C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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From dificid treatment. Your better??

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@losthope

From dificid treatment. Your better??

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@losthope Yes, I finished the Dificid on October 26th after my 4th relapse. It has not returned. And I knock on wood every time I say that. I'm also taking the Florastor probiotic every day faithfully. My GI recommended that since it's not affected by the acid in our stomachs and goes to the colon where the C.diff spores seem to thrive. And the Dificid only kills the spores and not your good bacteria. How are you doing? @ngarriso , I'm so happy to hear that you are doing so well. Great news.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I’m ok just scared Hopefully getting better but Vanco doesn’t seem to be the cure. I just don’t want a relapse

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@ngarriso

Good news from my doctor. No return of CDiff!!

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Congratulations!

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@guthealth

Congratulations!

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Thank you 🙏. I am so relieved

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@sakota

@bluebanana
I had c diff three times I had it, got over it, then got it again and then one more time. The first time I was put in the hospital as I was having breathing problems too so they were thinking pneumonia. So after the third round of being on antibiotics I finally got rid of it. A lot of washing my hands, washing bedding in bleach, wearing rubber gloves when using the bathroom and staying away from people while I was contagious. Have not had it since and I would say this was 3 or 4 years ago. They put me on two antibiotics each time. Everyone always has the bacterial c diff in their gut…… its one of the bad bacterial that balances things out. I just looked that up just to see if I was remember right. Good look to those that have it and take care of yourself……… washing hands, disinfecting so that you don't get the bug again…….. Chlorox is the only thing that kills it as it can be contagious on surfaces for a few days…. I just got the chlorox wipes and kept cleaning……

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The only thing that gets rid of C-diff spores is bleach and 99% of wipes, including Clorox, don’t contain bleach anymore. I had to order Clorox Healthcare Bleach Germicidal Wipes online. I’ve been told that Sam’s Club carries them, but haven’t looked.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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First was told I had sibo then tested positive for c-diff on 9 days of vancomycin and feel horrible has anyone else had a tough time with this med

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Hi @terridrag and welcome to Connect. I moved your message about c-difficille and combined it with this existing discussion to introduce to the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

You may also be interested in this discussion:
> Groups > Digestive Health group > Trying to recover from a c.diff infection
https://connect.mayoclinic.org/discussion/i-am-trying-to-recover-from-a-c-diff-infection-this-started-with/
I'm also tagging other members who have experience with vancomycin, such as @sandyabbey @pines @sandyrb and @denisemarys

Terri, you said you feel horrible. Can you tell us more about the side effects you are experiencing? How much longer are you to take vancomycin?

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@colleenyoung

Hi @terridrag and welcome to Connect. I moved your message about c-difficille and combined it with this existing discussion to introduce to the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

You may also be interested in this discussion:
> Groups > Digestive Health group > Trying to recover from a c.diff infection
https://connect.mayoclinic.org/discussion/i-am-trying-to-recover-from-a-c-diff-infection-this-started-with/
I'm also tagging other members who have experience with vancomycin, such as @sandyabbey @pines @sandyrb and @denisemarys

Terri, you said you feel horrible. Can you tell us more about the side effects you are experiencing? How much longer are you to take vancomycin?

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I’m so bloated and can’t really eat anything without pain/nausea I have 5 more days of the vancomycin I thought I would be feeling better not worse I’m very sensitive to any meds I also have Lyme and reactive Epstein Barr it’s been really rough

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@terridrag

I’m so bloated and can’t really eat anything without pain/nausea I have 5 more days of the vancomycin I thought I would be feeling better not worse I’m very sensitive to any meds I also have Lyme and reactive Epstein Barr it’s been really rough

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@terridrag I'm so sorry to hear you're having so many problems with the meds. Vancomycin is a strong med. After my second bout of Cdiff, I took it for 10 days. With the third bout, I was on the Vanco pulse and taper for 5 or 6 weeks. I was good for 3 weeks after that bout. And then Cdiff came back for a 4th time. Cdiff spores are not easy to kill and with each bout, the chance of reoccurrence goes up. After my 4th bout, my insurance approved Dificid. It only kills the Cdiff spores and not your good bacteria. I wish I would have taken it after my first bout. I finished Dificid on October 26th. It's very expensive. And even the co-pay was almost $1,000. I was to the point that a fecal transplant would be the next thing. I got Cdiff from taking Clindamycin for a sinus infection. I'm leery of ever taking another antibiotic.

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@pines

@terridrag I'm so sorry to hear you're having so many problems with the meds. Vancomycin is a strong med. After my second bout of Cdiff, I took it for 10 days. With the third bout, I was on the Vanco pulse and taper for 5 or 6 weeks. I was good for 3 weeks after that bout. And then Cdiff came back for a 4th time. Cdiff spores are not easy to kill and with each bout, the chance of reoccurrence goes up. After my 4th bout, my insurance approved Dificid. It only kills the Cdiff spores and not your good bacteria. I wish I would have taken it after my first bout. I finished Dificid on October 26th. It's very expensive. And even the co-pay was almost $1,000. I was to the point that a fecal transplant would be the next thing. I got Cdiff from taking Clindamycin for a sinus infection. I'm leery of ever taking another antibiotic.

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Thanks hope it goes away after this that’s crazy we can’t get the good meds right off the bat

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@terridrag

Thanks hope it goes away after this that’s crazy we can’t get the good meds right off the bat

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@terridrag I agree. I have a friend who wasn't given Dificid until after her 2nd bout of Cdiff. She also got Cdiff from taking Clindamycin prior to a dental root canal. And my insurance asked if I'd taken Vancomycin before they would approve the Dificid. If you do have a relapse, I suggest you ask your doctor to prescribe Dificid (fidaxamicin).

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