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sue6408 (@sue6408)

C. difficile – Are your guts ever normal again?

Digestive Health | Last Active: Jun 2 6:35pm | Replies (591)

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@pines

@bluebanana My heart goes out to you. I know exactly what you are going through. I had my first bout of C-diff in April after taking Clindamycin. The first week, I thought I had the flu. I had never even heard of C-diff. I took Flagyl for 10 days. That didn't work and a week later I took Vancomycin for 10 days. That didn't work and then I did the pulse and taper Vancomycin for 5 weeks. I was good for 3 weeks and then C-diff came back for a 4th time. I then took Dificid (fidaxamycin). I took that for 10 days and finished it on October 26th. I have not had a relapse and it will be 2 months next week. My gastroenterologist had me start taking the probiotic Florastor while I was on Vancomycin. I really think that also helps. It's the one probiotic that isn't affected by the acid in our stomach so it goes to work in your colon. The walls of our colon are where the C-diff spores thrive. I, like you, have never been so sick. And I think since I had it for so long with my first bout, it made it even harder to kill all the spores. I don't know what type of insurance you have. I know mine would not approve Dificid until I had taken Vancomycin. It's a costly drug. If you do relapse, I would definitely ask your doctor about prescribing it. I have another friend who was given this med after her second bout with C-diff. She's never relapsed since taking it and that was over 2 years ago. It's important to use bleach on everything in your bathroom. I even used Clorox wipes on the light switches, toilet handles, spray cans,,,, you name it. You need to be really cautious. And just using hand sanitizer does NOT work on Cdiff.

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Replies to "@bluebanana My heart goes out to you. I know exactly what you are going through. I..."

@bluebanana I’m still so nervous & that’s not good. I was told to eat plenty of yogurt but I had to search for lactose free. I’m doing that now, but I’m still not feeling like I should. My Dr told me to eat soft things like potatoes & white toadt & rice ( white ), eggs & soups. Then I hear bad things about that. I’m so confused.