Chronic pain and other joint issues: Looking for answers

Posted by fletch312 @fletch312, Jun 5 6:35pm

Hi I’m in Canada looking To come to mayo.

Pain in hand radiates up arm. Starts in hand. It feels like a throbbing and feels like she can feel blood throbbing.

Can bend joints in hand. Can bend wrist without pain.

When press on fingers lower part it hurts. Pain in palm of hand.

Vacuuming then pain from holding vacuum. Maybe vibration.

Scrubbing definitely makes it worse.
Hands dont tend to cramp
Definite stiffness. Always feel need. To stretch hands

Pain in feet and legs are different than in hands.

Calves get Charlie horse cramping that you can visibly see. Muscle spasms.

Calves always feel tight.

Bottom of feet cramp spasm in bottom of feet and toes will cramp sometimes.

Stiffness from knees down.
Stiffness in morning or periods of being still.

Legs can be triggered by the wrong movements.

Pain is symmetric and little swelling. Recently have had some swelling in the hands

Had these symptoms for 4/12years. Have had pain all the time but it has gone in cycles. This time it has stayed. Started with getting very sick and was put on antibiotics. Never been the same since.

No shooting pain

Swelling very infrequent

Knees stiff.

Grey area symptoms may be related

Chronic anemia
Brain fog
Fatigue in cycles with the pain
Fatigue then get headaches
Definite cognitive impairment
Brain does not work the way it used to.
Heart palpitations

Doctors have done a lot of tests and have come up with nothing.

Thanks for any input

Interested in more discussions like this? Go to the Bones, Joints & Muscles group.

@rwinney

Hello and welcome to Connect, @maz25. Congratulations on withdrawing from all opiate medication! It sounds like you've given many treatments a good try for your constant pain. I'm sorry to know that you're struggling, and understand the discouragement, frustration and exhaustion that comes along with searching for help. Like you, I ran into a road block with chronic pain after a few years of medical interventions that failed. It wasn't until I realized that things will continue to stay the same unless I decided to make changes.

My thoughts are to think outside of the traditional medical world box of all the things you mention that did not help you and consider seeking help through lifestyle changes and implementing a more holistic approach. Have you ever tried a pain rehabilitation program that helps build function over feelings through physical activity, teaches moderation and modification, counsels on stress-management, self-care, cognitive behavioral therapy, nutrition and sleep hygiene?

This way may not be for everyone and takes a great deal of personal growth and work, but can pay off by putting you in control of managing and living with chronic symptoms. What do you think? Any thoughts on this type of pain management?

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I’ve never heard of this. Where would I find such a place? I’ll Google it if you can tell me what to Google!

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@anne4u

You are not alone in your struggle to get pain relief! I totally understand your frustration! If a doctor put something in your medical record that isn’t correct, you should do what you can to fight it! I know how overwhelming that can be when dealing with pain, stress and confusion! I have chronic pain from different sources, fibromyalgia, back problems, etc. and have been forced to find a new pain doctor after the DEA revoked my last pain doctors license to prescribe pain medication. Because of government interference in pain medication dosage prescribing, pain doctors are restricting pain medication out of fear of action by the CDC and DEA. Many pain doctors are losing their licenses and simply leaving the profession because of these issues. The doctors that remain, are either restricting dosage or not prescribing opiates. I’m caught up in that issue myself right now. Because of my on going challenges finding the dosage I was taking, I’m tapering off my pain medication now and have found a doctor who is aggressively treating my back problems. I will be starting a new med for withdrawal from opioids on Friday. They have become so hard to get, I’ve agreed to go this route as long as my pain is addressed and treated after years of neglect.
I would look into your options about filing a complaint about the doctor who put incorrect information in your records. If you do an internet search for ‘complain about doctor care’ you will see information with resources. You can talk to the department of health or the medical board. You don’t have to file a law suit. Depending on the accusation that was made, you maybe able to get advice from legal services for free on how to proceed. If your doctor has no proof of what they accused you of and it’s affecting treatment, I would start with a letter to the doctor asking them to remove the information from your medical record. Explain what your intentions are for treatment of your pain, and that his accusation is unfounded and incorrect. What proof does he have? Tell them you want your letter placed in your medical records.
I’m so sorry your going through this. As with any profession, there are bad doctors. I’ve seen a couple myself. Don’t give up looking for help! Be your own best advocate! I’ve had to convince doctors I’m not seeking medication but adequate treatment! Most doctors want to get to know you and diagnose your symptoms before prescribing these days. Unfortunately, our government has made doctors responsible for patients becoming addicts. Since they can’t get control of illegal drugs, they’ve come after pain patients!
Don’t let this doctor detour your pursuit for treatment! I would look into what my options might be about getting my records changed, especially if the information is incorrect!

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@anne4u, pain, stress and medications cause a loss of magnesium possibly creating a deficiency. This impacts thiamine and vitamin D as both require magnesium to become bioactive. Vitamin B2 along with activated thiamine are needed to activate vitamin B6. The B vitamins work better together. The first two links offer the effects of B vitamins on conditions similar to some you have mentioned. The ncbi link reviews the fifth element…boron, which often goes unnoticed, yet brings an enormous number of benefits to the table. A Youtube video by Dr. Jorge Flechas MD on boron is riveting. The krispin link is offers additional magnesium information. Always consult your health care professional before using any supplement.
https://www.dsm.com/pharma/en/news/dsm-pharma-blog/back-to-basics-the-impact-of-b-vitamins-on-low-back-pain.html
https://www.healthrising.org/blog/2013/07/19/the-high-dose-b-1-thiamine-supplementation-survey-fibromyalgia-chronic-fatigue-syndrome/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/
https://www.krispin.com/magnes.html

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@maz25

I have already withdrew from all opioid meds. I have Complex Regional Pain Syndrome due to nerve damage from a severely broken and shattered ankle in 2013, I have been to 4 different pain management Dr's who either prescribed looks meds or Med. Cannabis ( none of which helped me since I was falling down and injuring other body parts.) I also had a Spinal cord stimulator implant& removal since it did not provide adequate relief from my constant pain.I also been told I have fibromyalgia and psoriatic arthritis as well.I tried acupuncture and the person treating was afraid to place any needles any where near my Rt. ankle. I don' t know where else to seek relief from my constant pain. Any thoughts would be appreciated.

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I’m going through so much right now between withdrawal and pain, my head is spinning from researching options for relief. I do a lot of natural methods to assist with it all and to help cope, but bad days are difficult nonetheless!
I just heard about Kratom tea. I’ve talked to other pain patients who are going through similar circumstances as me and say it helps. I plan to do my own research about it. Everyone is different and one thing I’ve learned is that what works for one person may not for another. It maybe mentioned here somewhere, I haven’t looked yet.

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@onamission

@anne4u, pain, stress and medications cause a loss of magnesium possibly creating a deficiency. This impacts thiamine and vitamin D as both require magnesium to become bioactive. Vitamin B2 along with activated thiamine are needed to activate vitamin B6. The B vitamins work better together. The first two links offer the effects of B vitamins on conditions similar to some you have mentioned. The ncbi link reviews the fifth element…boron, which often goes unnoticed, yet brings an enormous number of benefits to the table. A Youtube video by Dr. Jorge Flechas MD on boron is riveting. The krispin link is offers additional magnesium information. Always consult your health care professional before using any supplement.
https://www.dsm.com/pharma/en/news/dsm-pharma-blog/back-to-basics-the-impact-of-b-vitamins-on-low-back-pain.html
https://www.healthrising.org/blog/2013/07/19/the-high-dose-b-1-thiamine-supplementation-survey-fibromyalgia-chronic-fatigue-syndrome/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/
https://www.krispin.com/magnes.html

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Thank you for this information! I have read about these important supplements and the balance between them. I do take some supplements now, but am always interested in staying current on findings and what will help maintain what my body needs to be healthy. I try to do as much as possible with diet, etc. Medication is a concern as they all have a trade off, some side effect! Ideally I would prefer to be off of them! That’s the goal!

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@anne4u

I’m going through so much right now between withdrawal and pain, my head is spinning from researching options for relief. I do a lot of natural methods to assist with it all and to help cope, but bad days are difficult nonetheless!
I just heard about Kratom tea. I’ve talked to other pain patients who are going through similar circumstances as me and say it helps. I plan to do my own research about it. Everyone is different and one thing I’ve learned is that what works for one person may not for another. It maybe mentioned here somewhere, I haven’t looked yet.

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Anne – I read your story hear, and am sorry you suffer from ongoing, unrelieved pain. You are absolutely right to say you do your own research – these might help. And just to be clear, Kratom is unregulated, so you might not know what exactly you are buying, and it too can be addicitve or lead to dependency.
Here is information from Mayo Clinics about Kratom:
https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-20402171
And here is what Cleveland Clinic says about using Kratom to withdraw from other opioids:
https://health.clevelandclinic.org/what-is-kratom/
What have you found?
Sue

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@onamission

@anne4u, pain, stress and medications cause a loss of magnesium possibly creating a deficiency. This impacts thiamine and vitamin D as both require magnesium to become bioactive. Vitamin B2 along with activated thiamine are needed to activate vitamin B6. The B vitamins work better together. The first two links offer the effects of B vitamins on conditions similar to some you have mentioned. The ncbi link reviews the fifth element…boron, which often goes unnoticed, yet brings an enormous number of benefits to the table. A Youtube video by Dr. Jorge Flechas MD on boron is riveting. The krispin link is offers additional magnesium information. Always consult your health care professional before using any supplement.
https://www.dsm.com/pharma/en/news/dsm-pharma-blog/back-to-basics-the-impact-of-b-vitamins-on-low-back-pain.html
https://www.healthrising.org/blog/2013/07/19/the-high-dose-b-1-thiamine-supplementation-survey-fibromyalgia-chronic-fatigue-syndrome/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/
https://www.krispin.com/magnes.html

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Thank you for the information at this point I'm willing to try anything.

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@rwinney

Hello and welcome to Connect, @maz25. Congratulations on withdrawing from all opiate medication! It sounds like you've given many treatments a good try for your constant pain. I'm sorry to know that you're struggling, and understand the discouragement, frustration and exhaustion that comes along with searching for help. Like you, I ran into a road block with chronic pain after a few years of medical interventions that failed. It wasn't until I realized that things will continue to stay the same unless I decided to make changes.

My thoughts are to think outside of the traditional medical world box of all the things you mention that did not help you and consider seeking help through lifestyle changes and implementing a more holistic approach. Have you ever tried a pain rehabilitation program that helps build function over feelings through physical activity, teaches moderation and modification, counsels on stress-management, self-care, cognitive behavioral therapy, nutrition and sleep hygiene?

This way may not be for everyone and takes a great deal of personal growth and work, but can pay off by putting you in control of managing and living with chronic symptoms. What do you think? Any thoughts on this type of pain management?

Jump to this post

Thank you for you thoughts Sandy I have given up on Medical Dr's who seem to look at me as if I am a "Hot potatoe" and can't hand me off fast enough and say "well you have Complex Regional Pain Syndrome"

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@sandysurf

Thank you so much for your comments. I’m in the process of getting a release for my records. I’m just so worn out because it’s the only thing I can think of and this pain is unbearable. It’s just unthinkable that so many doctors will believe some other doctor they don’t even know instead of the patient sitting in front of them in obvious pain. My insurance is paying them, they act like I’m taking up time they could be using for “important” patients. Unfortunately, what he accused me of was in my urine, and I have no idea how. Morphine showed up. I did not, nor do I know where to get morphine! I may be old, but I’m not stupid. Everybody who walks into a pain clinic has to immediately pee in a cup. How stupid would someone have to be to take something not prescribed. I’ll go to my grave defending myself. To who? I don’t know. Doctors don’t believe me, anyway. It’s not medical malpractice, so an attorney won’t touch it. I just feel so alone.

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Do you have, or can you get a copy of the results of that drug test? I can go on my doctors website through a patient portal and look at lab results, even print them if I want to. I would get a copy of that lab report. Then have another doctor like your primary take a look at it. There is a reason morphine showed up on your test. Find out what would cause this result. Mix up at the lab? Did you eat a poppy seed bagel before your test? Obviously it’s up to you, but there is a reason you have that result. So sorry for you! Are you able to find ways to relax at all?

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@sueinmn

Anne – I read your story hear, and am sorry you suffer from ongoing, unrelieved pain. You are absolutely right to say you do your own research – these might help. And just to be clear, Kratom is unregulated, so you might not know what exactly you are buying, and it too can be addicitve or lead to dependency.
Here is information from Mayo Clinics about Kratom:
https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-20402171
And here is what Cleveland Clinic says about using Kratom to withdraw from other opioids:
https://health.clevelandclinic.org/what-is-kratom/
What have you found?
Sue

Jump to this post

My goal is to get off all meds for pain! One step at a time. Instead of being weened I was recently abruptly cut off opioid medication. That sent me into withdrawal and my pain skyrocketed. I’m doing okay with the withdrawal symptoms, but not the pain from back problems! I’m interested in some treatments because I’ve never had anything done for nerve compression, ddd, disks, spine, etc. My back is a mess. I don’t expect miracles but would like to see if minimally invasive options might help, to get me moving more right now. Then I want to start swim therapy.
I have an inversion table that helps a lot. I do meditation and light exercise, stretching, etc. I’m taking a tincture for withdrawal that’s been very helpful for muscle spasms. I’m pretty good with distractions and keeping my spirts up. I see a therapist and am being treated for depression. It’s been part of my ‘self care’ to practice gratitude daily! As I say on occasion, “life’s in session” and I know my attitude matters!
I’m very careful and do my homework before I try anything! There is so much out there that is dangerous and/or smoke and mirrors, not to mention expensive!
I’ll definitely read the information you provided! Thanks

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@anne4u

My goal is to get off all meds for pain! One step at a time. Instead of being weened I was recently abruptly cut off opioid medication. That sent me into withdrawal and my pain skyrocketed. I’m doing okay with the withdrawal symptoms, but not the pain from back problems! I’m interested in some treatments because I’ve never had anything done for nerve compression, ddd, disks, spine, etc. My back is a mess. I don’t expect miracles but would like to see if minimally invasive options might help, to get me moving more right now. Then I want to start swim therapy.
I have an inversion table that helps a lot. I do meditation and light exercise, stretching, etc. I’m taking a tincture for withdrawal that’s been very helpful for muscle spasms. I’m pretty good with distractions and keeping my spirts up. I see a therapist and am being treated for depression. It’s been part of my ‘self care’ to practice gratitude daily! As I say on occasion, “life’s in session” and I know my attitude matters!
I’m very careful and do my homework before I try anything! There is so much out there that is dangerous and/or smoke and mirrors, not to mention expensive!
I’ll definitely read the information you provided! Thanks

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Two things I recommend-
Therapy (PT) in a warm water pool. It has amazing results.
A book called “Managing Your Pain Before it Manages You”. Available on Amazon. Both have helped me tremendously. Good luck!

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I agree with p.t. in warm water ! I also recently started on cbd oil gummies. They are amazing for my pain and uplifted in my spirits. I differ from major depression and have had 3 back surgeries, 1neck surgery,have an artificial hip and born with connective tissue disorder called Ehlers Danlos. I have not taken one pain pill since started these. Doctor also put me on an antiinflammatory diet. My days have been much more productive and just an ache once in awhile. I have been on pain meds all my life. This is first time in 48 yrs I have been off them. Good luck to you ! Hope you find what works for you.

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@macrdo

I agree with p.t. in warm water ! I also recently started on cbd oil gummies. They are amazing for my pain and uplifted in my spirits. I differ from major depression and have had 3 back surgeries, 1neck surgery,have an artificial hip and born with connective tissue disorder called Ehlers Danlos. I have not taken one pain pill since started these. Doctor also put me on an antiinflammatory diet. My days have been much more productive and just an ache once in awhile. I have been on pain meds all my life. This is first time in 48 yrs I have been off them. Good luck to you ! Hope you find what works for you.

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Welcome @macrdo, I can't imagine how good that feels to be off your pain meds after 48 years of taking them. Thanks for sharing what has helped you. Do you mind sharing what you were looking for when you found Connect?

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