Confused about Stiff Heart, Diastolic Heart Failure, or HFpEF?
Nearly half of all patients with heart failure have a normal EF or ejection fraction. EF is a percentage of how much blood the left ventricle pumps out with each contraction. Why is that?
To get some answers, and with Valentine’s Day just around the corner (what better way to celebrate than by learning about your heart), we sat down with Mayo Clinic cardiologist and heart failure specialist, Dr. Farris Timimi. In this video, Dr. Timimi explains the phenomenon of heart failure with preserved ejection fraction or HFpEF.
Do you have heart failure with preserved ejection fraction (sometimes called Stiff Heart or Diastolic Heart Failure)? What limitations have you experienced with a HFpEF diagnosis? What has helped you?
Interested in more discussions like this? Go to the Heart & Blood Health Support Group.
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Mary,
Have you had an Echocardiogram yet? I'm sure you have. Take care and best to you.
Jim
@karukgirl Its nice to see someone else who is taking advantage of AI for research on HFpEF. It has only been a few months since my diagnosis. A few things stick out to me. 1. Activity is critical but the right amount varies day to day. A little too much is better than too little. 2. Small meals are better. Eating what used to be a normal sized meal makes it harder to breathe. 3. Jardiance made a big difference initially but doesn’t seem to be as effective as it initially was.
Thank you for your reply, @altilla
You must be still processing this whole business since your recent diagnosis.
Your observations are spot on! I like how you are listening to your body and acting accordingly and you are not letting this stop you from being as active as you can. I think that is so crucial to maintaining your health...and almost more importantly your mental health! I love to hike and walk, and when HCM took that from me I was so depressed.
Eating smaller meals is the same for HCM folks as well...and I seem to have a learning impairment! Because even though I know that, on occasions like Thanksgiving I forget about portion control and suffer. Not so smart!
I'm glad to hear the Jardiance helped. Now that you are noticing a decrease in effectiveness, are you going to bring this up to your doctor?
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1 Reaction@karukgirl Yes. We have mapped out a way forward. Plans are still in the works but should have next steps clearly in place soon.
I was diagnosed with diastolic dysfunction/ heart failure over 10 years ago. I saw my cardiologist for regular visits for several years. Realized last year I hadn’t been there for quite a while when visiting my PCP. He ordered an echocardiogram and suggested I schedule with my cardiologist. The echocardiogram showed stage 2 heart failure and some fluid. When I visited my cardiologist he prescribed Farxiga and Kerendia. The Kerendia is a new drug that my cardiologist was part of the clinical trial for. The Kerendia is expensive but lowered my heart failure from level two to level one in 10 months.
Just letting everyone on this post thread know.
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