Mayo Clinic Connect
Still looking for stem cell treatment for Idiopathic Pulmonary Fibrosis. Is anyone aware of a sucessful treatment program?
I have a phone number of a man who claims he has the answer his name is mason, 612-808-8782 hope this helps, advise if he is right so others can use this information. thank you good luck. I also have copd.
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Thanks! I will.check.lt out
I realize that I have posted this information elsewhere in the Lung Health group, but it bears repeating for newcomers.
It can be a challenge to tell which stem cell therapies and regenerative medicine practices are effective and which institutions are offering evidence-based proven therapies. In fact, recently the Food and Drug Administration (FDA) released a stern warning against unproven stem cell therapies. The FDA issued these two press statements: https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573427.htm and https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573431.htm.
Lung Regeneration is a focus area of study at Mayo Clinic. Regenerative medicine has the potential to provide innovative new therapies for people with lung diseases, including chronic obstructive pulmonary disease (COPD), pulmonary fibrosis, cystic fibrosis, pulmonary arterial hypertension and bronchiolitis obliterans. Researchers have only recently moved from animal models and Mayo Clinic investigators are now attempting to recellularize human lungs. It is still very early days. You can read more here: https://www.mayo.edu/research/centers-programs/center-regenerative-medicine/focus-areas/lung-regeneration
To find legitimate information about stem cell therapy for lung conditions and available clinical trials, anyone can call Mayo Clinic's Regenerative Medicine free telephone consult service. When you call, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.
Liked by Kanaaz Pereira, Connect Moderator, Jennifer Hunter
Do let us know what you find out, @wba3721
Have you found any info on Stemcell treatment of COPD???
no I haven't
@joangma and @cchristoph :This is the latest that I have found: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6190524/ https://newsnetwork.mayoclinic.org/discussion/new-mayo-clinic-gene-guide-dna-testing-application-provides-genetic-testing-insights-backed-by-mayo-clinic-expertise/ If you want to research things like this go to NIH (national institute of health) and research the latest findings. https://www.ncbi.nlm.nih.gov/
So far this procedure is only in a few hospitals and it might not be covered by insurance.
Hi Colleen, I am in search of information related to stem cell therapy for a family member who is not responding to traditional treatment for pulmonary fibrosis. She was on a path to obtain a lung transplant, but needed to get stronger first and that no longer appears to be an option. We feel that she must get immediate help. Unfortunately when I called the number you provided I got the run around and then was transferred to a new appointment specialist who told me they could not really provide much information without getting the patients insurance card, but she told me it likely would be about 3 months to be seen. We don’t have that time. I was hoping I could speak directly to a physician or patient advocate, rather than a clerical person who had limited information. Any additional help you can provide would be very much appreciated. Thanks!
Hi @lgeherin, welcome to Connect. I'm sorry that you didn't get the answers you were hoping for when you called the Regenerative Medicine department at Mayo Clinic. Unfortunately, stem cell treatments for lung regeneration are still in the research phase and not yet available as a proven treatment. It is only recently that research results have shown enough promise to move from animal studies to phase I human trials. Here is a list of open (currently accepting patients) trials for lung regeneration at Mayo Clinic.
– A Study to Evaluate the Safety and Feasibility of Stem Cells in the Treatment of Advanced Chronic Obstructive Pulmonary Disease https://www.mayo.edu/research/clinical-trials/cls-20467297
– Mesenchymal Stem Cell Therapy for Lung Rejection https://www.mayo.edu/research/centers-programs/center-regenerative-medicine/focus-areas/lung-regeneration
See all here: https://www.mayo.edu/research/clinical-trials/search-results?keyword=&studySiteStatusesGrouped=&pocId=ORG-00111429&cItems=10#0c1d955fe5494ae68c25c6f1aad733c4
I know that is not the information you were looking for. But that is what I know right now. I will do a bit more digging.
Thanks very much Colleen for your prompt reply. This information is helpful.
Liked by Colleen Young, Connect Director, Merry, Volunteer Mentor
Hello @lgeherin. I work in the Regenerative Medicine Consult Service here at Mayo Clinic. I'm not sure who you spoke with, but I apologize for the confusion. I am happy to call you so we can discuss your family member. As Colleen mentioned, we are still in the research phases as it pertains to regenerative medicine and the lungs. What is the best way to get in touch with you?
Hi Charlene, thank you so much for your help, I really appreciate it. I would love to speak with you more in depth about options for my aunt. I have sent you my contact information by private message. Thanks again!
Okay, I will try and give you a call between the times you listed.
There is a place Lung Health Institute that according to their website uses stem cell Cellular (PRP-PC) for COPD lung rejuvenation. Legit? I feel like I need to try something before it gets worse, my current doctors say there is nothing else they can do to improve my breathing.
Im 56 have been diagnosed with moderate COPD after spending two years in Afghanistan and bypass heart surgery. Prior to all of this I was very active. Unfortunately i do have a PAST history of tobacco use, but have been quit for 2 years now (with no improvement).
Liked by Merry, Volunteer Mentor
It's a scam, cost $10,000.00 and not covered by insurance. No refunds.
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