, and I was pretty sure what the medication‘s were that you were referring to. Vert is meclizine, which makes sense because it is for vertigo. Panadol is our acetaminophen or Tylenol. I use Tylenol twice a day every day & occasionally an extra dose, depending on what I’ve done for the day. I’m actually considering getting the long acting product to see if that helps any.
I don’t have as much in my neck yet, and I say yet because it seems to be going everywhere. But I have bone spurs in both shoulders and have had radio frequency. Ablation‘s done there as well as in my back. I was wondering if you have orthotics that were made for you because of the bone spurs in your feet. Like I said, I have them on the bottom of both feet and on the back of both feet. Sometimes makes it difficult to have shoes with a backing . I am going to see a podiatrist next Friday and hopefully they can give me some answers and see if I can have some treatment with laser on my feet to break up the bone spurs. Not sure if I can or not and I’m not sure if I do if it will make them come back worse. It is strange how many of us have the bone spurs in our feet. Good luck to you Mitchell. It seems that you are doing the best you can with medication and exercise.

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Kinda funny.....but I made my own footwear in the finish.... found a specific style of quality Under armour sneaker, cut the lace up area out and the tongue off, (easy on easy off) no bending over, cut the back out, then made a clay mold of the bottom of my feet, warm the modeling clay, place a 1" strip on a foot sized board, then press and wriggling my foot until I had a complete mold of my underside of each foot.....then lightly fiberglass over the mounded clay, wallah an exact replication of each foot, then use quality foot inner soles, icon walk and jog for miles again, no discomfort.

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Hello,

I have been in pain management for almost 10 years due to spine issues causing body pain. I was diagnosed just this week with DISH. I Am so SCARED! I am 40 years old. I do not know what to do. I am waiting on a call from a Rheumatologist for my first appt.

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Please don’t be scared. I had to think that I was living with it long before I knew I had it. I’m surprised nobody did x-rays all those years that you were getting treatment at pain management, so they knew what they were treating.
Anyway, the rheumatologist will certainly know something about the disease. It’s just the medication’s that he has in his toolbox, will not help with this disease unless you have other inflammatory conditions. In the meantime, try to relax. As we all know getting upset, does nothing to help. In fact, the tension can make things worse. There are several people on this site that have this condition. Although so far, I think you seem to be the youngest diagnosed that I am aware of on the site. I wish you the best of luck at your visit with the rheumatologist and that he gives you all the knowledge that he has and point you down the right path. Come back and let us know how your visit went. 🙏

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Thank you for your reply. The treatment began due to an inoperable pinched nerve in my lumbar spine. Over the years pain started in T spine and C spine and this year my shoulder began hurting to the point of being unbearable and keeping me up at night in pain and in pain all day. And that prompted an X-ray/ MRI on Halloween Day. Then results on 11/6 were several listed issues plus DISH diagnosis.

I'll be sure to advise what the rheumatologist reveals.

Thank you for your caring response.

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Thank you for your reply. The treatment began due to an inoperable pinched nerve in my lumbar spine. Over the years pain started in T spine and C spine and this year my shoulder began hurting to the point of being unbearable and keeping me up at night in pain and in pain all day. And that prompted an X-ray/ MRI on Halloween Day. Then results on 11/6 were several listed issues plus DISH diagnosis.

I'll be sure to advise what the rheumatologist reveals.

Thank you for your caring response.

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I to have been diagnosed with DISH/Foresters disease. Last week I went to a Pain Specialist/Doctor for who gave me information concerning THE INTRACEPT PROCEDURE for acute back pain. This procedure discusses Vertebrogenic pain in your back. It is a minimally invasive procedure. Detailed
imagining is also need so the Doctor can accurately proceed forward.

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