C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?

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Profile picture for brasileira @brasileira

This is the result of my last blood test

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Hi @brasileira, welcome to Mayo Clinic Connect, an open online community where patients like yourself share their experiences, find support and exchange information. It is not a space to communicate with medical professionals about lab results. You'll notice that I removed the uploaded images of your blood test. I did this because the image included personal identifying information. Feel free to repost the results with the patient and institution information cropped out of the image or hidden.

Brasileira, do you have c-difficle?

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @brasileira, welcome to Mayo Clinic Connect, an open online community where patients like yourself share their experiences, find support and exchange information. It is not a space to communicate with medical professionals about lab results. You'll notice that I removed the uploaded images of your blood test. I did this because the image included personal identifying information. Feel free to repost the results with the patient and institution information cropped out of the image or hidden.

Brasileira, do you have c-difficle?

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What is it? Never heard of it

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Profile picture for brasileira @brasileira

What is it? Never heard of it

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@brasileira, may I ask what condition you are looking for more information about?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@brasileira, may I ask what condition you are looking for more information about?

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@colleenyoung I think @brasileira has never heard of cdiff and wants a definition.

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Hi there; I have been off the Vanco now for 2 months and I still don`t feel right. still have burning when I go,can`t eat anything fatty, no French fries,sad!!! I take RENEWEL-S. Boulardii once a day [same as florastor] and also a basic probiotic as well. Have only half my energy I had before 3 bouts of C Diff. It seems to be a long recovery process

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Profile picture for dilly69 @dilly69

Hi there; I have been off the Vanco now for 2 months and I still don`t feel right. still have burning when I go,can`t eat anything fatty, no French fries,sad!!! I take RENEWEL-S. Boulardii once a day [same as florastor] and also a basic probiotic as well. Have only half my energy I had before 3 bouts of C Diff. It seems to be a long recovery process

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Good to hear from you. It took me a while several months to finally now starting to get back to normal. It took about 7 months for my body to regulate. And I still cannot eat fatty food and I am sticking to healthy eating. Still taking Boulardii and probiotic I alternate between those two. Hang in there and I wish you a speedy recovery.

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Profile picture for mhi @mhi

Good to hear from you. It took me a while several months to finally now starting to get back to normal. It took about 7 months for my body to regulate. And I still cannot eat fatty food and I am sticking to healthy eating. Still taking Boulardii and probiotic I alternate between those two. Hang in there and I wish you a speedy recovery.

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sometimes it`s just easier to talk to people on this forum than go to doctors,as we seem to have more knowledge on this subject. thanks for your words, now I know what I`m feeling is normal. glad were out of winter and can be outside more

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@lacy2 I definitely think that vancomycin is such a strong antibiotic that it definitely wreaks havoc in our systems. Particularly, because I took so much of it! But probably the doctor will not say that. Look at the mess clindamycin caused!

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@lacy2 I definitely agree with you! I had the fmt in March, 2019. I was 71 at the time. It definitely saved my life. I most likely wouldn't be alive today. As we all know, big pharma has been running the show for some time. I found it interesting that I couldn't get the fmt until I had 3 relapses! What does that tell you? I wouldn't have had to take all that vancomycin if I could have had the fmt sooner! It has nothing to do with us getting healthy. It's about the "money ", as usual. Disgusting!

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@lacy2 You are 100% correct! Well, I wish you the best with whatever you decide. I am here if you need to vent or have any questions.

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