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sue6408 (@sue6408)

C. difficile – Are your guts ever normal again?

Digestive Health | Last Active: Jun 2 6:35pm | Replies (591)

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@losthope

I am feeling discouraged. I have been on a taper dose of vancomycin for over a months and a half. I start to feel better and then my stomach starts going crazy. I find I can not eat meat except chicken or fish. I am lactose intolerant. Can you share your food choices. I have read so much and tried to watch what I eat but nothing seems to help. Did this medication seem to be the one that helped or has it been long enough to say one way or the other. I have looked into the fecal transplant because I can not gain any weight and it has really taken a tole on my life. I am happy for you that you are getting better. I think clindamycin should have a warning due to cdiff. I work in a pharmacy and I talk to the doctors a lot and they say it should only be used as a last resort and cautiously. Thanks for listening. Merry Christmas. May the new year be better🙏🏻

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Replies to "I am feeling discouraged. I have been on a taper dose of vancomycin for over a..."

@losthope, I know exactly how discouraged this is. I also did the pulse and taper dose of Vanco. I was good for three weeks after going off of it. And then in October I relapsed with my 4th bout of C.diff. I was so depressed and got so sick with the 4th bout. I lost 10 pounds the first two weeks. I then convinced my insurance to approve fidaxamicin (Dificid). It's ONLY used to kill C.diff spores and does not kill the good bacteria. I have another friend who was given this after her second bout of C.diff. She was given Clindamycin by her dentist. I was given it for my 4th sinus infection. You might want to ask your doctor about fidaxamicin. It's really pricey. I think 20 pills was almost $5,000. But I've also found places that it's less expensive depending what pharmacy you use. I've also decided that I will do the fecal transplant if I have another relapse. I've looked in to Open Biome where they have the pill form. Thirty capsules are $635. It is so much less invasive. I also need to have a colonoscopy after the first of the year. And they also do the FMT using that approach. I took the last fidaxamicin on October 26th so I'm just a couple months short of two months being C.diff free. I knock on wood every time I say that. I really haven't changed my diet. I'm faithful at taking the probiotic Florastor which my gastroenterologist suggested. It's not affected by the acid in our stomach and will go directly to the colon to work on the C.diff spores that line our colons. And I'm sure you're taking all the precautions with hand washing and using bleach or Clorox wipes on everything. Keep us posted how you're doing. Wishing you well.

Hi,I'm taking Budesonide,Cortiment.9mg tablet.(c-diff is gone…dealing with colitis).Good luck.