Celiac Artery Aneurysm

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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Hello @kespectrum,

My sincere apologies for the tardy welcome! We’re so glad that you’ve joined us in this group on Connect.

As you point out celiac artery aneurysm is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

With regards to Crohn’s disease and Humira, I would encourage you to view Mayo Clinic’s Inflammatory Bowel Diseases (IBD) blog: http://ibdblog.mayoclinic.org

@barens2 @guener @jewel8888 @jay_baruch @chicagomichelle do you have any thoughts about Humira and any links to CAA?

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@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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Could use some feedback from anyone familiar with celiac artery aneurysm…I had my post-hospitalization follow up visit with the surgeon who said my latest CT scan showed a decrease in the size of the aneurysm (good news!) however, he downplayed the seriousness of the condition, saying that within their surgical practice they have seen celiac artery aneurysms and not to be concerned. My online research has shown it to be a rare condition, and not to treat lightly. Where can I find a balance of facts?? Anybody have any suggestions?

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Hi….i was just diagnosed w mals..median artucate ligament syndrone..i am having open surg soon. I had a nissen fundopilation done about six years ago. I had a full wrap done. My surgeon wax chief gastro at dartmouth hitchcock hosp in nh..this dr told me that the wrap either full or partial..cannot be undone..unless something has changed in the few years since. I had a difficult time eating for over a year after that F surg. But..i have no symptoms oif gerd anymore..now am dealing w mals. I hope this helped you somne. Carolina

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Can someone please explain to me what this means and how serious is this?

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Hello @clevelandpatient,

Welcome to Connect. Thank you for sharing your information. We cannot give any medical advice or diagnoses here, but given that your report mentions celiac artery, I moved your message to the Digestive Health group so that you can meet @kariulrich, @jurney01@saschlief @dougf @kespectrum @janetpomponio @kdh1 @lynnkay1956 who have been talking about abdominal aortic and celiac artery aneurysms.

@clevelandpatient, could you share a few more details? We look forward to getting to know you.

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@carolina58

Hi….i was just diagnosed w mals..median artucate ligament syndrone..i am having open surg soon. I had a nissen fundopilation done about six years ago. I had a full wrap done. My surgeon wax chief gastro at dartmouth hitchcock hosp in nh..this dr told me that the wrap either full or partial..cannot be undone..unless something has changed in the few years since. I had a difficult time eating for over a year after that F surg. But..i have no symptoms oif gerd anymore..now am dealing w mals. I hope this helped you somne. Carolina

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Hi @carolina58 I am so sorry to hear about your MALS diagnosis. Can you explain what you mean by a full wrap?

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@clevelandpatient

Can someone please explain to me what this means and how serious is this?

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Hi @clevelandpatient , very nice to meet you! It sounds like you are dealing with an inflammatory vascular disease. I do know of a vascular doctor at the cleveland clinic that would be able to help you navigate your diagnosis. (By your user name I am guessing you are near Cleveland,Ohio?) The vascular doctor is Dr. Heather Gornik, and that is who I would see if I was in Cleveland. Here is a link: https://my.clevelandclinic.org/staff/6671-heather-gornik

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@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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Hi, i was diagnosed with a 2cm celiac artery aneurysm 4 years ago. Im 57.

It is definately hard to find any recent research. I am going in this morning for my biannual CT angiogram, hoping that it hasnt grown. I was so glad to find this board because of its rarity and how its presence seems to linger in the back of my mind. I live in Utah so i had to go to Mayo once it was discovered. Originally it was for surgery because 2cm is the size which intervention is needed. They then said that it was only 1.4 cm wide and 2cm long, so i went on the watch and weight program.

Its not a diagnosis that sits well. They say that since there is not that many cases the data of rupture is just not available, but that the science behind the wall pressure and such makes watching less of a risk.

I dont get pain that often, but when i do its always a uneasy feeling and reminder when you know that the mortality rate if ruptured is high.

So, i guess we are just a special group of humans that must take life as a precious gift regularly. And do our follow-up as needed. Like i said, its been over 4 years and my lil guy hasnt grown at all, so maybe it never will and ill live to be a crotchety old man.

Warm regards,
Chris McArdle

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@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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Thank you so much for your reply. It helps to know at least one other person has the same issue. I’m glad to hear your not having additional issues. I go back for follow up CT in December. After 4 months from onset there was significant remodeling so my artery is only about 15% reduced compared to original scan. They now say I could have a stint if needed instead of surgery. So we will see what time brings. I try not to think about it too much since I really can’t do anything to effect the outcome anyway. Just live my life as best I can.

Good luck and continued Health.

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@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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Hi @onemind711,

My sincere apologies for the tardy response, but somehow your post slipped past! I’d like to extend a warm welcome to Connect, and thank you for sharing your story.
I really do like the phrase, “special group of people” because you and the Connect community are exactly that: a special group of people who have each other to share with, learn from and find support.

You may be interested in reading this recently published study and case report about celiac artery aneurysms: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5348600/

@onemind711, what do you do to get relief from the pain when it occurs? Only if you would like to share, may I ask if about your most recent appointment?

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@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

Jump to this post

In my case the pain has not come back since the initial onset and discovery. They gave me some morphine and after that it was gone. I had a small amount of discomfort for about a week and then nothing more. They put me on blood pressure medicine so now they only want me to take acetaminophen instead of aspirin. It never seemed to do anything for me prior to this and I previously used aspirin. It seems to be working OK for headaches and such. My last CT showed significant remodeling. so instead of having 80% of the artery swollen and possible blocked its down to 10-15%. They now say they can put in a stint if needed where prior to this the only option was surgery. Follow up CT in December.

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I also was just diagnosed with the Rare celiack annurismal artery1 cm this week while at the ER for extreamly HIGH BP and Heart Rate no lower then 99 at rest yet that night it was 124 bpm crazy feeling i have taken 4 diffrent EKG and all test are abnormal my doc put me on a beta blocker yo control the heart rate BP and anxity so this thing don’t blow i have a cardiologist apt on monday oct23 also have enlarged bile and pancreatic Ducts along with a pancreatic division. I have a FH mutation called HLRCC with multiply leasions in my kidneys 2 in my spine and had 2 huge ones removed with a full hysterectomy except for overies does anyone else have any other issues that may be linking this

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