Zephyr Valve Procedure at Mayo Jacksonville and/or Scottsdale.

Posted by djallan @djallan, Jul 20, 2019

Is anyone willing to share their experience with Zephyr Valves at either Jacksonville or Scottsdale. I am stage 4 COPD and am very interested in this new procedure. Which Mayo has more experience? How many have they done at each location? What has been the improvement to quality of life? Is it worth doing?

Liked by fracturedd

I had a couple placed in my left lung to help heal a pneumonthorax. It plugged my lung up! The valves were removed 3 weeks later once I healed. The procedure was fine, however,, I did have lung inflammation and pain after the valves were placed. The hospital I was at said they only have used the valves on 10 people in the us. This was 4 years ago. I have no pain today.

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Fracturedd I had Zephyr Valves placed in June in Chicago. Only the bigger Hospitals are doing this and they have years of experience with all sorts of valves. It's painless and I had no problems at all. I can do things now that I couldn't do for a few years. I highly recommend the procedure to everyone.

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@carolannz

Fracturedd I had Zephyr Valves placed in June in Chicago. Only the bigger Hospitals are doing this and they have years of experience with all sorts of valves. It's painless and I had no problems at all. I can do things now that I couldn't do for a few years. I highly recommend the procedure to everyone.

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I had it done at northwestern in Chicago!! Dr. Galespi!

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My 82 year old dad has severe COPD. Has anyone heard of this procedure (endoscopic lung volume reduction)?

See this story about it from Mayo’s In the Loop

Mayo Clinic Offers New Hope to Patients With COPD

 

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Hi @danaj60, welcome to Mayo Clinic Connect. You'll notice that I replaced the copied article with a link to the In The Loop blog. I also moved your post to this existing discussion so that you connect with members like @djallan @carolannz and @fracuredd who live with obstructive pulmonary disease (COPD) and may have had endoscopic lung volume reduction, sometimes also referred to as Zephr valve (one manufacturer).

This procedure, which recently was approved by the Food and Drug Administration (FDA), treats patients experiencing disorders associated with chronic COPD, including advanced emphysema and chronic bronchitis. Only a few medical centers nationwide offer this treatment.

You may also appreciate this Mayo Clinic Radio segment on ELVR

Dana, is your father a candidate for this procedure? Is he already a patient at Mayo Clinic?

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@ethanmcconkey

Hi @danaj60, welcome to Mayo Clinic Connect. You'll notice that I replaced the copied article with a link to the In The Loop blog. I also moved your post to this existing discussion so that you connect with members like @djallan @carolannz and @fracuredd who live with obstructive pulmonary disease (COPD) and may have had endoscopic lung volume reduction, sometimes also referred to as Zephr valve (one manufacturer).

This procedure, which recently was approved by the Food and Drug Administration (FDA), treats patients experiencing disorders associated with chronic COPD, including advanced emphysema and chronic bronchitis. Only a few medical centers nationwide offer this treatment.

You may also appreciate this Mayo Clinic Radio segment on ELVR

Dana, is your father a candidate for this procedure? Is he already a patient at Mayo Clinic?

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Thank you for linking and moving my question. I’m new at this. My dad is not currently a Mayo patient (I am though 😎). How do I know if he is a candidate for the procedure? Is there a checklist?

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@danaj60

Thank you for linking and moving my question. I’m new at this. My dad is not currently a Mayo patient (I am though 😎). How do I know if he is a candidate for the procedure? Is there a checklist?

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Contact Dr. Bussy at Mayo Jacksonville or Dr. Swanson at Mayo Phoenix I have deal with both on valves and both are great.

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I’m in MN.

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@ethanmcconkey

Hi @danaj60, welcome to Mayo Clinic Connect. You'll notice that I replaced the copied article with a link to the In The Loop blog. I also moved your post to this existing discussion so that you connect with members like @djallan @carolannz and @fracuredd who live with obstructive pulmonary disease (COPD) and may have had endoscopic lung volume reduction, sometimes also referred to as Zephr valve (one manufacturer).

This procedure, which recently was approved by the Food and Drug Administration (FDA), treats patients experiencing disorders associated with chronic COPD, including advanced emphysema and chronic bronchitis. Only a few medical centers nationwide offer this treatment.

You may also appreciate this Mayo Clinic Radio segment on ELVR

Dana, is your father a candidate for this procedure? Is he already a patient at Mayo Clinic?

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@ethanmcconkey– This is such a wonderful explanation of COPD. I think that I can also post this so that other people can appreciate the workings of a healthy and damaged lung. Thank you for posting this!

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@fracturedd

I had it done at northwestern in Chicago!! Dr. Galespi!

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Were you able walk any distance and did you still take inhalers,oxygen,nebulizer after the valves

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Am I a candidate For Zephyr when my COPD is causing Pulmonary
Hypertension, Severe exercise intolerance, arrhythmia, and Heart Failure/remodeling?

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@newota10

Am I a candidate For Zephyr when my COPD is causing Pulmonary
Hypertension, Severe exercise intolerance, arrhythmia, and Heart Failure/remodeling?

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Hello @newota10 and welcome to Mayo Clinic Connect! I can see you have several complications from your COPD leading you to wonder if you would be a candidate for Zephyr.

Because this community is made up of patients and members, we aren't able to give medical advice, but are here for one another to share personal experiences that can support you in your healthcare journey. There have been a couple of members such as @fracturedd and @carolannz who have mentioned Zephyr valves earlier in this discussion so would like to connect you to them as they may be able to provide some initial insight.

Have you explored this question with your PCP yet?

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@newota10

Am I a candidate For Zephyr when my COPD is causing Pulmonary
Hypertension, Severe exercise intolerance, arrhythmia, and Heart Failure/remodeling?

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@newota10 – I'd also like to welcome you to Mayo Clinic Connect. Zephyr Valves have helped a lot of people who have shortness of breath and other complications from COPD including Pulmonary Hypertension. (https://www.ccjm.org/content/87/5/278). It is a procedure and not surgery like the lung volume reduction surgery which is used to improve breathing in some people with severe emphysema, a type of chronic obstructive pulmonary disease (COPD). During surgery, small wedges of damaged lung tissue are removed to allow the remaining tissue to function better. After surgery, people often have less shortness of breath, have a better quality of life, and are better able to exercise.
https://www.mayoclinic.org/tests-procedures/lung-volume-reduction-surgery/about/pac-20385045
Zephyr Valve procedure is when small valves are placed and used to close off damaged parts of your lungs. This is used for extreme cases of COPD which includes emphysema and dyspnea among a few. It sounds as if this procedure would be a definite conversation to have with your pulmonologist, as suggested by Amanda.

Some people can not have this done because of infections or allergies to the valves.

Are you finding that your breathing has gotten worse or that your inhalers and other medicines aren't working as well?

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@merpreb

@newota10 – I'd also like to welcome you to Mayo Clinic Connect. Zephyr Valves have helped a lot of people who have shortness of breath and other complications from COPD including Pulmonary Hypertension. (https://www.ccjm.org/content/87/5/278). It is a procedure and not surgery like the lung volume reduction surgery which is used to improve breathing in some people with severe emphysema, a type of chronic obstructive pulmonary disease (COPD). During surgery, small wedges of damaged lung tissue are removed to allow the remaining tissue to function better. After surgery, people often have less shortness of breath, have a better quality of life, and are better able to exercise.
https://www.mayoclinic.org/tests-procedures/lung-volume-reduction-surgery/about/pac-20385045
Zephyr Valve procedure is when small valves are placed and used to close off damaged parts of your lungs. This is used for extreme cases of COPD which includes emphysema and dyspnea among a few. It sounds as if this procedure would be a definite conversation to have with your pulmonologist, as suggested by Amanda.

Some people can not have this done because of infections or allergies to the valves.

Are you finding that your breathing has gotten worse or that your inhalers and other medicines aren't working as well?

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Yes my SOB is worse. So is my exercise intolerance. I am exploring Alternatives to medications. Not on any PAH medications yet. Who are Scottsdale pulmonologists to consult?

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@newota10 – It's pretty scary when your breathing isn't sufficient. Why are you exploring alternative medications when you haven't finished exploring what is true and tried within acceptable medical practices?

I think that Scottsdale pulmonologists are at Mayo Clinic in AZ.

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