1. < Hypertrophic Cardiomyopathy (HCM)
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Camzyos and insomnia.

Posted by 8leonard @8leonard, Aug 2, 2023

I’ve been taking Camzyos since 7/26/23. I have had 4 consecutive nights that I cannot sleep. I usually sleep very well. Has anyone else dealt with insomnia while taking Camzyos?

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susiewordsmith | @susiewordsmith | 1 day ago
In reply to @walkinggirl "@susiewordsmith Yes, legal departments include every effect even if only one person in 100,000 experiences it." + (show)
Profile picture for Linda, Volunteer Mentor @walkinggirl

@susiewordsmith Yes, legal departments include every effect even if only one person in 100,000 experiences it.

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@walkinggirl
amen.

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peggynurse | @peggynurse | 1 day ago
In reply to @susiewordsmith "@nanamc1957 Although I'm the wrong kind of doctor (Ph.D. not MD), I'd be more concerned about..." + (show)
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@nanamc1957
Although I'm the wrong kind of doctor (Ph.D. not MD), I'd be more concerned about symptoms of HOCM than side effects of Camzyos. I've been taking 5 mg of Camzyos for almost a year now (in addition to my dozen other Rx's)...Good to keep in mind that it's the Legal Department writing all the warnings...puts things in perspective (not that one shouldn't take warnings seriously).
Hope things go smoothly for you!

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@susiewordsmith i’ve been on 5 mg of Camzyos for maybe three years now. And I don’t sleep well. Have some anxiety and wonder if that could be associated with Camzyos. Anybody take anything for anxiety with Camzyos? ?

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Linda, Volunteer Mentor | @walkinggirl | 1 day ago
In reply to @susiewordsmith "@nanamc1957 Although I'm the wrong kind of doctor (Ph.D. not MD), I'd be more concerned about..." + (show)
Profile picture for susiewordsmith @susiewordsmith

@nanamc1957
Although I'm the wrong kind of doctor (Ph.D. not MD), I'd be more concerned about symptoms of HOCM than side effects of Camzyos. I've been taking 5 mg of Camzyos for almost a year now (in addition to my dozen other Rx's)...Good to keep in mind that it's the Legal Department writing all the warnings...puts things in perspective (not that one shouldn't take warnings seriously).
Hope things go smoothly for you!

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@susiewordsmith Yes, legal departments include every effect even if only one person in 100,000 experiences it.

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1 reply
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susiewordsmith | @susiewordsmith | 1 day ago
In reply to @nanamc1957 "Hi I'm new here. I'm suppose to start camzyos but I'm scared to death of the..." + (show)
Profile picture for nanamc1957 @nanamc1957

Hi I'm new here. I'm suppose to start camzyos but I'm scared to death of the side effects. I care for elderly and don't want to faint driving them around it also states the other meds I take don't mix well with camzyos like metoprolol amalodipine and artovastatin. Does any one take these with camzyos

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@nanamc1957
Although I'm the wrong kind of doctor (Ph.D. not MD), I'd be more concerned about symptoms of HOCM than side effects of Camzyos. I've been taking 5 mg of Camzyos for almost a year now (in addition to my dozen other Rx's)...Good to keep in mind that it's the Legal Department writing all the warnings...puts things in perspective (not that one shouldn't take warnings seriously).
Hope things go smoothly for you!

REPLY
2 replies
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Linda, Volunteer Mentor | @walkinggirl | 1 day ago
In reply to @peggynurse "@darryl How many mg do u take? Thx." + (show)
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@darryl
How many mg do u take? Thx.

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@peggynurse I take 5 mg once in a while. Sometimes it helps and sometimes it does not help.

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sassyrdh329 | @sassyrdh329 | 2 days ago

I am on 10mg Camzyos started in jan 2026 but I also take Ambien 5 mg so I don't have sleep problems with camzyos.
I do have very vivid dreams - I can feel myself touching kissing and speaking to people - sometimes nightmares.

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peggynurse | @peggynurse | 3 days ago
In reply to @darryl "I take a melatonin before I go to bed and that helps me sleep better" + (show)
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I take a melatonin before I go to bed and that helps me sleep better

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@darryl
How many mg do u take? Thx.

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1 reply
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Mentor
Linda, Volunteer Mentor | @walkinggirl | Apr 24, 2024
In reply to @markmayo "Dreams that seem more like I am awake just imagining it but my Fitbit says I..." + (show)
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Dreams that seem more like I am awake just imagining it but my Fitbit says I was sleeping. I think Fitbit is based on pulse rate.

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I think so, too. I never wear my Fitbit at night but the weekly report always shows that I had a couple of hours of restful sleep.

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par4rosy | @par4rosy | Apr 23, 2024

No I have not experienced insomnia; started taking Camzyos in December 2023.

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peggynurse | @peggynurse | Apr 11, 2024
In reply to @8leonard "Thank you for your input. I hope the melatonin will give me sweet dreams." + (show)
Profile picture for 8leonard @8leonard

Thank you for your input. I hope the melatonin will give me sweet dreams.

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me too! thought it was the Camzyos but maybe it’s the Metroprol?

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