COPD and Emphysema: Confused by pulmonary function test and more

Posted by redsox @redsox, May 29, 2018

Confused by PFT. So much to absorb ! What are the treatments for Mild, Moderate and Severe ?

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@colleenyoung

It doesn’t hurt to get the diagnosis confirmed or ruled out by a pulmonologist in my opinion.

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I agree, Colleen. Thank you for confirming my feelings.

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@rogereddy

What kind of stuff do you volunteer for at the Mayo Clinic do they have stem cell research I have confessed, very bad I just want to live very badly I'm open to qualify for the Zephyr valve but I'm not sure if that's going to even happen

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Hi. First time posting. If you qualify for the zephyr valves I would recommend at least to try. It has made a world of difference in my quality of life.

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@susiecue

Hi. First time posting. If you qualify for the zephyr valves I would recommend at least to try. It has made a world of difference in my quality of life.

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Just make sure zephyr valves will help your condition. I was looking into them in a clinical trial, but got turned down. My Dr. said he was sorta glad because he didn't think they would help.

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@colleenyoung

Hi @rogereddy, welcome to the Lung Health group.

Regenerative medicine (stem cell therapy) for COPD is still in the research phase. Do use caution about promises made by some clinics.

To help people learn more about the proven therapies and the promise of developing therapies, Mayo Clinic offers a free telephone consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

You can read more in this discussion:
– Stem Cells / Regeneration https://connect.mayoclinic.org/discussion/stem-cells-regeneration/

You mentioned that you are open to considering the Zephyr valve. Is this a treatment option available to you?

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Hi I called an scheduled a call with a consultant for next week thank you for the information,
Just curious has anyone Had the Zephyr Valve treatment in Scottsdale Az? If so could you recomnend having it done?

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@sallyg47

Hi I called an scheduled a call with a consultant for next week thank you for the information,
Just curious has anyone Had the Zephyr Valve treatment in Scottsdale Az? If so could you recomnend having it done?

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That's great, Sally.
Regarding your request for information and experiences about the Zephyr valve, see these related discussions:
- Has anyone tried Yupelri or Zephyr implant? https://connect.mayoclinic.org/discussion/has-anyone-tried-yupelri-nebulizer-or-zephyr-valve/
- Anyone had Zephyr Valve Procedure at Mayo Clinic? https://connect.mayoclinic.org/discussion/zephyr-valve-procedure-at-mayo-jacksonville-andor-scottsdale/

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Although it is intended to alleviate some symptoms, I would not classify saline solution as a drug.
I use it twice a day to relieve nasal congestion. For my asthma, I utilize a nebulizer that contains prescribed medication as well as a rescue inhaler.
I don't advocate seeing a pharmacist for dose recommendations, etc. They are excellent for detecting drug interactions, among other things. Doctors and pharmacists both play important roles in medical treatment.

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@waterboy

Red, one thing you should is get checked for Alpha 1, it can be FREE and it is a simple finger poke. Go to http://www.alpha1.net

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What is Alpha 1 test for?

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@waterboy

There is a new treatment. FDA approved, ZEPHYR VALVES... GOOGLE IT. The procedure places one way, exhale, in damaged lung making it resembling lung volume reduction surgery without surgical intervention. It will require about 5 days in the hospital.

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Had Zephyr valves inserted & it made a world of difference! Also keep in mind that the FDA has put Dupixent on the priority for approval for COPD! That is one incredible drug!

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@merpreb

@waterboy- Good morning- This has been on the market for about 8 months. I'm not sure how beneficial this has been or how many people it's been used on. It is for sever emphysema. There are a lot of contraindications but I couldn't find how well it is doing. Any idea what the cost has been?

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Seriously consider valves, do your research & find the best institution that has been involved in trial studies & had many years of proven success!

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@maggie1955

What is Alpha 1 test for?

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Alpha test is to determine whether your COPD is caused by an hereditary gene or in most causes caused by more than likely years of smoking

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