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Celiac Artery Aneurysm: Anyone else with same illness?

Aortic Aneurysms | Last Active: Jul 28 11:21pm | Replies (569)

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Hello I have a celiac artery aneurysm related to dissection. Advise searching this site with those keywords to see others posts mine included. Keep in mind there are different types of aneurysms which dictate different care. I am being followed yearly with Doppler ultrasound after initial baseline evaluation with ct angiogram. My advice is to ensure you are being followed at a large academic tertiary care hospital as they see more of these unusual cases due to referrals. I am being followed at northwestern university in Chicago. The initial community hospital surgeon wanted to do surgery!! And it is complicated and can lead to other issues so get an expert.

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Replies to "Hello I have a celiac artery aneurysm related to dissection. Advise searching this site with those..."

@mjpisa Thank you, I appreciate your reply.
Mine was described thus: Focal dissection at the proximal celiac artery with a 1.4 x 0.8 cm left-sided saccular aneurysm
My local vascular specialist has recommended quarterly ultrasounds. He advocates for a stent when and if it reaches 2+. Another specialist I saw suggested surgery if and when it reaches 2+.
I have a younger wife and son for whom I particularly would like to be around for so want a third opinion, both in terms of managing the situation and choice of intervention should it grow. My findings so far looking at the small amount of research available seems to suggest that it most likely won't grow and if it does a stent should be fine. Of course as I'm sure you know this is not an easy stent to place and for that reason I'm keen to have the best in the business on the other end of the knife...
Until then I'm watching the blood pressure, exercising (but not too much!) and limiting other various bad habits.
I would be grateful for any other input you may have. FYI I'm in CT, the best we have in state is Yale New Haven, rated "high performing". I'm still hoping to gain some insight from this sit as to whether Mayo or Cleveland is better for my situation. Do you have a sense of how I could work that out?

If you have had a dissection you definitely should be looking for the best surgeon for your aneurysm. My son had many surgeries to remove aneurysms. I would recommend that you find a good surgeon sooner rather than later. They were watching his aneurysms and then one night his celiac trunk artery aneurysm that had being monitored and was stable for over 10 years ruptured. He was 25. I was very diligent and he had the best surgeons in the country but he got seconds not minutes. Please don't wait, don't put it off get the best doctors at the best heart hospitals in your area, have a discussion with your doctor and don't let them put you off. Get the medical care you need while you can. My son is the reason they found the ARIH1 gene mutation that causes aneurysms. He was patient zero. They are learning and now helping people because of the study they did on him. Any aneurysm is a ticking clock that can stop at any second. He had lived from his first surgery at 6 years old in 2005 and had multiple surgeries. Until May 4, 2024. Please talk to your heart doctor and get the help you need. I hope this helps you make a good decision. Bye the way the night my son had his dissection in November 2011 on his upper descending aorta is when I met his surgeon that followed him and kept him alive for another 13.5 years was when he told me that he should have been being watched with a Ct or MRA not the 3D Echo his cardiologist had been using. If she would have been, the dissection might not have happened back then. Educate and Advocate for yourself while you can. There are no 2nd chances. I would do anything for it to have been me and not him. I hope this helps whoever reads it.