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Chronic pain and other joint issues: Looking for answers
Hi I’m in Canada looking To come to mayo.
Pain in hand radiates up arm. Starts in hand. It feels like a throbbing and feels like she can feel blood throbbing.
Can bend joints in hand. Can bend wrist without pain.
When press on fingers lower part it hurts. Pain in palm of hand.
Vacuuming then pain from holding vacuum. Maybe vibration.
Scrubbing definitely makes it worse.
Hands dont tend to cramp
Definite stiffness. Always feel need. To stretch hands
Pain in feet and legs are different than in hands.
Calves get Charlie horse cramping that you can visibly see. Muscle spasms.
Calves always feel tight.
Bottom of feet cramp spasm in bottom of feet and toes will cramp sometimes.
Stiffness from knees down.
Stiffness in morning or periods of being still.
Legs can be triggered by the wrong movements.
Pain is symmetric and little swelling. Recently have had some swelling in the hands
Had these symptoms for 4/12years. Have had pain all the time but it has gone in cycles. This time it has stayed. Started with getting very sick and was put on antibiotics. Never been the same since.
No shooting pain
Swelling very infrequent
Knees stiff.
Grey area symptoms may be related
Chronic anemia
Brain fog
Fatigue in cycles with the pain
Fatigue then get headaches
Definite cognitive impairment
Brain does not work the way it used to.
Heart palpitations
Doctors have done a lot of tests and have come up with nothing.
Thanks for any input
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Hello and welcome to Connect, @maz25. Congratulations on withdrawing from all opiate medication! It sounds like you've given many treatments a good try for your constant pain. I'm sorry to know that you're struggling, and understand the discouragement, frustration and exhaustion that comes along with searching for help. Like you, I ran into a road block with chronic pain after a few years of medical interventions that failed. It wasn't until I realized that things will continue to stay the same unless I decided to make changes.
My thoughts are to think outside of the traditional medical world box of all the things you mention that did not help you and consider seeking help through lifestyle changes and implementing a more holistic approach. Have you ever tried a pain rehabilitation program that helps build function over feelings through physical activity, teaches moderation and modification, counsels on stress-management, self-care, cognitive behavioral therapy, nutrition and sleep hygiene?
This way may not be for everyone and takes a great deal of personal growth and work, but can pay off by putting you in control of managing and living with chronic symptoms. What do you think? Any thoughts on this type of pain management?
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2 ReactionsThank you so much for your comments. I’m in the process of getting a release for my records. I’m just so worn out because it’s the only thing I can think of and this pain is unbearable. It’s just unthinkable that so many doctors will believe some other doctor they don’t even know instead of the patient sitting in front of them in obvious pain. My insurance is paying them, they act like I’m taking up time they could be using for “important” patients. Unfortunately, what he accused me of was in my urine, and I have no idea how. Morphine showed up. I did not, nor do I know where to get morphine! I may be old, but I’m not stupid. Everybody who walks into a pain clinic has to immediately pee in a cup. How stupid would someone have to be to take something not prescribed. I’ll go to my grave defending myself. To who? I don’t know. Doctors don’t believe me, anyway. It’s not medical malpractice, so an attorney won’t touch it. I just feel so alone.
I’ve never heard of this. Where would I find such a place? I’ll Google it if you can tell me what to Google!
@anne4u, pain, stress and medications cause a loss of magnesium possibly creating a deficiency. This impacts thiamine and vitamin D as both require magnesium to become bioactive. Vitamin B2 along with activated thiamine are needed to activate vitamin B6. The B vitamins work better together. The first two links offer the effects of B vitamins on conditions similar to some you have mentioned. The ncbi link reviews the fifth element...boron, which often goes unnoticed, yet brings an enormous number of benefits to the table. A Youtube video by Dr. Jorge Flechas MD on boron is riveting. The krispin link is offers additional magnesium information. Always consult your health care professional before using any supplement.
https://www.dsm.com/pharma/en/news/dsm-pharma-blog/back-to-basics-the-impact-of-b-vitamins-on-low-back-pain.html
https://www.healthrising.org/blog/2013/07/19/the-high-dose-b-1-thiamine-supplementation-survey-fibromyalgia-chronic-fatigue-syndrome/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/
https://www.krispin.com/magnes.html
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2 ReactionsI’m going through so much right now between withdrawal and pain, my head is spinning from researching options for relief. I do a lot of natural methods to assist with it all and to help cope, but bad days are difficult nonetheless!
I just heard about Kratom tea. I’ve talked to other pain patients who are going through similar circumstances as me and say it helps. I plan to do my own research about it. Everyone is different and one thing I’ve learned is that what works for one person may not for another. It maybe mentioned here somewhere, I haven’t looked yet.
Thank you for this information! I have read about these important supplements and the balance between them. I do take some supplements now, but am always interested in staying current on findings and what will help maintain what my body needs to be healthy. I try to do as much as possible with diet, etc. Medication is a concern as they all have a trade off, some side effect! Ideally I would prefer to be off of them! That’s the goal!
Anne - I read your story hear, and am sorry you suffer from ongoing, unrelieved pain. You are absolutely right to say you do your own research - these might help. And just to be clear, Kratom is unregulated, so you might not know what exactly you are buying, and it too can be addicitve or lead to dependency.
Here is information from Mayo Clinics about Kratom:
https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-20402171
And here is what Cleveland Clinic says about using Kratom to withdraw from other opioids:
https://health.clevelandclinic.org/what-is-kratom/
What have you found?
Sue
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5 ReactionsThank you for the information at this point I'm willing to try anything.
Thank you for you thoughts Sandy I have given up on Medical Dr's who seem to look at me as if I am a "Hot potatoe" and can't hand me off fast enough and say "well you have Complex Regional Pain Syndrome"
Do you have, or can you get a copy of the results of that drug test? I can go on my doctors website through a patient portal and look at lab results, even print them if I want to. I would get a copy of that lab report. Then have another doctor like your primary take a look at it. There is a reason morphine showed up on your test. Find out what would cause this result. Mix up at the lab? Did you eat a poppy seed bagel before your test? Obviously it’s up to you, but there is a reason you have that result. So sorry for you! Are you able to find ways to relax at all?