Celiac Artery Aneurysm: Anyone else with same illness?

Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

If I can interject here. I had a cat scan done for a heart valve issue. The doctor said that I was going to be transferred to a trauma hospital because you have a torn celiac artery aneurysm. Like you said. It’s very rare.

When I got to the trauma hospital the cardiovascular surgeon acknowledged it but I forgot to ask him how big it was. He said that it wasn’t bleeding so they felt it was ok to discharge me with a torn but not bleeding celiac aneurysm.
He told me to see my own cardiovascular surgeon which I did. Well my cardiovascular surgeon said that he didn’t see anything even though he’s been monitoring yearly. He was annoyed and rushed out of the exam room. Last week I had 2 MRI’s, 2 cat scans and a few regular X-RAYS and said nothing but my ENT saw it and told me it was at 3.7 with a tear in it. I was seeing an ENT for a paralyzed right vocal cord.
He suggested I see my cardiovascular surgeon and that surgeon said that 10 years ago my aneurysm was at 1.7 and it’s still at 1.7. I said great. A few months go by and that’s how I found it to be at 3. 7 cm with a small tear in it. My ENT found it even though I was going to him for a paralyzed vocal cord. He found the torn Aneurysm looking for something else. He found it by accident. What now? One sends me to a trauma hospital and he said that since it wasn’t bleeding. I could be discharged and follow up with my annoyed doctor. Well there is a difference between a 1.7 torn aneurysm and a 3.7 torn aneurysm! I don’t know what to do other than find another surgeon.

Hello I have a celiac artery aneurysm related to dissection. Advise searching this site with those keywords to see others posts mine included. Keep in mind there are different types of aneurysms which dictate different care. I am being followed yearly with Doppler ultrasound after initial baseline evaluation with ct angiogram. My advice is to ensure you are being followed at a large academic tertiary care hospital as they see more of these unusual cases due to referrals. I am being followed at northwestern university in Chicago. The initial community hospital surgeon wanted to do surgery!! And it is complicated and can lead to other issues so get an expert.

@mjpisa Thank you, I appreciate your reply.
Mine was described thus: Focal dissection at the proximal celiac artery with a 1.4 x 0.8 cm left-sided saccular aneurysm
My local vascular specialist has recommended quarterly ultrasounds. He advocates for a stent when and if it reaches 2+. Another specialist I saw suggested surgery if and when it reaches 2+.
I have a younger wife and son for whom I particularly would like to be around for so want a third opinion, both in terms of managing the situation and choice of intervention should it grow. My findings so far looking at the small amount of research available seems to suggest that it most likely won't grow and if it does a stent should be fine. Of course as I'm sure you know this is not an easy stent to place and for that reason I'm keen to have the best in the business on the other end of the knife...
Until then I'm watching the blood pressure, exercising (but not too much!) and limiting other various bad habits.
I would be grateful for any other input you may have. FYI I'm in CT, the best we have in state is Yale New Haven, rated "high performing". I'm still hoping to gain some insight from this sit as to whether Mayo or Cleveland is better for my situation. Do you have a sense of how I could work that out?

@williampullen I am interested in your Doctor at Yale New Haven also . Have you met with him yet or has he just been recommended? Thank you

Hello, I dont have much more input, sorry. My celiac aneurysm is fusiform with(vessel is dilated) not saccular. It is my understanding that they are treated differently. Think my condition was related to bad cholecystitis and gallstone pancreatitis. I had inflammation, though mild around this vessel on theCT scan. Probably weakened it.

As far as which hospital, check us news and world for ratings for cardiovascular care, seems that cleveland is #3 and Mayo #4. two other NY hospitals are 1 and 2. Best wishes