Chronic pain and other joint issues: Looking for answers

Posted by fletch312 @fletch312, Jun 5, 2022

Hi I’m in Canada looking To come to mayo.

Pain in hand radiates up arm. Starts in hand. It feels like a throbbing and feels like she can feel blood throbbing.

Can bend joints in hand. Can bend wrist without pain.

When press on fingers lower part it hurts. Pain in palm of hand.

Vacuuming then pain from holding vacuum. Maybe vibration.

Scrubbing definitely makes it worse.
Hands dont tend to cramp
Definite stiffness. Always feel need. To stretch hands

Pain in feet and legs are different than in hands.

Calves get Charlie horse cramping that you can visibly see. Muscle spasms.

Calves always feel tight.

Bottom of feet cramp spasm in bottom of feet and toes will cramp sometimes.

Stiffness from knees down.
Stiffness in morning or periods of being still.

Legs can be triggered by the wrong movements.

Pain is symmetric and little swelling. Recently have had some swelling in the hands

Had these symptoms for 4/12years. Have had pain all the time but it has gone in cycles. This time it has stayed. Started with getting very sick and was put on antibiotics. Never been the same since.

No shooting pain

Swelling very infrequent

Knees stiff.

Grey area symptoms may be related

Chronic anemia
Brain fog
Fatigue in cycles with the pain
Fatigue then get headaches
Definite cognitive impairment
Brain does not work the way it used to.
Heart palpitations

Doctors have done a lot of tests and have come up with nothing.

Thanks for any input

Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.

@lizthebrit

The injection name is Leqvio. The first two injections are three months apart and every six months thereafter. I have no side effects from the first injection but a definite noticeable positive change in my body aches and pains. Obviously the injections are compatible with all my blood pressure meds as prescribed by my cardiologist.
The technician giving the injections at the infusion clinic discussed with me that her returning patients had seen low cholesterol readings almost immediately. I hope this note helps!

Jump to this post

Thank you for responding, and for the info.
I'm glad that Leqvio has worked in your favor.😊
My cardiologist strongly recommended injectables, but each one has its own set of factors to be considered. And I've tried out several, with the worst side effects from simvastatin.
At this point (history of familial hyperlipidemia and cardiovascular considerations), we made the decision that injectables are not avenues for me. At lease one of the injectables require using along with a statin. Having peripheral neuropathy is another consideration for me, since it's been shown that there's an increase in PN symptoms when taking statins for longer than a year. I am again trying pravastatin (which had also caused muscle pains, etc) at a really low dose to see if that helps.
Will see what fasting blood work shows after being on 10mg pravastatin for 6 months come Jan '24, when I have next cardio visit.
A great deal for me to take into consideration.

Thanks again for making the time to respond, and best health to you.

REPLY
@delia74

Thank you for responding, and for the info.
I'm glad that Leqvio has worked in your favor.😊
My cardiologist strongly recommended injectables, but each one has its own set of factors to be considered. And I've tried out several, with the worst side effects from simvastatin.
At this point (history of familial hyperlipidemia and cardiovascular considerations), we made the decision that injectables are not avenues for me. At lease one of the injectables require using along with a statin. Having peripheral neuropathy is another consideration for me, since it's been shown that there's an increase in PN symptoms when taking statins for longer than a year. I am again trying pravastatin (which had also caused muscle pains, etc) at a really low dose to see if that helps.
Will see what fasting blood work shows after being on 10mg pravastatin for 6 months come Jan '24, when I have next cardio visit.
A great deal for me to take into consideration.

Thanks again for making the time to respond, and best health to you.

Jump to this post

Yes I too have neuropathy and extreme leg swelling. It’s much to take into consideration. I have taken so many different statins that I have lost count! I wish you the very best in finding a solution Here’s to improvement for both of us!

REPLY
@lizthebrit

I complained to my cardiologist that my whole body ached and I could not stand for more than a few minutes. I connected it to my ever increasing cholesterol meds. I now have a shot every 6 months instead of taking the pills. I see a huge difference in my body aches. It was well worth discussing.

Jump to this post

I am only first shot into it but I see an enormous change in my body aches! I am looking forward to seeing my blood results soon.

REPLY

I have chronic pain, back, feet and one knee that was replaced. Get relief in back with sympathetic nerve blocker injections, feet/ankle whole other problem, swells up, can't get in shoe, told no blood clots at this time may need ablation of vein near ankle so that's next. Six weeks ago finally tried podiatrist, he confirmed bad vein but also put me in special shoe for foot fracture said looks like have arthritis so will see specialist for that. The only pain meds I've used are Tramadol and 8 hour Tylenol, some days they work but most they only take the edge off. Any suggestions.

REPLY

I agree with Lyme Disease. Did you know that there is a lab in California that does nothing but test for Lyme's disease as there are over 240 different types of it.
My sister was very sick with many of the same symptoms you are experiencing. The tests at the hospital said she was negative we sent for the test kit from this lab. With her doctors help the test was completed and sent to their lab it came back positive for a type of lyme's that was commonly found in the Rockies. After course of the proper antibiotics she made a full recovery. This was after a 7 day hospital stay and being taken by helicopter to a different hospital for treatment. She almost didn't make it her blood pressure tanked and she filled up with fluids she couldn't get rid of. I stayed with her in the hospital and when we got to leave she had to wear my jogging pants home. I am a size 10 she was a size 6.
I hope this will help you. Another thing her insurance wouldn't pay for the test kit but it has to be performed by a doctor. Kit was about $250.00 if I remember correctly.
Good luck praying for you

REPLY

I am not in the medical field however my husband and I have had chronic joint pain for years. He has had bad knees that required use of knee braces and I have had hip joint pain. We started using red light therapy and it has made an incredible difference in our lives. He no longer has had to use the knee braces ( for 3months now) and I no longer have the sever hip pain. I have no idea how it works but have had several people and even our dog who have started using it and most have seen a dramatic change. It may not work on everyone but it has worked on the people and animals I have known that used it so it is worth a try. It may take several sessions to see such dramatic improvements and we use them regularly to stay ahead of the pain but as I said it's worth a try.

REPLY

Did a doctor suggest the red light therapy?
Where did you get the red light and instructions?

Nice to read. I happy story. 😊

REPLY

Sounds like good idea, as bbone2023 said where did you get red light and instructions. I have vein problems too, ablation both legs and now waiting Medicare approval for one on ankle, it swells up looks like Pillsbury doughboy (little humor there)!

REPLY
@pegbundy29

I am not in the medical field however my husband and I have had chronic joint pain for years. He has had bad knees that required use of knee braces and I have had hip joint pain. We started using red light therapy and it has made an incredible difference in our lives. He no longer has had to use the knee braces ( for 3months now) and I no longer have the sever hip pain. I have no idea how it works but have had several people and even our dog who have started using it and most have seen a dramatic change. It may not work on everyone but it has worked on the people and animals I have known that used it so it is worth a try. It may take several sessions to see such dramatic improvements and we use them regularly to stay ahead of the pain but as I said it's worth a try.

Jump to this post

I've been researching the red light therapy since I read your post this morning. One guy says the light has to be next to your skin; no clothing, but all pictures show with clothes on. Also, could you please tell me what kind of device you are using? The ones on Amazon are about 1/3 the cost of the companies that came up. Thanks for any help you can offer!

REPLY

Have talked with your regular doctor about autoimmune disease? A lot of the symptoms remind me of my RA:
symmetrical pain, worse in the morning, stiffness, fatigue, cognitive difficulties, brain fog.

REPLY
Please sign in or register to post a reply.