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Chronic pain and other joint issues: Looking for answers
Hi I’m in Canada looking To come to mayo.
Pain in hand radiates up arm. Starts in hand. It feels like a throbbing and feels like she can feel blood throbbing.
Can bend joints in hand. Can bend wrist without pain.
When press on fingers lower part it hurts. Pain in palm of hand.
Vacuuming then pain from holding vacuum. Maybe vibration.
Scrubbing definitely makes it worse.
Hands dont tend to cramp
Definite stiffness. Always feel need. To stretch hands
Pain in feet and legs are different than in hands.
Calves get Charlie horse cramping that you can visibly see. Muscle spasms.
Calves always feel tight.
Bottom of feet cramp spasm in bottom of feet and toes will cramp sometimes.
Stiffness from knees down.
Stiffness in morning or periods of being still.
Legs can be triggered by the wrong movements.
Pain is symmetric and little swelling. Recently have had some swelling in the hands
Had these symptoms for 4/12years. Have had pain all the time but it has gone in cycles. This time it has stayed. Started with getting very sick and was put on antibiotics. Never been the same since.
No shooting pain
Swelling very infrequent
Knees stiff.
Grey area symptoms may be related
Chronic anemia
Brain fog
Fatigue in cycles with the pain
Fatigue then get headaches
Definite cognitive impairment
Brain does not work the way it used to.
Heart palpitations
Doctors have done a lot of tests and have come up with nothing.
Thanks for any input
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HugInterested in more discussions like this? Go to the Bones, Joints & Muscles group.
I’ve never heard of this. Where would I find such a place? I’ll Google it if you can tell me what to Google!
@anne4u, pain, stress and medications cause a loss of magnesium possibly creating a deficiency. This impacts thiamine and vitamin D as both require magnesium to become bioactive. Vitamin B2 along with activated thiamine are needed to activate vitamin B6. The B vitamins work better together. The first two links offer the effects of B vitamins on conditions similar to some you have mentioned. The ncbi link reviews the fifth element…boron, which often goes unnoticed, yet brings an enormous number of benefits to the table. A Youtube video by Dr. Jorge Flechas MD on boron is riveting. The krispin link is offers additional magnesium information. Always consult your health care professional before using any supplement.
https://www.dsm.com/pharma/en/news/dsm-pharma-blog/back-to-basics-the-impact-of-b-vitamins-on-low-back-pain.html
https://www.healthrising.org/blog/2013/07/19/the-high-dose-b-1-thiamine-supplementation-survey-fibromyalgia-chronic-fatigue-syndrome/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/
https://www.krispin.com/magnes.html
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2 ReactionsI’m going through so much right now between withdrawal and pain, my head is spinning from researching options for relief. I do a lot of natural methods to assist with it all and to help cope, but bad days are difficult nonetheless!
I just heard about Kratom tea. I’ve talked to other pain patients who are going through similar circumstances as me and say it helps. I plan to do my own research about it. Everyone is different and one thing I’ve learned is that what works for one person may not for another. It maybe mentioned here somewhere, I haven’t looked yet.
Thank you for this information! I have read about these important supplements and the balance between them. I do take some supplements now, but am always interested in staying current on findings and what will help maintain what my body needs to be healthy. I try to do as much as possible with diet, etc. Medication is a concern as they all have a trade off, some side effect! Ideally I would prefer to be off of them! That’s the goal!
Anne – I read your story hear, and am sorry you suffer from ongoing, unrelieved pain. You are absolutely right to say you do your own research – these might help. And just to be clear, Kratom is unregulated, so you might not know what exactly you are buying, and it too can be addicitve or lead to dependency.
Here is information from Mayo Clinics about Kratom:
https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-20402171
And here is what Cleveland Clinic says about using Kratom to withdraw from other opioids:
https://health.clevelandclinic.org/what-is-kratom/
What have you found?
Sue
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5 ReactionsThank you for the information at this point I'm willing to try anything.
Thank you for you thoughts Sandy I have given up on Medical Dr's who seem to look at me as if I am a "Hot potatoe" and can't hand me off fast enough and say "well you have Complex Regional Pain Syndrome"
Do you have, or can you get a copy of the results of that drug test? I can go on my doctors website through a patient portal and look at lab results, even print them if I want to. I would get a copy of that lab report. Then have another doctor like your primary take a look at it. There is a reason morphine showed up on your test. Find out what would cause this result. Mix up at the lab? Did you eat a poppy seed bagel before your test? Obviously it’s up to you, but there is a reason you have that result. So sorry for you! Are you able to find ways to relax at all?
My goal is to get off all meds for pain! One step at a time. Instead of being weened I was recently abruptly cut off opioid medication. That sent me into withdrawal and my pain skyrocketed. I’m doing okay with the withdrawal symptoms, but not the pain from back problems! I’m interested in some treatments because I’ve never had anything done for nerve compression, ddd, disks, spine, etc. My back is a mess. I don’t expect miracles but would like to see if minimally invasive options might help, to get me moving more right now. Then I want to start swim therapy.
I have an inversion table that helps a lot. I do meditation and light exercise, stretching, etc. I’m taking a tincture for withdrawal that’s been very helpful for muscle spasms. I’m pretty good with distractions and keeping my spirts up. I see a therapist and am being treated for depression. It’s been part of my ‘self care’ to practice gratitude daily! As I say on occasion, “life’s in session” and I know my attitude matters!
I’m very careful and do my homework before I try anything! There is so much out there that is dangerous and/or smoke and mirrors, not to mention expensive!
I’ll definitely read the information you provided! Thanks
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1 ReactionTwo things I recommend-
Therapy (PT) in a warm water pool. It has amazing results.
A book called “Managing Your Pain Before it Manages You”. Available on Amazon. Both have helped me tremendously. Good luck!
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1 ReactionI agree with p.t. in warm water ! I also recently started on cbd oil gummies. They are amazing for my pain and uplifted in my spirits. I differ from major depression and have had 3 back surgeries, 1neck surgery,have an artificial hip and born with connective tissue disorder called Ehlers Danlos. I have not taken one pain pill since started these. Doctor also put me on an antiinflammatory diet. My days have been much more productive and just an ache once in awhile. I have been on pain meds all my life. This is first time in 48 yrs I have been off them. Good luck to you ! Hope you find what works for you.
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1 ReactionWelcome @macrdo, I can't imagine how good that feels to be off your pain meds after 48 years of taking them. Thanks for sharing what has helped you. Do you mind sharing what you were looking for when you found Connect?
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