Cytomegalovirus Post Transplant - New Drug

Posted by estrada53 @estrada53, Jan 6 7:28pm

The FDA has approved the use of Maribavir (Livtencity) to treat episodes of post transplant CMV for recipients 12 and up. This is an important advance for those who do not respond to typical anti-virals.

"Transplant recipients are at a much greater risk for complications and death when faced with a cytomegalovirus infection," John Farley, MD, director of FDA's Office of Infectious Diseases, said in a statement. "Today's approval helps meet a significant unmet medical need by providing a treatment option for this patient population."

Interestingly, recipients interviewed in my research project identified CMV overwhelmingly as the one issue they wished doctors would have discussed more thoroughly. Even recipients who accepted Hep C + hearts considered CMV to produce more severe health problems.

Here is the link to the article I found.
https://www.medpagetoday.com/infectiousdisease/generalinfectiousdisease/95849

Interested in more discussions like this? Go to the Transplants group.

Good news, @estrada53. I think this may interest @luckonetj @danab and @hello1234

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@colleenyoung

Good news, @estrada53. I think this may interest @luckonetj @danab and @hello1234

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Thank you @colleenyoung for always looking out for us! I really appreciate all the work you do on our behalf. 😊

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@colleenyoung

Good news, @estrada53. I think this may interest @luckonetj @danab and @hello1234

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Interesting as you said for those who don't respond to the other treatments. For me tho the treatment I got 3 years ago now worked well and I haven't had a problem since. I find it interesting tho that it seems to affect some severely. For me I never had any symptoms and only found out thru testing. It's one of those areas that makes medicine probally frustrating as we all are different in how our bodies react to certain viruses and treatments. Thanks thou It'll keep it in mind as I talk with others.

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@danab

Interesting as you said for those who don't respond to the other treatments. For me tho the treatment I got 3 years ago now worked well and I haven't had a problem since. I find it interesting tho that it seems to affect some severely. For me I never had any symptoms and only found out thru testing. It's one of those areas that makes medicine probally frustrating as we all are different in how our bodies react to certain viruses and treatments. Thanks thou It'll keep it in mind as I talk with others.

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Thanks, Dana. Always good to hear your voice. Hope you are doing great!

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@estrada53

Thanks, Dana. Always good to hear your voice. Hope you are doing great!

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Yes doing.well, I had a bit of a cold but not covid at least tested twice both negative. Doing great now. Enjoying our nice weather and getting some walks in. Celebrating 4 years Jan 5th and I'll be up at Mayo the first and Second of Feb for my annuals . How are things with you?

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@danab

Yes doing.well, I had a bit of a cold but not covid at least tested twice both negative. Doing great now. Enjoying our nice weather and getting some walks in. Celebrating 4 years Jan 5th and I'll be up at Mayo the first and Second of Feb for my annuals . How are things with you?

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So glad to hear you are well.
I just returned from Mayo for my year 5 evals. Doing great as well.
Dana, check with yoir coordinator as your appointments draw nearer. I was unable to have my left heart cath today. The hospital and clinic are above capacity and the pre-op, post-op, radiology rooms are all now fitted as patient rooms.
They cancelled my eye procedure as well. This protocol will be in place until next Friday but they are pushing back on all scheduled appointments and if the surge does not ebb, the cancellations will continue.
Stay healthy and God bless.

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@danab

Yes doing.well, I had a bit of a cold but not covid at least tested twice both negative. Doing great now. Enjoying our nice weather and getting some walks in. Celebrating 4 years Jan 5th and I'll be up at Mayo the first and Second of Feb for my annuals . How are things with you?

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Congratulations 🍾🎉🎈on your four year anniversary, Dana! I’ve been sick too…thankfully tested negative as well. The stress of fearing I had Covid certainly hasn’t helped the healing process! Enjoy your warm weather, -3F here tonight!

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@estrada53

So glad to hear you are well.
I just returned from Mayo for my year 5 evals. Doing great as well.
Dana, check with yoir coordinator as your appointments draw nearer. I was unable to have my left heart cath today. The hospital and clinic are above capacity and the pre-op, post-op, radiology rooms are all now fitted as patient rooms.
They cancelled my eye procedure as well. This protocol will be in place until next Friday but they are pushing back on all scheduled appointments and if the surge does not ebb, the cancellations will continue.
Stay healthy and God bless.

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Happy Five Years! A great milestone! Glad you’re doing well. Sorry to hear though that Covid is once again disrupting your treatments.

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@athenalee

Congratulations 🍾🎉🎈on your four year anniversary, Dana! I’ve been sick too…thankfully tested negative as well. The stress of fearing I had Covid certainly hasn’t helped the healing process! Enjoy your warm weather, -3F here tonight!

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Thanks

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