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I have pseudomonas again or still. I had it in 2019 but it disappeared while I was on Arikayce. However it's been back in my lungs again since this summer. My doctor said that we will discuss treating it when I have more and am sick. I don't know about having more because the results reports say that I have many. She has more details re exactly how much there is. My main symptom is copious amounts of mucus, 2-3x more than usual. I am
doing airway clearance 2x daily.

I have an appointment scheduled for the end of the month. My pseudomonas is susceptible to all the various antibiotics used for this bacteria.

Should I push for treatment? I know some of you have been treated for this bacteria and I did a search of the discussions but I really would appreciate an opinion as to whether I should start treatment. I would prefer an inhaled drug because my gut is still recovering from the MAC antibiotics that I stopped more than 6 months ago. I would be grateful for input from anyone who has been treated for pseudomonas.

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Replies to "I have pseudomonas again or still. I had it in 2019 but it disappeared while I..."

@rits You have pseudomonas and you are looking for treatment information.

You will notice that I moved your question, "Treatment for pseudomonas" into a discussion where members are already discussing this topic. I did this so you could more quickly connect in order to have your questions answered. I encourage you to scroll back through the comments to find previously shared suggestions as well.

May I ask if you have considered getting a second opinion to see if their treatment recommendations are similar?

@rits…I too have pseudomonas..I am on Colistin every other month nebulized..first line of treatment is usually Tobramyacin nebulized..Cipro and levaquiin are taken in pill form..my pseudo got worse..thick green sputum, and really starting to feel unwell..sometimes Dr’s will wait and watch..it’s a nasty bacteria…

After a couple of bouts of pseudomonas and rounds of treatment, it seems to finally be quiet – I believe the 7% saline nebs are effective in limiting its growth as well as MAC, some early research observations seem to support this, especially in CF patients.
Anyone else have this result?