Diagnosed with pseudomonas aeruginosa infection in my lungs

Posted by smokeycat442 @smokeycat442, Jan 3, 2019

I haven’t had any success with many antibiotics including 3 weeks on a IV of Zosyn! Does anybody have any suggestions? What about the antibiotic Ceftazidime? I’m sure that this is one antibiotic that I have not been prescribed by my doctor. Any feedback would be greatly appreciated! Thanks!

Smokeycat442….I presume u have done the nebulized drugs first, Tobramyacin, Colistin, Cayston, and pills cyprofloxacin, levaquin…usually they try this route first then IV's in Toronto,,,might have missed others???

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I have pseudomonas again or still. I had it in 2019 but it disappeared while I was on Arikayce. However it's been back in my lungs again since this summer. My doctor said that we will discuss treating it when I have more and am sick. I don't know about having more because the results reports say that I have many. She has more details re exactly how much there is. My main symptom is copious amounts of mucus, 2-3x more than usual. I am
doing airway clearance 2x daily.

I have an appointment scheduled for the end of the month. My pseudomonas is susceptible to all the various antibiotics used for this bacteria.

Should I push for treatment? I know some of you have been treated for this bacteria and I did a search of the discussions but I really would appreciate an opinion as to whether I should start treatment. I would prefer an inhaled drug because my gut is still recovering from the MAC antibiotics that I stopped more than 6 months ago. I would be grateful for input from anyone who has been treated for pseudomonas.

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@rits

I have pseudomonas again or still. I had it in 2019 but it disappeared while I was on Arikayce. However it's been back in my lungs again since this summer. My doctor said that we will discuss treating it when I have more and am sick. I don't know about having more because the results reports say that I have many. She has more details re exactly how much there is. My main symptom is copious amounts of mucus, 2-3x more than usual. I am
doing airway clearance 2x daily.

I have an appointment scheduled for the end of the month. My pseudomonas is susceptible to all the various antibiotics used for this bacteria.

Should I push for treatment? I know some of you have been treated for this bacteria and I did a search of the discussions but I really would appreciate an opinion as to whether I should start treatment. I would prefer an inhaled drug because my gut is still recovering from the MAC antibiotics that I stopped more than 6 months ago. I would be grateful for input from anyone who has been treated for pseudomonas.

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@rits You have pseudomonas and you are looking for treatment information.

You will notice that I moved your question, "Treatment for pseudomonas" into a discussion where members are already discussing this topic. I did this so you could more quickly connect in order to have your questions answered. I encourage you to scroll back through the comments to find previously shared suggestions as well.

May I ask if you have considered getting a second opinion to see if their treatment recommendations are similar?

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@rits

I have pseudomonas again or still. I had it in 2019 but it disappeared while I was on Arikayce. However it's been back in my lungs again since this summer. My doctor said that we will discuss treating it when I have more and am sick. I don't know about having more because the results reports say that I have many. She has more details re exactly how much there is. My main symptom is copious amounts of mucus, 2-3x more than usual. I am
doing airway clearance 2x daily.

I have an appointment scheduled for the end of the month. My pseudomonas is susceptible to all the various antibiotics used for this bacteria.

Should I push for treatment? I know some of you have been treated for this bacteria and I did a search of the discussions but I really would appreciate an opinion as to whether I should start treatment. I would prefer an inhaled drug because my gut is still recovering from the MAC antibiotics that I stopped more than 6 months ago. I would be grateful for input from anyone who has been treated for pseudomonas.

Jump to this post

@rits…I too have pseudomonas..I am on Colistin every other month nebulized..first line of treatment is usually Tobramyacin nebulized..Cipro and levaquiin are taken in pill form..my pseudo got worse..thick green sputum, and really starting to feel unwell..sometimes Dr’s will wait and watch..it’s a nasty bacteria…

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@erikas

@rits You have pseudomonas and you are looking for treatment information.

You will notice that I moved your question, "Treatment for pseudomonas" into a discussion where members are already discussing this topic. I did this so you could more quickly connect in order to have your questions answered. I encourage you to scroll back through the comments to find previously shared suggestions as well.

May I ask if you have considered getting a second opinion to see if their treatment recommendations are similar?

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Hi Erika…there are many of us that also have MAC and bronchiectasis and get pseudo,and dialogue about it in this group….are you keeping in both groups then?

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@erikas

@rits You have pseudomonas and you are looking for treatment information.

You will notice that I moved your question, "Treatment for pseudomonas" into a discussion where members are already discussing this topic. I did this so you could more quickly connect in order to have your questions answered. I encourage you to scroll back through the comments to find previously shared suggestions as well.

May I ask if you have considered getting a second opinion to see if their treatment recommendations are similar?

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It took me forever to find this and I wondered and wondered why it wasn't posted so I'm glad that I finally found your post. I had to go into my profile to see if I actually wrote and posted or was losing my mind. Lol.

As I said I did search and found the previous replies but I didn't find them helpful or I wouldn't have posted. I know what the treatments are and I am fortunate to being able to be treated by a top expert in the field of lung organisms, Pamela McShane at Tyler, Tx. She got rid of my MAC in 2 months and we have an amazing rapport. My general pulmonogist at the U of Chicago defers to Dr McShane re bacteria. But thanks for the suggestion.

What I was looking for was input from other patients, e.g. Terri, who recently stopped treatment which she took for years due to side effects.

All is good. I will discuss it with Dr McShane in a few weeks and ask her why she doesn't want to treat immediately which is what she did with MAC.

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@megan123

@rits…I too have pseudomonas..I am on Colistin every other month nebulized..first line of treatment is usually Tobramyacin nebulized..Cipro and levaquiin are taken in pill form..my pseudo got worse..thick green sputum, and really starting to feel unwell..sometimes Dr’s will wait and watch..it’s a nasty bacteria…

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Thanks, Jennifer.

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@rits

I have pseudomonas again or still. I had it in 2019 but it disappeared while I was on Arikayce. However it's been back in my lungs again since this summer. My doctor said that we will discuss treating it when I have more and am sick. I don't know about having more because the results reports say that I have many. She has more details re exactly how much there is. My main symptom is copious amounts of mucus, 2-3x more than usual. I am
doing airway clearance 2x daily.

I have an appointment scheduled for the end of the month. My pseudomonas is susceptible to all the various antibiotics used for this bacteria.

Should I push for treatment? I know some of you have been treated for this bacteria and I did a search of the discussions but I really would appreciate an opinion as to whether I should start treatment. I would prefer an inhaled drug because my gut is still recovering from the MAC antibiotics that I stopped more than 6 months ago. I would be grateful for input from anyone who has been treated for pseudomonas.

Jump to this post

After a couple of bouts of pseudomonas and rounds of treatment, it seems to finally be quiet – I believe the 7% saline nebs are effective in limiting its growth as well as MAC, some early research observations seem to support this, especially in CF patients.
Anyone else have this result?
Sue

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Thanks for your response Sue. I am not very good at finding old discussions (this one began in Jan 2019) so it iots of work for me to find my post and check for replies. I appreciate you finding it and responding.

Until the Oregon study is completed, we won't know for sure if saline actually kills bacteria in the lung as opposed to in a petri dish. I believe they are recruiting so it's really at an early stage. My doctor, and others, have said that it is not a treatment for killing bacteria. However, clearing sputum out of airways is certainly beneficial.

I am very glad that you are doing well. I believe it's a year since you stopped the antibiotics?

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I believe the nigella sativa (Black Seed) may assist along with Hemp and palmitoylethanolamide

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@rits

Thanks for your response Sue. I am not very good at finding old discussions (this one began in Jan 2019) so it iots of work for me to find my post and check for replies. I appreciate you finding it and responding.

Until the Oregon study is completed, we won't know for sure if saline actually kills bacteria in the lung as opposed to in a petri dish. I believe they are recruiting so it's really at an early stage. My doctor, and others, have said that it is not a treatment for killing bacteria. However, clearing sputum out of airways is certainly beneficial.

I am very glad that you are doing well. I believe it's a year since you stopped the antibiotics?

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Yes, one year next week. Pulmonologist saw me this week and she is happy with the sound of my lungs and general progress, but laughed when I complained about lack of energy and told me that I am doing pretty well considering age and lungs. She suggested chasing toddlers might be the cause.
Sue

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@megan123

Hi Erika…there are many of us that also have MAC and bronchiectasis and get pseudo,and dialogue about it in this group….are you keeping in both groups then?

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@megan123 It sounds like this discussion would be helpful in both groups. Yes, due to your question I added it to both groups just now. Thank you for the question/suggestion.

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