C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Welcome to Connect, @femalegolfer. Here is another discussion where many members have shared their experiences and insights as well:
– Trying to recover from a c.diff infection https://connect.mayoclinic.org/discussion/i-am-trying-to-recover-from-a-c-diff-infection-this-started-with/

I’d also encourage you to view this post, https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed/c-difficile-care-at-mayo-clinic/ on the Gastroenterology & GI Page on Connect.

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@ngorman25

Thanks Sue! I think I probably will have the fmt instead of trying dificid. I really don't want to take any more antibiotics than I have already. I had several antibiotics all last year for different reasons. I was "ripe" when I got an abcessed tooth in August and the dentist prescribed clindamycin, which finished me off! Then I got the "bastard bug" ,(cdiff). My gastro doctor called it that. I have had 4 flare-ups since September. I just dropped off a specimen, again, and am pretty sure it will be positive as I have had some diarrhea since Saturday. That's why I asked if anyone had any knowledge of fmt.

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I would go for it. It has a 90% cure rate I read some where. Good luck.

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Hello everyone,

I encourage you to also view the Gastroenterology & GI Surgery Page on Connect https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/ where Mayo Clinic experts talk about C diff. IBD, celiac disease and other digestive conditions, and also discuss various treatments, ongoing research, current events.
For instance, in this post Dr. Darrell Pardi writes about "C. Difficile Care at Mayo Clinic” https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed/c-difficile-care-at-mayo-clinic/

Liked by pines, pamelajean

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@serenityva

@pines This has all been so helpful to me! I also had the gel like puss but didn't know about this website at the time and was really alarmed…My bowels are now starting to look a bit more normal (sigmoid colon removed on Nov 27, with first C-Diff bout in late October and second after the surgery). I started out with Vancomycin and this time I am on the tapered down Vancomycin, which will carry me through the first week in Thailand. I am hoping upon hope that I will get through last week there without a third bout. I am not sure right now about how vigilant I need to be about changing bedsheets, etc., I usually do once a week but am doing every other day now, along with using the medical grade Clorox to wipe things down. So afraid I am going to miss something and re-infect myself. After reading so many posts on this site, I am counting my blessings…grateful that so many of us can find suggestions/answers/ideas on this site. Thanks for sharing your experience, strength,and hope!

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@serenityva I've been thinking about you and wondering how you are doing and if you were healthy during your visit to Thailand.

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@femalegolfer

Good morning. I was diagnosed with c-diff yesterday, after about 8 months of symptoms, but i never went to the dr. I feel that i got it from all the UTIs that I have had. I have also had strep twice this last year. They started me on vanco 125 mg for 10 days. I've only taken two doses thus far. But I'm fearful of recovering and what damage I have caused to my gutt and colon. I am 46 and hate to think I have to deal with all the repercussions I've caused. I'm hoping this will heal me, then i need to go to Dr to find out why I am getting so many UTIs.. i haven't get cipro for them. I have had them bad enough they turned into a kidney infection. I appreciate all the stories and comments, helps to know I'm not alone.

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@femalegolfer I too have had UTI's all my life. And now my daughters and one granddaughter suffer with them. I had one during a Cdiff episode last year. If you can take Microbid instead of Cipro, I would do that. Also my doctor asked if I was using a PH balanced soap like Vagisil. I was not and have started using one after she mentioned it. My gastroenterologist also suggested I start taking Florastor. There are also other brands just look for one with S. Boulardii. This probiotic will survive the acid in your stomach and reach your GI tract where Cdiff spores thrive. I had never even heard of Cdiff prior to getting it last spring. And like you, I didn't go to the doctor right away. I thought it was a bad case of the flu. And then I thought it was Ecoli since I eat a lot of romaine lettuce. Finally went to the doctor after I read about Cdiff from taking Clindamycin which I had taken for a sinus infection the prior month. I would start on the Florastor right away and also use a PH balanced soap. Wishing you well.

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@pines

@serenityva I've been thinking about you and wondering how you are doing and if you were healthy during your visit to Thailand.

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Pines@pines, thank you for remembering me. I did beautifully in Thailand, loved every day my time away…did great on the long flights. I arrived home on the 23rd, and had mild diarrhea the last two days, once a day. I am monitoring it, terrified it may be back. I am seeing Dr on Wednesday…scary, but I know I am not alone…

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@serenityva

Pines@pines, thank you for remembering me. I did beautifully in Thailand, loved every day my time away…did great on the long flights. I arrived home on the 23rd, and had mild diarrhea the last two days, once a day. I am monitoring it, terrified it may be back. I am seeing Dr on Wednesday…scary, but I know I am not alone…

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@serenityva So happy to hear you were healthy on your trip. Now let's hope you are well. Are you taking Florastor or some type of probiotic with S. Boulardii in it? I think that's really helping me.

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@pines

@sakota Cdiff spores can live for months on things. You could have picked it up in a doctors office, nursing home or hospital while visiting someone. It's hard to tell. It is not airborne though. Hand washing is key to an infected person. I'm happy to hear that you have not relapsed. Stay well and yes, keep the faith as you battle lung cancer.

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THank you @pines for your response to my posting. I am taking vancomyacin . I am washing my hands constantly. What has surprised me is how little information there is about how to protect other people from catching it. I have a nurse practitioner friend who has worked with thousands of hospitalized patients with C.Diff. she says what you said about counters and light switches and washig hands. She also added that from now going forward I should never let a person eat from my plate or use my utensil (I guess because the spores can lie dormant in a host). Did you know that the EPA has a list of products that they approve as effective against C.Diff? I believe they work faster than bleach and water. Again thank you for your response.

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@pines

@serenityva So happy to hear you were healthy on your trip. Now let's hope you are well. Are you taking Florastor or some type of probiotic with S. Boulardii in it? I think that's really helping me.

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Pines@pines…yes, I am taking Florastor 2 per day…I started that way back when I saw you post it…grateful for that! Just feel like I am on pins and needles waiting…like it is always lurking in the background…

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@annapocono

THank you @pines for your response to my posting. I am taking vancomyacin . I am washing my hands constantly. What has surprised me is how little information there is about how to protect other people from catching it. I have a nurse practitioner friend who has worked with thousands of hospitalized patients with C.Diff. she says what you said about counters and light switches and washig hands. She also added that from now going forward I should never let a person eat from my plate or use my utensil (I guess because the spores can lie dormant in a host). Did you know that the EPA has a list of products that they approve as effective against C.Diff? I believe they work faster than bleach and water. Again thank you for your response.

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I was told bleach was the only thing to kill spores. We are contagious until maybe about 6 days after we started on antibiotics. I always kept rubber gloves in the bathroom for when I went and kept people out of the house for a week. This is just what I was told. Good luck to you.

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@kanaazpereira

Hello everyone,

I encourage you to also view the Gastroenterology & GI Surgery Page on Connect https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/ where Mayo Clinic experts talk about C diff. IBD, celiac disease and other digestive conditions, and also discuss various treatments, ongoing research, current events.
For instance, in this post Dr. Darrell Pardi writes about "C. Difficile Care at Mayo Clinic” https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed/c-difficile-care-at-mayo-clinic/

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I have tested negative 2x this year. I am still unwell with large upper abd. distention with eating and bouts of diarrhea , early satiety. Your reference in the links refer to recurrent occurrences of c.difficile. I no longer have the infection. If you know of any information, articles,etc. concerning treatment of the patient ‘s continuing symptoms post c.dif. I would greatly appreciate any help.

Liked by 0687

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Sue, I am disheartened to hear that even after the cdiff infection is gone, that you still have many symptoms. I guess there really is no full recovery from this. Makes me sad that I will never be the same again.

Liked by 0687

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@ngorman25

Thanks Sue! I think I probably will have the fmt instead of trying dificid. I really don't want to take any more antibiotics than I have already. I had several antibiotics all last year for different reasons. I was "ripe" when I got an abcessed tooth in August and the dentist prescribed clindamycin, which finished me off! Then I got the "bastard bug" ,(cdiff). My gastro doctor called it that. I have had 4 flare-ups since September. I just dropped off a specimen, again, and am pretty sure it will be positive as I have had some diarrhea since Saturday. That's why I asked if anyone had any knowledge of fmt.

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@ngorman25 , if FMT is 90% effective, why are we bothering with more antibiotics? I don't understand why Dr's won't just go that route after one fail of antibiotics? I am on my first round of vanco after being diagnosed on Wednesday, but sadly I lived with Cdiff for the last 8 months or so and never went to the Dr. I would have bad flare ups at times, like when I had strep and was given antibiotics, but I never shared how my bowels were affected with Dr., shame on me I know. So I'm praying that this 10 day treatment will bring me back to normal because I'm so tired of feeling bad. Clindamycin needs to be banned!!

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@femalegolfer

@ngorman25 , if FMT is 90% effective, why are we bothering with more antibiotics? I don't understand why Dr's won't just go that route after one fail of antibiotics? I am on my first round of vanco after being diagnosed on Wednesday, but sadly I lived with Cdiff for the last 8 months or so and never went to the Dr. I would have bad flare ups at times, like when I had strep and was given antibiotics, but I never shared how my bowels were affected with Dr., shame on me I know. So I'm praying that this 10 day treatment will bring me back to normal because I'm so tired of feeling bad. Clindamycin needs to be banned!!

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@femalegolfer I agree re. Clindamycin. Many dentists give it out for infections or prior to root canals. My dr. gave it to me for a sinus infection but I have a friend who was given it prior to a root canal.

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@femalegolfer I agree with you as far as doctors waiting to offer fmt but I think there is some sort of rule that the patient has to have relapsed several times before it is offered. I also agree that clindamycin needs to be gone as I took it for an abcessed tooth in August. However, I think we don't have any chance of the pharmaceutical companies getting rid of anything. I just wish there was some warning to consumers as to the danger of taking it! And another thing, I think the pharmaceutical companies are trying to keep cdiff a "secret". I don't know about you, but I had never heard of it until I went to the hospital in September, where I was diagnosed. None of my family ever heard of it and most of my friends had never heard of it! It's right up there with mrsa which everyone has heard of.

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